Search found 290 matches

by ndwannabe
Wed Jun 23, 2010 3:23 pm
Forum: Site Support
Topic: Very strange behaviour - often can not log in
Replies: 1
Views: 1655

Very strange behaviour - often can not log in

Just changed my password, because the site would not let me in with an old one. Now, I tried to reset it to something that I would be able to remember and I get this The current password you supplied does not match that stored in the database . It is the password that I received in the e-mail. Also,...
by ndwannabe
Wed Jun 23, 2010 1:57 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: I have a date for vein and valve transplant surgery.
Replies: 24
Views: 5529

Oh Rici... I am beyond happy for you. Wishing you the very best outcome ((((Rici))))
by ndwannabe
Tue Jun 22, 2010 11:05 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Lumbar veins and left vs right femoral
Replies: 12
Views: 3346

Thank you for starting a separate thread Pam. As I said in Dr. Sclafani's thread, Dr. Siskin responded to my e-mail enquiry that yes, they do enter on the left... what I failed to mention is that he said: "This is a recent change that we made" (!) So i think that some of those who have had venograms...
by ndwannabe
Tue Jun 22, 2010 10:38 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 1811003

Please, dont even think about giving up. You know CCSVI is true. We cant afford to loose you dear dr Sclafani..... Yes to the above. This is all just a beginning, but you are one of the first ones macheting the way for many through the jungle of unknowns, hurt egos, bureaucracy, politics, media and...
by ndwannabe
Mon Jun 21, 2010 1:44 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 1811003

Dr. Siskin (Albany, NY) just replied to my e-mail regarding this. He enters on the left.
by ndwannabe
Mon Jun 21, 2010 1:17 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 1811003

drbart wrote:.

This is very worrisome - do you know if the Simka/Kostecki folks who are reporting 85% CCSVI are going through the left femoral vein or not?
Dr. Kostecki - from the right. I am one of the "CCSVI not found" cases.
by ndwannabe
Fri Jun 18, 2010 3:45 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Jacek Kosteki
Replies: 377
Views: 62807

Whitey,

If you are staying at hotel Arena, there is a restaurant on premises where our group used to meet (excellent food!).

Hotel is no too big and most of us were next door neighbors to others.
by ndwannabe
Thu Jun 17, 2010 12:33 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Jacek Kosteki
Replies: 377
Views: 62807

Re: IT WAS SIMPLE with DR K

Big deal, you have to listen to instructions DO not bend you leg (NDW !!) and take your IV of saline as well as pressure measurments for one night. Pftftftf <blowing raspberries> Tough guy :roll: :lol: Procedure might be called a cinch, it was the "after-party" in the hospital bed that did me in. H...
by ndwannabe
Thu Jun 17, 2010 8:42 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Jacek Kosteki
Replies: 377
Views: 62807

I've had kids pee on my leg in china, ridden across africa with a goat on my lap, had old ladies in Peru protect themselves with a cross because I was a white devil and still that night in hospital in Tychy ranked right up there with the most uncomfortable...Arms bound with pressure ecg on one side...
by ndwannabe
Wed Jun 16, 2010 9:25 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI treatment available in the U.S.!
Replies: 859
Views: 173179

Thank you Sandy.
by ndwannabe
Wed Jun 16, 2010 5:43 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI treatment available in the U.S.!
Replies: 859
Views: 173179

Any TIMSers have had the procedure done by Dr. Siskin? Have they chimed in?
by ndwannabe
Wed Jun 16, 2010 1:00 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI treatment available in the U.S.!
Replies: 859
Views: 173179

Sofia, check your PM.
by ndwannabe
Tue Jun 15, 2010 6:51 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Procedure in Poland
Replies: 87
Views: 39804

katydid wrote:Hello, I'm Katy, new to this thread. Wannabe, you just mentioned Costa Rica having a CCSVI treatment program. Do you have more information on it?
Here is the link to the thread on Costa Rica http://www.thisisms.com/ftopict-11758.html
by ndwannabe
Fri Jun 11, 2010 9:23 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Jacek Kosteki
Replies: 377
Views: 62807

I am one of the "no CCSVI" cases. Dr. K did test me for Lyme, came positive. Although I was firmly diagnosed with MS three years ago (in the US) with several MRI's - rain and spinal, with dye and without + a spinal tap. Lesions on the brain, Dawson's fingers, at least one (big) lesion on the spine. ...
by ndwannabe
Wed Jun 02, 2010 7:35 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: NDwannabe is IN Poland!
Replies: 61
Views: 10028

Zeureka wrote: I do not know where these testimonials you quote are coming from...?
I am not quoting anybody's testimonials. I am describing MY OWN experience and the experience of people in my group.

We had the procedure at Dr. Kostecki's clinic.

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