Search found 39 matches

by Shueywho
Mon Feb 08, 2016 12:04 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Dr. Hubbard's update on the FDA
Replies: 46
Views: 7488

Re: Dr. Hubbard's update on the FDA

Haven't heard anything from Dr Hubbard in a while. I went to their webpage today and it's full of script errors and nothing has been updated in some time. The last post on the Hubbard Foundation facebook page was from June or July 2015. I'm curious if they are not longer going further on ccsvi? Any...
by Shueywho
Wed Aug 08, 2012 9:53 am
Forum: Chiropractic Treatment
Topic: NUCCA and CCSVI
Replies: 19
Views: 12737

Re: NUCCA and CCSVI

fraser thank you for posting that. I have just recently become aware of this. I was wondering who in Ontario was doing this. My partner had the procedure almost two years ago, and the brain fog, heat intolerance and fatigue are setting back in. The brain fog especially, she is becoming very confused...
by Shueywho
Thu Apr 28, 2011 8:51 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: YOUR OPINIONS AS PATIENTS NEEDED! Evidence-based medicine
Replies: 4
Views: 1924

Is this idea kinda like a Snopes.com for research? If that's the case I love it.
by Shueywho
Sun Dec 05, 2010 2:16 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: WHAT THE HE*% IS HAPPENING HERE ON THIS FORUM???
Replies: 14
Views: 1967

DITTO!

Glad you spoke up soapdiva and I second that! Just use the same rules that are expected in any kindergarten class!
by Shueywho
Thu Nov 04, 2010 11:37 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: PLAVIX - An Idea to accelerate the PROOF
Replies: 14
Views: 2502

Maybe it was a question out of curiosity....just maybe?
by Shueywho
Wed Nov 03, 2010 1:22 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: PLAVIX - An Idea to accelerate the PROOF
Replies: 14
Views: 2502

The study was completed in sep. 2010, so results should be coming out soon I hope. I think this also would provide at least a link.


http://clinicaltrials.gov/ct2/show/NCT00467584
by Shueywho
Fri Oct 01, 2010 3:52 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: What do all these PEOPLE DO !!!
Replies: 7
Views: 2201

Bike tours?
by Shueywho
Fri Sep 24, 2010 7:50 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Appointment dates for Albany Community Care
Replies: 263
Views: 50609

Hi TFAU, we called around May 20th and my partner has an appointment for Oct. 7th. We were only given about 6 weeks notice, so it could happen quick when it does. I don't know if it was a cancellation though.

doesn't hurt to check, you could email them also.
by Shueywho
Thu Sep 23, 2010 9:02 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: LDN and postliberation?
Replies: 6
Views: 1353

Mark can you explain what the logic is for starting LDN after 3 months? My partner is having her procedure on Oct. 7th and is currently not on any dmd, but is considering going on LDN after. I would appreciate any insight you may have.

Thanks

Sheila
by Shueywho
Wed Sep 22, 2010 10:01 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Breaking news - Alberta Good or Bad I am not sure
Replies: 3
Views: 1563

More information Please! I think this could be excellent news! First time asking the right group questions.

Thank you for sharing.
by Shueywho
Wed Sep 01, 2010 12:57 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: My wife's turn next week in Poland - am I dreaming or not?
Replies: 73
Views: 13816

Thank you for the update. It is appreciated as information can become scant after a couple months. I imagine some are out living their lives to the fullest and are no longer stuck inside where the a/c and computer are. Some might be worried about posting negative, but we need it all. Thank You. Sheila
by Shueywho
Tue Aug 31, 2010 6:59 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Antihistimines/CCSVI/MS
Replies: 24
Views: 4460

Hi Selkie, I used to take allergy medication daily in the spring and fall. I then started using a neti pot, at first daily then only once a week. I now find I don't need the allergy meds except on extreme days. I also got my mother using one as she was a huge pill popper for allergies, she now takes...
by Shueywho
Tue Aug 24, 2010 7:21 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: All Users Post Here At Least Once
Replies: 13
Views: 2073

Hello, I am a partner to someone with ms. I don't post much, but I follow this board daily. I am so grateful for all the information good and bad that is collected here. My spouse got her call from Albany yesterday, she is scheduled for October 7th. We are so excited and trying to keep everything in...
by Shueywho
Sat Aug 14, 2010 6:45 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Finally Liberated
Replies: 6
Views: 1977

Wishing you continued results. Congratulations Kuly.
by Shueywho
Sat Aug 14, 2010 12:25 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: .."read it in the paper, so it must be true"
Replies: 32
Views: 4234

I agree with you L, we need more impartial reporting on this. I don't want to read miracle stories, or skewed science with an agenda, but facts when known or discovered would really be nice. Follow the science to where it leads you.