Search found 18 matches

by MamaGirl
Thu Sep 16, 2010 9:17 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Post if CCSVI treatment did NOT work for you
Replies: 339
Views: 243820

http://www.enjoyingtheride.com/ You are an absolutely amazing person; courageous and honest!!! There was love and compassion and such truthfulness in your writings. Thank you for being the minority, the one who fits into the very small percentage of keeping it real, good or bad. This is what it sho...
by MamaGirl
Fri Feb 19, 2010 2:15 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Paging Dr. Zamboni?
Replies: 85
Views: 16711

Thank you Chris! and Bob, sleep tight! :wink:
-MamaGirl
by MamaGirl
Fri Feb 19, 2010 1:33 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Paging Dr. Zamboni?
Replies: 85
Views: 16711

OK.... I am not going to indulge in any arguments; the threads here are filled with those. As for the modulators, it can't be easy for you guys/girls.... good luck, you need to re-read the threads again as you have FAR too many people on here who make it very difficult to want to stay here. My best ...
by MamaGirl
Fri Feb 19, 2010 12:57 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Paging Dr. Zamboni?
Replies: 85
Views: 16711

whyRwehere wrote::lol: I thought you were just checkin' in at this awful place you hate!!
YOU TRULY NEED TO GROW UP! :roll:
by MamaGirl
Fri Feb 19, 2010 12:47 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Paging Dr. Zamboni?
Replies: 85
Views: 16711

YES, by all means, anyone who agrees with the above should go running to whatever site Mammagirl is at. In fact Chris1967, I think she might hold your hand there, and maybe Bob will finally leave us alone. Oh, I can see it now, the site of the miserable! Boy will you guys be popular!! Thanks, I had ...
by MamaGirl
Fri Feb 19, 2010 12:35 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Paging Dr. Zamboni?
Replies: 85
Views: 16711

There is a sense of cult following on here and that is very sad. It was meant to help ALL people with MS; not just the ones who agree with your point of view! Before they start coming after you I just want to say thanks for having the guts to express your thoughts, despite the repercussions. I'm no...
by MamaGirl
Fri Feb 19, 2010 11:48 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Paging Dr. Zamboni?
Replies: 85
Views: 16711

Im not sure I understand what a forum is then? I have MS, do I have to share everyones opinion? Im not sure I understand what a forum is then? I have MS, do I have to share everyones opinion? Im sorry to learn you are as frustrated with Zambonis silence as I am. I guess we will both hang in there I...
by MamaGirl
Sun Dec 27, 2009 12:29 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI screening in NY-7 Tesla MRI machine/NYU research
Replies: 49
Views: 13764

Hi Michelle, That's unbelievable! And here's another irony of this, which I didn't even connect until I read your post; Dr Herbert was the 3rd Neuro I went to after my introduction to this wonderful disease this past spring. I used the word "was" because I went to him once for a consult, ...
by MamaGirl
Wed Dec 02, 2009 9:50 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: New Blog Post-CCSVI: Separating Fact from Fiction
Replies: 45
Views: 13503

May I say that I believe that if your MS is not progressing in such a way that you are losing the battle, you should really step back. And I do not mean you are afraid of MS progression, we all are afraid of it, I mean you are really losing the battle and you are getting to the point that assistive...
by MamaGirl
Tue Dec 01, 2009 10:44 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: NMSS Updated CCSVI statement - alludes to Dr. Dake and Holly
Replies: 53
Views: 12920

Times like these I wish Jeff and I had just gone to Stanford, had his treatment, gone home and gotten on with life. But I asked Dr. Dake if he minded if I shared the information with a community of friends online...and he said fine. I sometimes wonder if we will both regret that decision. I hope no...
by MamaGirl
Tue Dec 01, 2009 9:39 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: NMSS Updated CCSVI statement - alludes to Dr. Dake and Holly
Replies: 53
Views: 12920

marcstck wrote: Actually, this statement is entirely accurate. There was one death following the surgery. I know this has been a taboo subject here, and it's not my intent to upset anybody. But I do think that such questions have validity... ----------------------------------------------------------...
by MamaGirl
Mon Nov 30, 2009 9:41 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: New Blog Post-CCSVI: Separating Fact from Fiction
Replies: 45
Views: 13503

Marc, thank you! That was honest, factual yet hopeful. Beautifully written.
Full of information.
-MamaGirl
by MamaGirl
Mon Nov 30, 2009 8:18 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Oh, Radeck?
Replies: 194
Views: 63367

Reading about Radeck brings one of my biggest fears to the surface. For those of you who live close to Stanford, if a problem such as Jeff's or Radeck's appears, you can take a trip back to see Dr. Dake. But, what if you live in the eastern US as we do. What would you do if you noticed a problem su...
by MamaGirl
Mon Nov 30, 2009 5:37 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Oh, Radeck?
Replies: 194
Views: 63367

Radeck, you are a trooper and anyone with MS can fully understand your hopes. Stay strong and know that there are people everywhere who are praying for you!!! GOD bless....
MamaGirl
by MamaGirl
Sat Nov 28, 2009 10:20 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: some questions about ccsvi... thank you!
Replies: 4
Views: 2046

MamaGirl, There is a new paper coming out from Dr Zamboni, pretty soon I hope. All of the researchers are swamped with people contacting them. I suggest that you keep learning here, and take what you learn to your own doctors. We need to get more doctors interested and online with CCSVI. One thing ...

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