Search found 88 matches

by Just_Me
Fri Aug 03, 2012 8:50 am
Forum: General Discussion
Topic: Anybody near Victorville/Hesperia/Phelan...
Replies: 0
Views: 611

Anybody near Victorville/Hesperia/Phelan...

Do you have a neurologist you like? I'm in Phelan and I've been trucking down to Loma Linda but would rather go closer to home and also find a doctor that doesn't have a 6 month wait.
by Just_Me
Wed Dec 07, 2011 11:37 am
Forum: Ampyra
Topic: Anthem Blue Cross
Replies: 2
Views: 4472

Anthem Blue Cross

Anybody have Anthem PPO who is taking Ampyra? How much is it costing you?

Id like to give it a try but I can't get an answer of how much it will cost. I was told my co-pay is 50% of the allowed rate but they won't tell me the allowed rate!
by Just_Me
Wed Aug 04, 2010 5:42 pm
Forum: General Discussion
Topic: Spinal Tap
Replies: 1
Views: 1492

Spinal Tap

Have any of you (or anybody you know) been denied insurance benefits because of a negitive spinal tap? I was told a year ago I had progressive MS. I didn't feel confident with the doctor and started looking into Lyme. My Lyme test with Igenex was what I'd call a "maybe". A lyme doctor I am seeing sa...
by Just_Me
Sat Jan 23, 2010 10:06 am
Forum: Antibiotics
Topic: Lyme is a maybe! Doxy question
Replies: 4
Views: 2535

I had no reaction to 10 days of Doxycyclene and my doctor won't prescribe it again. :( I told him I want to do the blood test again & he's going to call Igenex & see which tests they suggest.

I'm going to look for a lyme-literate doctor around here if possible.
by Just_Me
Mon Jan 11, 2010 7:15 pm
Forum: Antibiotics
Topic: Lyme is a maybe! Doxy question
Replies: 4
Views: 2535

Lyme is a maybe! Doxy question

Partial positive on my Lyme test...but those are what also come up with positive EBV so my doctor is skeptical but willing to try me on Doxy. Question 1: Is 100mg twice/day effective or should it be higher dose? (I am a 165 lb adult woman) Question 2: How long before I get a Herx reaction (if its go...
by Just_Me
Thu Dec 17, 2009 10:22 am
Forum: Antibiotics
Topic: Franks mom ABX log
Replies: 7
Views: 3122

Has she seen any improvements in her MS symptoms yet?
by Just_Me
Mon Dec 07, 2009 11:40 am
Forum: General Discussion
Topic: Vibrating Hip
Replies: 8
Views: 6239

They also call my thigh occasionally. 8O
by Just_Me
Sun Dec 06, 2009 7:34 pm
Forum: Antibiotics
Topic: Questions
Replies: 3
Views: 2195

Thanks Lori & Sarah!
by Just_Me
Sun Dec 06, 2009 7:23 pm
Forum: General Discussion
Topic: Fampridine / Aminopyridine
Replies: 4
Views: 1782

Jim, I am taking 10 mg 2x/day. How long did it take before you noticed any effects? I've taken it for 2 days and haven't noticed anything except being very tired, although that may not be related to the drugs. Are you in the US? I am getting it from Inland Compounding Pharmacy in California. Phone #...
by Just_Me
Sat Dec 05, 2009 7:39 pm
Forum: General Discussion
Topic: forgetting shit at work
Replies: 19
Views: 3715

I was just thinking that Lew. I already set reminders for appointments and all that other stuff but I'm forgetting the simple things that I should know. Birthdays, anniversaries, HOW A STEERING WHEEL WORKS! Ge'ez! This morning I had somewhere important to be, I started the car and slowly started to...
by Just_Me
Sat Dec 05, 2009 7:37 pm
Forum: General Discussion
Topic: Fampridine / Aminopyridine
Replies: 4
Views: 1782

Fampridine / Aminopyridine

Anybody try this? What were the results?

I don't think its approved yet for MS so I'm a bit surprised my neuro prescribed it for me.

It had to come from a compounding pharmacy but it was cheap enough - $43/mo + $3 postage.
by Just_Me
Fri Dec 04, 2009 4:33 pm
Forum: Antibiotics
Topic: Questions
Replies: 3
Views: 2195

Questions

I was told I have PPMS. I'm being tested for Lyme but if it comes back negitive, I'm going to try to get my doc to put me on antibiotics anyway. And if he won't I'll find a way to get the drugs myself online and just go to him for followups. I'm not very good at sorting thru all the medical info so ...
by Just_Me
Fri Dec 04, 2009 4:14 pm
Forum: Reading Nook
Topic: Books that you re-read over and over
Replies: 28
Views: 14623

The two books I've read over he most times are The Giver by Lois Lowry and Stranger in a Strange Land by Robert Heinlein. I've read the whole Harry Potter series in three languages, and listened to both versions of the English audiobooks repeatedly. Jim Dale does a better job than Stephen Fry - eve...
by Just_Me
Fri Dec 04, 2009 3:06 pm
Forum: General Discussion
Topic: Veterans
Replies: 5
Views: 1670

There are certain diseases the VA deems as automatically service connected, MS being one of them. There are some who theorize all of the shots and immunizations you take can trigger MS, but no one knows for sure. There is a 7 year window after you leave the service, but, don't quote me on this part...
by Just_Me
Thu Dec 03, 2009 3:27 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Iron question
Replies: 11
Views: 3033

Iron question

Forgive me if this has all ready been discussed.

I saw the Canadian news report & I think the doctor said the reduced blood flow due to CCSVI causes a buildup of iron in the brain.

Is it possible to have the brain tested for iron and has that been done to verify his theory?

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