This Is MS Multiple Sclerosis Knowledge & Support Community

Thank you for telling us Liva's story of her procedure. I do not post often but have been reading your updates daily. I find them very inspiring and helpful. You are a wonderful husband and support person to her. I am so glad that she is showing improvements. A wonderful story.

Thanks for the update. It is great to hear how people are doing after the procedure. It just confirms that it work.

Hi costumenastional, I can understand your frustration and your language, I just saw the video with Brad Stewart, reminds me of my neuro, very arrogant and not willing think "outside the box" - an overused term but fits here- very maddening. I hope all this comes to bite them on the ass.

Thanks for sharing your detailed experience. It gives me such hope to hear that a doctor is willing to take a chance and try something new as it relates to MS. I have SPMS and live in Canada, we do not have doctors or a medical system here willing to do this yet. I hope other doctors read this and r...

I posted this as a new topic first, must be a newbie: It is great to hear that people are working so hard at organizing and supporting this very critical medical development, with numbers comes power. Congratulations to you all and keep working hard - it is people like me with MS who will benefit. T...

I have read the discussion with interest and a little humor. It always amazes me that everybody can differ in opinion, level of risk taking and experiences with drugs and doctors. I believe CCSVI offers real hope and a realistic physical cause for MS. Having had MS for the past 14 years and having h...

It is great to hear that people are working so hard at organizing and supporting this very critical medical development, with numbers comes power. Congratulations to you all and keep working hard - it is people like me with MS who will benefit. Thank you. I am new to this site and Canadian but if th...

Thanks Vonna for the letter. I is just amazing what kids are thinking and what they are seeing. I have two 15 year old girls and this letter from your daughter made me think about what they are seeing and how their life is at times. Your daughter wrote a wonderful letter. Thanks,

Liz

Thank you both PN and Ted for your helpful information. I have some reservations about the Westmount Clinic, they do not have the MRV yet and I worry that the results may show a false negative. Thanks for you list Ted, very helpful. I have contacted Albany to inquire as to what is happening there an...

Hi, I have been reading about people's experiences at the Westmount Clinic. I just recently found out about Montreal and that they are offering Doppler testing for CCSVI. I am also from Canada, Nova Scotia in fact and have applied to the Buffalo Diagnostic Testing at $4500 US, I am waiting to hear f...

Thanks Beth for the tips - yes you are right there is a lot of information. It is almost a full-time job sorting through all of this.

Liz

Hi Toddh, I saw your posting and wanted to let you know that I am also from Nova Scotia, Cape Breton actually. Have had MS for 14 years, just joined today and looking for information on CCSVI.

Liz

Hi, just wanted to introduce myself. I have also been "creeping" this forum for a few months too and finally decided to intro myself and maybe ask some questions. I am 46, was diagnosed in 1998 but had symptoms since 1995. I have been on disability for past 7 years and have been doing ok u...