Search found 69 matches

by crocky
Fri Apr 15, 2011 12:08 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Anybody with no stents and no restenosis after one year?
Replies: 25
Views: 3697

Hi Erica

sorry to hear that all is not going so well for you now - I was treated April last year in Poland - results a little disappointing - have a stent in left jug and last time I was checked out - Sept 2010 - no restenosis - initially did feel a lot better after angio, but it never really touched my fati...
by crocky
Tue Sep 28, 2010 9:55 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Post if CCSVI treatment did NOT work for you
Replies: 339
Views: 166872

ccsvi dissappointment

Hi, Well I had my first treatment on April 8 2010, after no immediate improvements apart from the warm feet bit, things did slowly improve, balance etc. I was treated in Katowice Poland by the Simka team and have spms, and had a stent placed in my left jugular. Anyway, after the first couple of mont...
by crocky
Thu Sep 02, 2010 7:10 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: stented in poland - esta tries again
Replies: 18
Views: 4214

Hi Ester Great news that your 2nd go is working well at the moment, also good to hear that he checked your arzogous upon reguest - there have been some on this forum complaining that Dr Simka didn't do this - glad to hear they are wrong! I'm going to Katowice to see Dr Simka for the 2nd time on Tues...
by crocky
Fri Jul 02, 2010 7:01 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: No follow up exam due to cost?
Replies: 7
Views: 1853

Hi Val - that's very true - can't understand why u can't even get checked up at a private clinic in Canada - it makes not sense at all.
by crocky
Fri Jul 02, 2010 3:25 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: No follow up exam due to cost?
Replies: 7
Views: 1853

Kattowice follow up

Hi As far as I know they just give you a doppler at the 6 month check up - then you have to organise a second visit if it shows you have re-stenosed. All rather a big hassle if you are located far away. As for follow up before the 6 months is up - well so far that has proved to be a problem for me -...
by crocky
Fri Jun 25, 2010 4:05 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: I have a date for vein and valve transplant surgery.
Replies: 24
Views: 5357

Thats great news Rici - loads of us are behind you on this and just wishing you all the very best success with this operation.
by crocky
Mon May 31, 2010 11:45 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: smoking and ccsvi
Replies: 58
Views: 9642

smoking

Until I heard about ccsvi I was a very dedicated smoker! Smoking was one of my favourite hobbies, and not a lot would part me from my cigs. Even a breast cancer diagnosis in 2003 didn't stop me. I know/knew then also, that smoking made my ms worse, particularly for the first 5 mins after a cig - my ...
by crocky
Fri May 14, 2010 7:52 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: MS Diagnosis Type versus Improvements
Replies: 1
Views: 1764

Hi Ted That's a question I am very interested in knowing the answer to. I was liberated in Katowice Poland 8 April, have had ms for 10 years and think that I was changing from rrms to spms. I had one stent in my left jugular and angio on the right. I am a little disappointed with my results so far -...
by crocky
Wed Apr 28, 2010 11:33 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Poland W/C Monday May 3rd - anyone going?
Replies: 22
Views: 3373

Just to wish you all Mutley, Sunlounger. Mags, Fiddler et al, all the very very best for your procedures. I'm about 20 days after mine now, a little disappointed with the result so far, but things are changing, so I am still optimistic. I feel much better in myself now - I use to feel sick and flu i...
by crocky
Mon Apr 26, 2010 8:33 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: That is a one bad venous reflux caused by destroyed valve.
Replies: 144
Views: 30790

Hi Rici

Sorry, but I didn't really understand your reply then - did you mean that a doctor in Poland would do your operation for you?
I hope so - keep us all up to date
by crocky
Sat Apr 24, 2010 4:30 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: fiddler finally flying... to Poland
Replies: 118
Views: 20345

All the very best to you Ted - you are in good hands and good company there and I hope very much that it has a positive impact on your symptoms.
by crocky
Thu Apr 22, 2010 2:25 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: That is a one bad venous reflux caused by destroyed valve.
Replies: 144
Views: 30790

It was a pleasure Rici - like many on this forum I follow your story - wish all the best of luck to you in your recovery - all the best - Suzanne
by crocky
Sun Apr 18, 2010 5:14 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: LIVABIRD's Poland Adventure
Replies: 130
Views: 21507

Hi I'm very impressed with you both for taking the bit between your teeth and driving there. Of course I wish you all the very very best with your procedure Liva - don't worry it really is a breeze. I am a whole lot better, I week after my liberation, not perfect, but life has become livable. I hear...
by crocky
Fri Apr 16, 2010 7:42 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: My Poland Experience
Replies: 24
Views: 5329

Hi I just wanted to wish both Mutley and Claire all the very best for their return visits to Poland, and hope so much that this ridiculous volcano in Iceland business doesn't interfere with your flights. I've been liberated for a week now and am feeling a lot better than before. I'm walking a lot be...
by crocky
Mon Apr 12, 2010 7:54 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Marek keeps us all smiling !
Replies: 12
Views: 2413

Hi Yeah, I'll join the Marek fan club - what a fantastic personality he is, and how great he is at his job - I wish all the very best on his walk - I'm sure he'll raised lots of money for MS in Poland. Majick - the other driver/helper is great too, and he's not leaving - the team and organisation in...

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