LDN and postliberation?

[Nasti]

Those of you who were on LDN before the liberation procedure, has anyone gone off it after the surgery? Any noticeable changes? I am still on it, kind of scared to go off it, though my energy level kind of elevated after the surgery...
I would appreciate any feedback
thnx

[Thekla]

I have stayed on it. I see no downside to it.

[adamt]

since starting 2mg LDN 2.5 years ago i havent got any worse - doses above 2mg made me worse and quicker than usual progression for some reason,

i was liberated last month and stayed on LDN, lucky i did as i think i have re-stenosed,

its not worth the risk of stopping LDN in my opinion

[MarkW]

Please stay on your MS drugs after you are de-stenosed, especially if they are producing positive effects (follow Prof Z's advice). There is some logic for trying LDN after de-stenosis (say after 3 months) if you can get it easily.
Kind regards,
MarkW

[Shueywho]

Mark can you explain what the logic is for starting LDN after 3 months? My partner is having her procedure on Oct. 7th and is currently not on any dmd, but is considering going on LDN after. I would appreciate any insight you may have.

Thanks

Sheila

[MarkW]

Hello Sheila,
3 months was a guess in order to allow changes from de-stenosis changes to be observed first (remylination might be just starting at 3m). There is not much science known about how de-stenosis or LDN actually work in MS. Add in people variability and its guesswork not science.
Kind regards,
MarkW

[Nasti]

I actually wanted to test the effects of CCSVI without the LDN, I know LDN works, I don't know about CCSVI... But, it seems it is not worth testing thanx for the feedback
nasti