HSCT Cure Rate?

[Isarflimmern]

Hartelijk gefeliciteerd Asher!

Good job, hard part is almost over. I hope your counts go up fast and you can go home soon. Sending lots of good thoughts your way!

[shucks]

Way to go man. How long will you stay there before going home?

[georgegoss]

Day +6 post transplantation. I'm back. Days +2 thru +5 were hell, but today we turned the corner. From here on things can only get better.

Hi Asher,

Very glad you're feeling better. Sucks to feel sick. My worst days were +5 thru +8. But everyone responds a little differently. As soon as your leukocytes start rising, you'll instantly start feeling MUCH better. Soon.

Don't hassle the nurses too much!

Regards,

George

[Lyon]

..

[Asher]

Thanks Lyon, I trurly appreciate it.. still continue to improve.

[czapski]

We are with You! Now it can be only better. Greetings from Poland (Szczecin - close to the german border)

[shucks]

keep us posted on your recovery. I know some of us, meincluded, are really interested and planning to do this.

JSH

[Chilax]

Asher,

It is very good to hear you are doing very well and it will certainly get much better. I wish you all the very best to you and your family. If I can help you in any way please do not hesitate to "Skype" me.

Take care.

Al

[packo]

One week ago I started walking with just one crutch in my apartment and while being in small closed areas like restaurants – this is a big thing for me, my left leg is 3cm shorter due to the nasty fracture, and I have balance problems due to my (ex?) MS.

My exercise these days during holidays (no air-condition, very hot days, sometimes lots of moisture):
40 min on my upper body, including 12x70 pushups and boxing with my eyes closed
30 min cycling in apartment
45 min on my lower body, including putting different weights on my legs
20 min on a big ball (balance, coordination)
30 min walking
90-120 min of swimming, not bathing

Hmmm…compared with EDSS 6.0-6.5 pre-transplant, not being able to do 10 pushups, when something like walking 15 minutes in the heat or moisture could leave me utterly exhausted for the rest of the day…you do the math.

[Asher]

Wow Paco, this is really cool!! You are a source of inspiration to me, you just never give up do you? Asher

[packo]

Asher, you were also determined to do something, there is only one life, one chance, no retry, rewind

[shucks]

You guys are the reason I am hoping to get in to Dr. Burt's study in December or January. How this thing has been around for all this time and hasnt been approved is beyond me. I have spoken to over a dozen folks who have had it, and aside from reading about Stella, I have heard nothing to keep me away. My fundraising is way behind where I thought it would be at this point, but Maybe they will accept me and insurance will help some.