Search found 163 matches

by RuSmolikova
Fri Nov 27, 2015 2:46 am
Forum: Tecfidera (BG-12, dimethyl fumarate)
Topic: Have Your doctor test lymphocyte count
Replies: 3
Views: 3774

Re: Have Your doctor test lymphocyte count

Updated recommendations to minimize the risk of the rare brain infection PML with Tecfidera.

http://www.ema.europa.eu/ema/index.jsp? ... 058004d5c1
by RuSmolikova
Sat Apr 11, 2015 12:05 am
Forum: General Discussion
Topic: Seizure of epilepsy
Replies: 0
Views: 930

Seizure of epilepsy

Have any of you had a single seizure of epilepsy? I have been on Gilenya for one year and just came back home from hospital emergency department (with a broken head and five stitchese...) :( I had Tysabri before G (for one and half year) but left it since my JCV antibody index have reached 3,8 and t...
by RuSmolikova
Wed May 23, 2012 7:36 am
Forum: Tysabri (Antegren or Natalizumab)
Topic: 242 PML cases and 52 deaths - May 2012
Replies: 9
Views: 6717

242 PML cases and 52 deaths - May 2012

Biogen Idec confirmed 10 new cases of PML (0505 2012). The total number of PML cases among the Tysabri users rises to 242 and the total number of deaths increased at 52 (three other patients died of PML). PML patients mortality is currently about 21 percent.
by RuSmolikova
Wed Mar 14, 2012 1:07 pm
Forum: General Discussion
Topic: Copaxone and radioactive iodine - does if fit together?
Replies: 1
Views: 1064

Copaxone and radioactive iodine - does if fit together?

Is here anyone who experienced cancer in addition to MS? I am wonder if the tests associated with one shot of radioactive iodine (two weeks at the hospital are a must) can be done while someone is on immunomodulatory drugs? Does anyone know if the administration of Copaxone should be interrupted for...
by RuSmolikova
Sun Feb 19, 2012 4:29 am
Forum: Tysabri (Antegren or Natalizumab)
Topic: Febuary 1, 2012: 207 PML cases on natalizumab (44 deaths)
Replies: 2
Views: 2598

Febuary 1, 2012: 207 PML cases on natalizumab (44 deaths)

Since January 2012 (as of Febuary 1), there have been six more PML patients and two more deaths.
It means 207 confirmed cases of PML and 44 of them have died (21%). :evil:
There have been about 98.000 MS patients on natalizumab worldwide.
by RuSmolikova
Sat Jan 21, 2012 3:01 pm
Forum: Tysabri (Antegren or Natalizumab)
Topic: 159 cases of PML with 29 deaths for Tysabri MS patients
Replies: 29
Views: 10092

Re: 159 cases of PML with 29 deaths for Tysabri MS patients

3 more patients with PML have died (total 42)...
by RuSmolikova
Fri Dec 30, 2011 4:24 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: tumor
Replies: 2
Views: 898

Re: tumor

The tumor was found incidentally during a routine ultrasound control after the procedure, all the laboratory tests were (and still are) all right as well as the clinical condition of the patient. This creates the impression to thoroughly examine the thyroid before procedure, to avoid what happened t...
by RuSmolikova
Fri Dec 30, 2011 4:10 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: tumor after baloon angioplasty...
Replies: 2
Views: 985

Re: tumor after baloon angioplasty...

...This could lead to an unhealthy state in the thyroid, which would be relieved when CCSVI venoplasty is performed. That was exactly my reasoning - whether improved jugular vein flow may have contributed to the fact that the tumor began to be better nourished and therefore had ideal conditions for...
by RuSmolikova
Fri Dec 30, 2011 4:07 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: tumor
Replies: 2
Views: 898

tumor

That was exactly my reasoning - whether improved jugular vein flow may have contributed to the fact that the tumor began to be better nourished and therefore had ideal conditions for growth. Do the patients after balloon angioplasty experience any problems with their thyroid?
by RuSmolikova
Fri Dec 30, 2011 11:07 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: tumor after baloon angioplasty...
Replies: 2
Views: 985

tumor after baloon angioplasty...

A friend of mine was detected CCSVI, followed by balloon angioplasty in November 2010 and few month later (in May 2011) doctor found a tumor of the thyroid gland. It was found by chance just because of jugular vein´s ultrasound. Unfortunately, it is a malignant tumor. Could improvement of the blood ...
by RuSmolikova
Fri Dec 16, 2011 11:02 am
Forum: Tysabri (Antegren or Natalizumab)
Topic: 159 cases of PML with 29 deaths for Tysabri MS patients
Replies: 29
Views: 10092

Re: 159 cases of PML with 29 deaths for Tysabri MS patients

HarryZ wrote:...Don't know if there are any more deaths included in this new number.
Yes, one more death increased the number up to 39...
by RuSmolikova
Sun Nov 20, 2011 1:28 pm
Forum: Tysabri (Antegren or Natalizumab)
Topic: 159 cases of PML with 29 deaths for Tysabri MS patients
Replies: 29
Views: 10092

Re: 159 cases of PML with 29 deaths for Tysabri MS patients

HarryZ wrote:Latest figures show the number of PML cases has risen to 181. It isn't known if any more deaths are included in the recent increase.

Harry
11 new cases of PML and 5 more deaths (since the beginning of October 2011).
Total November numbers: 181 PML patients and 38 PML deaths...
by RuSmolikova
Sun Oct 30, 2011 10:13 am
Forum: Copaxone
Topic: Synthon’s Glatiramer Acetate (GTR) in RRMS
Replies: 0
Views: 2387

Synthon’s Glatiramer Acetate (GTR) in RRMS

Has anyone heard about this:
Synthon’s Glatiramer Acetate (GTR) in RRMS?
What is the difference comparing it to well known glatiramer acetate?
by RuSmolikova
Fri Oct 28, 2011 9:33 am
Forum: Tysabri (Antegren or Natalizumab)
Topic: 33 deaths due to PML
Replies: 5
Views: 2017

Re: 33 deaths due to PML

Does anyone know how many total number of patients on Tysabri as of Oct 4? Biogen Idec announced today: "...as of the end of September 2011, we estimate that approximately 63,500 patients were on commercial and clinical TYSABRI therapy worldwide, and that cumulatively approximately 92,200 patients ...
by RuSmolikova
Sat Oct 15, 2011 11:16 am
Forum: Tysabri (Antegren or Natalizumab)
Topic: 33 deaths due to PML
Replies: 5
Views: 2017

33 deaths due to PML

MS patients on Tysabri: 170 PML cases, 33 deaths already (as of 4-th of October 2011). "...as of the end of September 2011 approximately 63,500 patients were on commercial and clinical TYSABRI therapy worldwide. And that cumulatively approximately 92,200 patients have ever been treated with TYSABRI ...