Search found 150 matches

by girlgeek33
Sun Feb 13, 2011 10:03 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 2659545

Re: Treating Siblings

i have not treated any siblings at this point. I am working up a mother daughter pair and have treated the mother. I doubt that they will have mirror image findings because they are so different in age. Their clinical presentations are also different. but we will see. I'm still looking to have my d...
by girlgeek33
Sun Feb 13, 2011 9:10 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Opening Minds for CCSVI Walk-n-Roll 2011
Replies: 8
Views: 3575

I'm heading down and created the 33 B.R.A.T.S. Team (beacons reaching ability through support). Those on facebook know this name from my page. Look forward to meeting others down there. If anyone would like to join my team, here is a link to the team page: http://walkandrolltampa2011.ccsvi.org/ccsvi...
by girlgeek33
Sun Feb 13, 2011 9:05 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Cece's turn
Replies: 722
Views: 185858

CeCe! This is great news!!! I'm so happy you have joined the Liberati!!! I have had this done 3 times. My last procedure last month with Dr. Sclafani & Smitty. First two with Dr. Bonn. After the first procedure, I went full steam ahead and enjoyed every bit of my new found health. In hind sight,...
by girlgeek33
Fri Jan 14, 2011 5:26 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: PATIENTS AND CAREGIVERS DISCUSS THE PHYSICIAN DISCUSSION
Replies: 109
Views: 26296

Very interesting, although much of it is like reading a foreign language to me.

And yes CeCe, once a rockstar, always a rockstar! ;)
by girlgeek33
Sat Oct 23, 2010 10:42 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Please help! Treatment in Poland is at risk!
Replies: 43
Views: 13964

Re: Please help! Treatment in Poland is at risk!

A neurologist, Prof. Ryglew, and the director of the medical association of Poland have contacted the ministry of health in an attempt to shut down CCSVI treatment in Poland. Please write e-mails to ryglew@ipin.edu.pl and prezes@hipokrates.org and ask them to stop their attempts and state why the C...
by girlgeek33
Wed Sep 29, 2010 7:20 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 2659545

It was noted in my last follow up that all of us CCSVI patients that have gone to my Dr. have pulse/ox that is at the very low end of normal ranges. All of us. She found this interesting.

Has this been noted by any other docs? Have any other MSers been told this?
by girlgeek33
Fri Sep 17, 2010 4:47 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 2659545

I have what feels like scar tissue under the skin. feels like a little ball, solid, inside, maybe a half inch above incision site. So, considering that, do I have anything to be concerned with? I had a serious bruise after the procedure. I recall a nurse noting that something must have "slippe...
by girlgeek33
Fri Sep 17, 2010 10:09 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 2659545

Can you tell me how common it is to get scar tissue around or near the incision site? When there, what can be done about it? When is this serious? Can this create issues for the blood flow, especially since that's what trying to be corrected? Thanks! Welcome back! Hope it was a good trip! scar form...
by girlgeek33
Tue Sep 14, 2010 10:30 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 2659545

Can you tell me how common it is to get scar tissue around or near the incision site? When there, what can be done about it? When is this serious? Can this create issues for the blood flow, especially since that's what trying to be corrected?

Thanks! Welcome back! Hope it was a good trip!
by girlgeek33
Sun Sep 12, 2010 9:11 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Having insurance pay for procedure=fraud
Replies: 17
Views: 5589

Trish317 wrote:
GG, I don't see your post there. It's such an excellent one. Would you please check and post it again?
Thanks Trish! It is there. User Denise G, after moongirl and before Denise Manley...

:)
by girlgeek33
Sun Sep 12, 2010 5:54 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Having insurance pay for procedure=fraud
Replies: 17
Views: 5589

I had to respond. Couldn't help myself. Though, I thought I was tactful and clear headed... Here it is: "You make some very inflammatory statements, without having all of the facts. First, the only people to make the claim that this is a cure, are the critics. Dr. Zamboni and all other doctors ...
by girlgeek33
Tue Sep 07, 2010 4:02 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: I bruise easily
Replies: 7
Views: 3243

http://www.wisegeek.com/why-do-i-bruise-easily.htm From another site: Injury Normal child play - every child gets bumps and bruises. Accident Falls Physical abuse Causes of bruising easily or widespread bruising include: Bleeding disorders Hemophilia Von Willebrand's disease Ehlers-Danlos syndrome L...
by girlgeek33
Tue Sep 07, 2010 3:49 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: I bruise easily
Replies: 7
Views: 3243

Re: I bruise easily

Not a song title - really, I do. Especially on the legs. The bruises are large and ugly looking. The more strange thing is that I don't remember having hit anything. Today I have two mysterious bruises on both legs. Do you think this has anything to do with my procedure 8 months ago (balloonning, f...
by girlgeek33
Tue Sep 07, 2010 3:42 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI, LDN and post-treatment meds
Replies: 26
Views: 8842

Hi, I had my balloon angio 2 weeks ago, and continue to take LDN, i didnt realise it was advised to stop But i think i have restenosed, 2 weeks after liberation Does anyone think this could of been because i continued taking LDN? Is it advised to stop when i get treated again? thanks No, restenosis...
by girlgeek33
Tue Sep 07, 2010 3:41 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI, LDN and post-treatment meds
Replies: 26
Views: 8842

Hi, I had my balloon angio 2 weeks ago, and continue to take LDN, i didnt realise it was advised to stop But i think i have restenosed, 2 weeks after liberation Does anyone think this could of been because i continued taking LDN? Is it advised to stop when i get treated again? thanks No, restenosis...

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