Search found 36 matches

by seelie
Fri Feb 10, 2006 3:57 am
Forum: General Discussion
Topic: DACLIZUMAB
Replies: 22
Views: 6040

Breathing New Life Back Into an old thread

Hey Guys n Grrls, Haven't posted in a while because I'm doing really well and have gone back to work where they monitor internet use carefully... and hence... Anyhoo --- I've been contacted this week, to get on the phase II trial with daclizumab. They said, I should stay on Rebif while doing this. I...
by seelie
Mon Oct 10, 2005 3:57 pm
Forum: Rebif
Topic: why Rebif?
Replies: 2
Views: 5081

Kristy, It can become easy (at least for me) to get stuck in Analysis Paralysis. If this then this, maybe, but not always, but if I .... you know what I mean. Sounds like you're actively there. Lots of us have switched several times and found something that we think works best for us. I'm not sure y...
by seelie
Mon Mar 28, 2005 11:14 am
Forum: Avonex
Topic: Injecting When you are Sick
Replies: 2
Views: 3442

I did -- doc said - You've got the flu and when you inject you're gonna get the flu -- just aint to getting around it....

=G
by seelie
Thu Dec 09, 2004 5:14 pm
Forum: General Discussion
Topic: The Sweats ::ick:::
Replies: 8
Views: 3432

Re: Night Sweats

Seelie, I recently have been getting night-sweats. The occaisional symptom started soon after I started Low Dose Naltrexone. I thought that my night-sweats were a side-effect of LDN, but after reviewing this thread, I think that Deb's (OddDuck) hypothesis makes more sense. In 2000 I participated in...
by seelie
Wed Dec 08, 2004 3:46 am
Forum: Rebif
Topic: New Rebif user with a question
Replies: 5
Views: 5262

and I highly recommend letting it warm up to room temperature or even bod temperature before injecting. I put the syringe under my armpit for a few minutes before--much less pain. good luck with it! carolsue Yeah... What she said :) Except I've tricked my wife into warming it up for me in her hands...
by seelie
Wed Dec 08, 2004 3:31 am
Forum: General Discussion
Topic: The Sweats ::ick:::
Replies: 8
Views: 3432

Re: Night sweats

Seelie, do you take any other meds? If so what? I too was getting night sweats. I would sometimes wake being cold, I think because my pillow was so damp(yuck)! I have a couple of theories but depends on other meds. I take Betaseron but the sweats were occuring before I started it. Guess I can't bla...
by seelie
Wed Nov 24, 2004 11:39 am
Forum: Novantrone
Topic: I am on Novatrone
Replies: 1
Views: 7856

Hi Share,

Thanks for posting your experience with Novantrone so far. Sorry to hear your MRIs looked so bad. When we were considering Novantrone for me... I could have used this info. Best wishes on your therapy and please keep us posted.

Hugz n Blessed Be )O(
=Greg
by seelie
Sat Nov 20, 2004 5:58 am
Forum: General Discussion
Topic: The Sweats ::ick:::
Replies: 8
Views: 3432

The Sweats ::ick:::

I'm having night sweats and have had for some time. When you go look around at those 'diagnose thyself' websites... one usually finds - HIV (nope)... Menopause (very unlikely since I'm a guy)... blood sugar...and a few other unlikely maladies depending on the website... Looking around in the MS area...
by seelie
Sat Nov 20, 2004 4:59 am
Forum: Avonex
Topic: avonex and hair loss
Replies: 7
Views: 5888

Ayuup Ayuup - Was first noticed by my hair dresser, then my wife... then me.... Men are always the last to know (or acknowledge hair loss)... Supposedly baldness is a sign of virility for men - but prolly not when it's interferon induced...... I've switched to Rebif now - and expect more (less) of t...
by seelie
Wed Oct 27, 2004 2:43 am
Forum: General Discussion
Topic: vertigo
Replies: 13
Views: 3864

My first symptoms were also of the vertigo variety - but I only noticed it at high speeds while driving. (un)fortunately soon thereafter, I started having real vision problems (nystagmus and diploplia) which was something tangible they could see and helped lead to a quicker diagnosis. Was really fru...
by seelie
Wed Oct 27, 2004 2:30 am
Forum: General Discussion
Topic: An additional moderator
Replies: 4
Views: 2441

Yahoo! Philip - Congratulations on your *promotion*. We all appreciate your contribution to our lil community.... but then - maybe I shouldn't speak for everyone, they haven't appointed me spokesperson.... *I* appreciate your contribution to our community and look forward to having you as a moderato...
by seelie
Tue Oct 05, 2004 2:03 pm
Forum: General Discussion
Topic: What's an Enhancing Lesion (in English Please)
Replies: 4
Views: 10651

Ok... so "Enhancing Lesions" is essentially a verb not a noun?

No wonder this was making it difficult for me to understand what I was finding. I guess I was all around it.... but not quite there.

Thanks much Art and Treez... I knew somebody here would make this easier for me.

Regards
=Greg
by seelie
Mon Oct 04, 2004 2:29 pm
Forum: General Discussion
Topic: What's an Enhancing Lesion (in English Please)
Replies: 4
Views: 10651

What's an Enhancing Lesion (in English Please)

Wow... This has been harder to figure out that I thought it was. I thought Google + the words Enhancing Lesion would lead me to the right answer... but I just got more confuzzled. There's this stuff about enhancing that appears to be some sort of MRI contrast fluid also.... and a lot of it was in Me...
by seelie
Mon Oct 04, 2004 2:20 pm
Forum: General Discussion
Topic: I need advice about taking Provigil
Replies: 7
Views: 3415

Hi Jimmy, I got the same advice from my neuro as it sounds like Josh alluded to - Only take it when you need it... whatever that means. I had the nasti headaches... And have tried about everything they offer for fatigue.... each has some sort of side effect I have found (Too wimpy, Raised my blood p...
by seelie
Thu Aug 26, 2004 11:51 am
Forum: Rebif
Topic: Switching from ABC to Rebif
Replies: 14
Views: 5990

Well - Some initial reactions (having finished all my Avonex and taking 2 Rebif injections) My initial reaction to the Rebif syringe - is - Hey, what's up with this funny little toy needle.... Folks who have been doing Avonex are going to like this part. The glass syringe is pretty doggone difficult...

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