Anybody with no stents and no restenosis after one year?

[crocky]

sorry to hear that all is not going so well for you now - I was treated April last year in Poland - results a little disappointing - have a stent in left jug and last time I was checked out - Sept 2010 - no restenosis - initially did feel a lot better after angio, but it never really touched my fatigue problem, which continues to ruin my life . I still believe that this is the answer to our symptoms, but that unfortunately more time is still required to finese technique, esp for those who have had ms for over 5 yearsl
Anyway, suppose we just have to keep the faith, and hang on in there. Now I feel worse than ever - nothing to do with procedure, just ms progression - good luck to everyone out there - I know there have been some wonderful results - just hoping for mine!

[drsclafani]

like ive been saying on every thread i comment on, i think people are jumping the gun on getting treated. we need to find the cause of stenosis. I believe it to be from things(bones, muscles) putting pressure on the veins to the point it collapses. getting treated is just temporarily fixing things but eventually the vein will close back up and even worse because now the vein is weaker from being stretched,so when it collapses again it will be worse like we're seeing. have we seen stenosis on different parts on a vein? why havent we seen stenosis happen at different parts of a vein that has been stented? why is it that only that small section of vein is getting stenosised ?


i think everyone should get tested but not treated then have where is showing stenosis fixed(upper cervical care, TOS, and CTOS) then if needed getting treated.

I cant be the only one thinking about this?

i have a surprise for you. the vast majority of these stenoses are not of the vein. The vein wall is usually of a normal diameter. The problem is in the valves which are either fused or stuck together and acting like a funnel inside the vein. This is very obvious from my work with intravascular ultrasound.

So i think we may have been going down the wrong track and treating these narrowings as if they were like atherosclerosis or dialysis graft intimal hyperplasia. The treatment is very different for me once i understood the problem was valve and notwall...

DrS

[drsclafani]

9 replies and 0 replies to my question now that is disappointing. Really nobody here with no restenosis 1 year after angioplasty? Dismal prospects.

Jamit, we already know that restenosis is going to happen. Dr Zamboni reported it. I have stated it on tims for over a year.

No one ever stated that restenosis would not occur. Thus you cannot criticize the technique because its natural history requires retreatment. We get a flu shot but need another one in a year.

There is good data that is coming out in the near future. It would be hard for most physicians treating ccsvi to have one year followup . the procedure started being done less than 18 months ago

[Ernst]

the vast majority of these stenoses are not of the vein. The vein wall is usually of a normal diameter. The problem is in the valves which are either fused or stuck together and acting like a funnel inside the vein. This is very obvious from my work with intravascular ultrasound.

So i think we may have been going down the wrong track and treating these narrowings as if they were like atherosclerosis or dialysis graft intimal hyperplasia. The treatment is very different for me once i understood the problem was valve and notwall...

DrS

Most interesting sir. This re-stenosis process has been big question in my mind. Why the vein has to narrow again? I have been wondering that what things might have effect to process. Vitamin D? Exercise? Diet? EDSS? etc.. Quess there is lots of questions and research to do, and hopefully answers will be found.

My wife had her procedure about 10 months ago, and she is doing great. About 4 months ago we were wondering if her jugular is narrowed again, cause her symptoms got back. But, symptoms vanished with exercise (weight training). I dont know what happens in detail (circulation? flow? nerve-muscle connection? etc), but looks like exercise has been incredible effect. We have been quite exited how good she has responded to training.

[Liberation]

................

[jamit]

A simple question only asks for a simple answer yes or no, I wonder why everybody thinks all kinds of other comments answers the question.

It sounds like my question should have been ....what do you think I am asking when I ask...I did not ask because I don't know the various restenosis percentages, but because zamboni only claimed 50% restenosis rate not 100% and IRs in the US have actually posted various restenosis rates, but no one claims a 100% restenosis rate (I gather that would be rather bad for business) so I would have expected at least one person with no restenosis.

A lot of people posting here on TIMS went to Poland and Bulgaria from January 2010 in fact I put myself on their waiting list back then and did not get a date until June, so there would be many people treated more than one year. I have also looked on facebook, no luck.

By the way Pacific Interventionalists have been focused on the valves since I believe July of last year, but they seems to still prefer the large balloons, don't know if they use shorter balloons and or higher pressure or if they work on refining their treatment.

[Cece]

Jamit, you have insufficient data, that is the answer as I understand it.

[jamit]

cece??? There you go again you have just gotten treated so no need to respond.

I guess none of the people treated i Poland and Bulgaria visit here or don't care to respond or all restenosed already. Tons of posts on facebook from people being treated there particularly Canadians getting their second or third treatment here. Oh well, let this post die a peaceful death I think the zero response rate answered my question.

[Ernst]

My wife was operated 10 months ago in Poland.. and I believe her vein is not re-stenosed, cause benefits have lasted. We contact the ameds clinic if her condition changes worse.

[desidi]

I am over the 10 month mark, and I haven't restenosed.

[Liberation]

------------