This Is MS Multiple Sclerosis Knowledge & Support Community

Hi everyone, This is a video I made on the process of applying for disability. This is based on info that I learned and read about as well as my own personal story. I am not an expert but thought that it might be helpful to those thinking about applying. Thanks, Andrea http://www.youtube.com/watch?e...

Thanks for the responses. I was in a drug study that I just dropped out of, since I got the control drug Avonex. I was seeing the top MS doc there and he is the one that told me that I could not do streroids for a couple of months. Since I won't be seeing him any longer and my old Neurologist left t...

I have had good and not so good Neurologists. I guess I have been lucky. My last one was very proactive and opened minded, blunt at times but always honest with me. She is no longer in my state. I had been in a drug study for a little ove...r a year for another oral drug. I got stuck with the contro...

Dear Andrea, In answer to the question about what the innominate vein is, I think you will most easily find the answer in the following diagram. http://en.wikipedia.org/wiki/File:Gray1174.png There is both a left and right innominate vein. Also keep in mind that innnominate is used interchangeably ...

Hi everyone, It is now 2 weeks since my angioplasty. I have not had any improvement and some of my symptoms are becoming worse. I guess I left out some info from my first post so here goes. Diagnosed in 2005 due to a cervical cord lesion. Have have 9 or 10 in my brain. Since I have been in a drug st...

Hi eveyone, I don't know if I am being premature on posting here or not. I had my procedure on the 14th, so this is only day 4. I have not seen any improvements at all with any of my symptoms. I am hoping that over time I will see some benefits. For those of you who haven't, what are your symptoms a...

Dear Dr. Scalfani, I had my procedure on the 14th of this month. I believe my IR spoke with you the morning of it. He did say that he found the narrowing in all the standard places that you have been finding it. I am in Nevada He did have to use the cutting balloon on the right side to cut through s...

I had both left an right jugulas opened, but was not put on any blood thinners either. He did say that I could take asprin if I chose to, so for now I am taking the 325 mg, the will go down to the lower 81 mg daily.

Dear Dr. Sclafani, I am sorry if this question has been asked elsewhere, but looking through all of the threads is hard for me. I am wondering how CCSVI affects the spinal cord? Would the azagos vein be the reason with refulx and leaving iron deposits in the spinal cord. I ask because all of my rela...

I thought I did post it there! It only gave me the option of post new topic or reply, what did I do wrong?

Thanks!

Dear Dr. Sclafani, I am sorry if this question has been asked elsewhere, but looking through all of the threads is hard for me. I am wondering how CCSVI affects the spinal cord? Would the azagos vein be the reason with refulx and leaving iron deposits in the spinal cord. I ask because all of my rel...

Vonna great anaolgy! I have been trying Local as well as nation wide. Maybe just the fact that we are trying to start something like this will get some medie attention? I know that more research needs to be done, but if we can get interventional radiologists, vascular doctors, nurses etc, who are op...

Thanks JR. I did find a website that offers a lot of information about this as well. I was also checking on how to become a Citzen Lobbist, lots of reading to do and my brain is not as fast as it use to be. Grass roots efforts for the lobbying seems to be the best way since it costs to have a profes...

We realize what a huge undertaking this is, that is why we are looking for a lawyer to help advise how to go about this and make it legit. This will take time and evenutally money. The current studies being done are small and will take just as much time with little benefit for the average MS patient...

Thank you so much Muse, I do belong to your group on Facebook and have looked read your other site as well!