This Is MS Multiple Sclerosis Knowledge & Support Community

Hi everyone, Its been a year since my last unsuccessful CCSVI treatment in Poland. I've had no problems following surgery, just no improvements either..... However, last night I had this pain in the area of my left jugular and the same today with a 'pressure' type headache. Would a blood clot take s...

I'm sure that someone here far more knowledgeable than me will correct this - but I though I'd read that the Iliac can only be accessed from the left side? That certainly didn't happen to me.When I asked if they would recheck the Azygous I was told no as it appeared normal 1st time. Both times I was...

Hi, I hope someone has an answer here for you!

I also wonder the same thing - for some people do improvements take longer? Perhaps in some people iron deposits are more ' stubborn ' and so improvements are not immediate?

May be this is me just wishing!

I also will not return to Poland. Been twice with no real improvements. I don't doubt that what they are doing they are doing well but they fail when it comes to being thorough. I'm not convinced that I don't have blockages elsewhere than my jugs. I would have had stents had they thought they were n...

Hi, For me the improvement is very little if any. I'm not completely despondent however, I believe my jugs are open as my spasticity seems to be a little improved, may be for me the improvements are longer coming....... I do feel as someone mentioned in an earlier thread, under treated. Despite aski...

Vivavie - thats how I feel. Treated in Poland and I am convinced I have been under treated. I'm not confident that all veins were checked, and thats why I'm not ready to throw in the towel totally yet. I'll sit back though and see what happens in other locations......

Hi pklittle, I'm with you here. I've had it done twice now with some benefit but nothing miraculous, time will tell. While I still believe that CCSVI has its place in the MS puzzle, its just a part and its time to watch and see what happens with the research, while still pushing for research in our ...

How expensive is this, George?

Hi, after having further ballooning on Friday I had benefits Sat/Sun morning. Definitely 'looser' which made my walking better. I was very excited. Today its all gone and I've been wondering...... The bloods I had taken here show to be very low (although not dangerously) in sodium and potassium. Bor...

We suggest that nattokinase may increase risk of intracerebral hemorrhage in patients who have bleeding-prone cerebral microangiopathy and are receiving other antithrombotic agent at the same time. NHE Does this suggest that it is safe to take if you are NOT on any other anticoagulant or not suffer...

If I have a glass - or may be 2! - of wine my walking gets better???

I think the alcohol relaxes me and I'm not so anxious re falling over!!

However, haven't tried it out while on anti-coagulants!

Claire

Thats great news Cece.

Sorry to hear that Nasti - sending positive thoughts!!

Thanks Blossom, Esta. I hope something comes of this so much. Billmeik, didn't think to look at the numbers :roll: To focused on whether I needed an op or not. Mark - will def ask if they will check all necessary veins. I really want this done properly. Kevin - can't believe we're here at the same t...

I've just seen Dr Ludyga for a follow up Doppler. I'm slightly disappointed to say the least. My MS is worse than it ever has been and I really was pinning my hopes on that both my veins have collapsed again. However, it would seem that the right vein has an 'ok' flow but he sees something on the ri...