Search found 29 matches

by DizzyLiz
Tue Nov 30, 2010 7:30 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Mags is off to Poland... round 2 :)
Replies: 32
Views: 7771

Good luck Mags
Hope it does it for you again.
Keep us posted when you return.
We met in May... my daughter was treated and continues to have energy and other good things.
L
by DizzyLiz
Fri Apr 30, 2010 1:11 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Media Coverage on CCSVI!!!!!!!!!
Replies: 283
Views: 79128

QR77 RADIO - APRIL 26, 2010 Networking power of the web shifting power balance between docs and patients Helen Branswell, Medical Reporter, THE CANADIAN PRESS http://www.am770chqr.com/News/National/Article.aspx?id=207877 TORONTO - Rebecca Cooney may have a debilitating, degenerative disease, but tha...
by DizzyLiz
Fri Apr 30, 2010 12:17 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Media Coverage on CCSVI!!!!!!!!!
Replies: 283
Views: 79128

Canadians can watch W5 AGAIN Sat May 1. I received this today from Rebecca: Please note that tomorrow night there will be a follow-up report on W5. Click on the link for more information: http://www.facebook.com/event.php?eid=115607475136662 Rebecca Cooney MS Liberation www.msliberation.ca Hope you ...
by DizzyLiz
Thu Apr 29, 2010 11:33 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Canada - Liberation discussed in Parliament
Replies: 9
Views: 2922

Canada - Liberation discussed in Parliament

Just got this news from Rebecca Cooney of MSLiberation.ca group!
Good work everyone - :D :D
Hope things go well for the rally on May 5th on Parliament Hill!!

http://www.parl.gc.ca/40/3/parlbus/cham ... 40&Ses=3#4

DL
by DizzyLiz
Thu Apr 29, 2010 10:55 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Update on self-pay BNAC CCSVI testing
Replies: 34
Views: 8080

I too am disappointed too!! - IN THIS DAY AND AGE, we patients should be holding our own COMPLETE medical records and should be able to have COMPLETE copies of the results of all tests done on us. I am disappointed to learn from you that this self-pay testing program only includes a written report. ...
by DizzyLiz
Mon Apr 19, 2010 8:23 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: LIVABIRD's Poland Adventure
Replies: 130
Views: 28727

Well done Livabird Hubby! How long was the drive thru Germany to Katowice? You got in at 8pm, but didn't say how long you were on the road? Can you ask Marta or? what will happen if we Canadians can't get over for our appointments? Will we get a new date/ refund/ or? Have a great day tomorrow and th...
by DizzyLiz
Mon Apr 19, 2010 4:23 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Volcanic ash affecting aviation in Europe
Replies: 27
Views: 5007

Please keep us posted about flight conditions in Germany and Poland for the next while!

There seem to be a lot of us trying to cross the ocean soon.

What happens if we don't make it to our appointment ? will we need to cancel ahead of time? wait for another time? ask for our $ back?

Anyone know?
by DizzyLiz
Fri Apr 09, 2010 2:39 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Media Coverage on CCSVI!!!!!!!!!
Replies: 283
Views: 79128

W5 show

Check it out! Canadian coverage again! :D :D

CTV W5 to do another CCSVI show Sat., April 10th at 7 pm EST

http://www.ctv.ca/w5/

Join us for a demonstration on Parliament Hill on May 5th! :D

www.msliberation.ca
by DizzyLiz
Wed Apr 07, 2010 2:54 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 2392702

Ahmen Dr Sal. What can we do to help?
DL
by DizzyLiz
Mon Apr 05, 2010 4:58 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: For anyone scheduled with Dr. Sclafani...
Replies: 53
Views: 16513

I think the hospital got nervous about an article about Stanford or something and Dr Sal will try to sort it out, so keep praying it is only a delay. We should be hearing from him or Holly later this week.
Fingers crossed and praying for help for all1 :?
DL
by DizzyLiz
Mon Mar 29, 2010 7:10 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 2392702

Thank you so much for joining us here on TIMS, "Dr Sal".

Looking forward to meeting you.
:D

:) DL
by DizzyLiz
Fri Mar 19, 2010 6:05 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: My CCSVI Diagnosis and (hopeful) Treatment
Replies: 27
Views: 6515

Mitch, How thrilling to read such a well written description of the procedure and your excellent opinion of Dr Sal, in your website. Thank you for all the info and especially enjoyed the pictures! Am travelling there soon too and wish you the best for the future! So fortunate to have peple like Dr S...
by DizzyLiz
Mon Mar 08, 2010 6:37 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Canadians Write a letter to a politician about CCSVI today!
Replies: 36
Views: 8649

This is really good Brightspot!
I might suggest also sending letters to Senator W ( Dr) Keon, the reknowned heart surgeon from Ottawa. MS Liberation met with him and had some very encouraging words from him - so let's get busy Canadians!
... the squeaky wheel gets the grease!
by DizzyLiz
Fri Mar 05, 2010 6:43 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: False Creek
Replies: 25
Views: 6416

Hi Billmeik
Let us know what you see / hear...
and good luck to you with your scans... seems like we all want to find out we have stenosis, not like others who want nothing to show up on tests! Aren't we a strange lot! :lol:
by DizzyLiz
Fri Mar 05, 2010 6:28 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: False Creek
Replies: 25
Views: 6416

I have heard that there is going to be a very important Press Conference in Vancouver at 10 am this morning. Dr. Simka has been at the False Creek Surgical Centre since Tuesday testing MS patients for CCSVI. MS Liberation has hired a film crew to film him in order to help share the knowledge of test...

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