Search found 8 matches

by Isarflimmern
Tue Aug 16, 2011 12:27 am
Forum: Stem Cells
Topic: hsct from a different perspective
Replies: 21
Views: 7255

Sounds like you made good progress Sandra. And remember your 'only' 8 months post transplantation. Neural damage takes time to reverse, be it fully or partially. I understood from George that it took at least 12 to 18 months for some of his motor function to restore. Isarflimmern it is great to hea...
by Isarflimmern
Wed Aug 10, 2011 12:39 am
Forum: Stem Cells
Topic: hsct from a different perspective
Replies: 21
Views: 7255

Isar, Have you had th types of progress that george and others have had from your treatment? Have you had any reversal of symptoms and gotten off of ms drugs? Yes, I have had some reversal of symptoms and I am completely off any MS drugs. It has been 8 months since my transplant and I am feeling pr...
by Isarflimmern
Mon Aug 08, 2011 11:58 am
Forum: Stem Cells
Topic: hsct from a different perspective
Replies: 21
Views: 7255

It's hard to go wrong getting HSCT treatment with Burt. There is no better experienced facility. I completely agree with George. As an MS patient who did the HSCT in November 2010 in Chicago, I would like to add that Dr. Burt and his entire team are very compassionate and caring. They will go above...
by Isarflimmern
Mon Aug 08, 2011 10:50 am
Forum: Stem Cells
Topic: hsct from a different perspective
Replies: 21
Views: 7255

If you increase by one point on edss score, you can switch to the active arm of the trial. I am sure that its tough with tysabri being the control arm. I know of one patient who was randomized to the control arm and he got worse while being on Tysabri. He was just switched over to receive the trans...
by Isarflimmern
Mon Aug 08, 2011 10:39 am
Forum: Stem Cells
Topic: 18 month post-HSCT and still going strong
Replies: 16
Views: 8019

OK a little bit I'm going to go out on a limb here. My wife would kill me if she knew I was posting this. Luckily for me she doesn't read this forum so I think I should be OK so long as no one tells her what I've done. . . She wants to wait a full three months before announcing, but my wife is now ...
by Isarflimmern
Tue Jun 14, 2011 12:35 am
Forum: Stem Cells
Topic: HSCT Cure Rate?
Replies: 71
Views: 24744

Hartelijk gefeliciteerd Asher!

Good job, hard part is almost over. I hope your counts go up fast and you can go home soon. Sending lots of good thoughts your way!
by Isarflimmern
Tue Sep 07, 2010 1:42 pm
Forum: General Discussion
Topic: Life Insurance
Replies: 13
Views: 3387

Chaz, You can try to get life insurance through "OutlookLife". On their website it says that they offer affordable life insurance regardless of your health. A couple months ago I was also denied coverage by an insurance company but was referred to them. The agent said that they are recomme...
by Isarflimmern
Thu Feb 18, 2010 9:47 am
Forum: Stem Cells
Topic: New York Doctor
Replies: 2
Views: 2045

I remember reading the story of Edwin McClure. He is a college student and was treated by Dr. Burt at Northwestern University in Chicago. I think he took part in a clinical trial. Please see the link below.


http://adultstemcelltherapy.ning.com/vi ... -the-early

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