Search found 36 matches

by Bizzy
Mon Mar 07, 2011 4:38 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Cece's turn
Replies: 722
Views: 121582

Wonderful news Cece. I'm also hopeful to be able to share happy news once my blood clot is cleared up.

Sue
by Bizzy
Mon Mar 07, 2011 4:36 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Blood Clot and Coumadin
Replies: 8
Views: 2132

Thanks for the info everyone, especially your links Cece. Thornyrose, I don't have a stent, I guess it is just the result of a little over dilation. It's so less depressing knowing that it could be the Coumadin that makes me feel this way. I go for my doppler again on April 18th, so I will probably ...
by Bizzy
Mon Mar 07, 2011 11:27 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Blood Clot and Coumadin
Replies: 8
Views: 2132

Blood Clot and Coumadin

Could this be the side effects of the Coumadin? I had the procedure done in Dec. and I developed a blood clot. For the past few weeks, I have absolutely no energy. I'm even having problems lifting my arms. Everything I do is a big effort. This is the worse that I've been since before I went to Polan...
by Bizzy
Sat Mar 05, 2011 12:38 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani says thanks to an unknown person
Replies: 40
Views: 8640

Happy Birthday!
by Bizzy
Fri Feb 18, 2011 8:57 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI presentation by Dr. Bill Code
Replies: 9
Views: 2508

Here is the website to get the emu oil from B.C. / Canada

http://songlines.ca/
by Bizzy
Mon Feb 14, 2011 7:16 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Cece's turn
Replies: 722
Views: 121582

Wow, just catching up on all the posts here since I have not been on for a few days. I'm so happy for you Cece. It took me a couple of weeks before the discomfort in my neck subsided and Tylenol helped. Thank you Dr. Sclafani for posting Cece's results since, I like everyone here, will be following ...
by Bizzy
Mon Jan 31, 2011 6:28 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Procedure done last week, now clotting
Replies: 30
Views: 6657

Dr. Sclafani mentioned that he had a hard time with my left jugular. In his report he mentions that it was quite difficult to get into the left internal jugular vein. There was multiple areas of abnormal valves and hyperplastic areas. I finally had two areas ballooned. I'm wondering if this explains...
by Bizzy
Mon Jan 31, 2011 4:35 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Procedure done last week, now clotting
Replies: 30
Views: 6657

I had my procedure on Dec. 23rd and had a my follow-up doppler today in Barrie, Ont. The technician found a blood clot in my left jugular. So she called my doctor to put me on blood thiners and bloodwork twice a week. I guess being on Lovenox for 21 days and then baby aspirin after wasn't enough! I ...
by Bizzy
Sun Dec 26, 2010 7:43 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Appointments at American Access Care
Replies: 185
Views: 35211

Hi Patrice, I'm assuming you are the same Patrice that I was in Poland with. Although our improvements didn't last, it was a fun time with everyone in our Tychy group! Wishing you a good trip and lasting improvements. If you are staying at Hotel LeBleu, the staff is great and breakfast is included. ...
by Bizzy
Thu Dec 23, 2010 2:27 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Appointments at American Access Care
Replies: 185
Views: 35211

I had this procedure done by Dr. Sclafani in Brooklyn, NY. The only thing my husband and I thought of, was how lucky we were to have someone so compassionate, smart and caring. The whole team at the clinic were wonderful and professional and I could not have gotten any better care. It was worth ever...
by Bizzy
Thu Dec 23, 2010 6:18 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 1656376

Dr. Sclafani, I have been wondering about something I read in a patient's blog of her procedure done by you. She said she was asked to raise her hands over her head (or maybe straight up?) when the azygous was being imaged. Did this help you see better? Does it increase blood flow to the azygous? I...
by Bizzy
Tue Dec 07, 2010 10:22 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Appointments at American Access Care
Replies: 185
Views: 35211

I'm Sue from the blog http://soobiz-live-love-laugh.blogspot.com/2010_12_01_archive.html (mentioned above). My husband and I drove to Brooklyn from Cornwall, Ontario Canada. I was treated on Dec. 3rd. To help Holly, if anyone has any questions that I can answer regarding logistics and our experience...
by Bizzy
Wed Jul 21, 2010 5:30 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Jacek Kosteki
Replies: 377
Views: 58255

Welcome back Malinda, it is so good to hear from you. Leeann mentioned in one of her messages how we had some good laughs in our room that night. Laughing may be a reason for you having to stay longer but I also think that they took your bandages off way to early! I was just replying on the other th...
by Bizzy
Wed Jul 21, 2010 4:42 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Brit going to Poland
Replies: 53
Views: 9283

Hi Martin, you say your improvements are only marginal but wow, I think your improvements are totally noticeable. Your balance is much better and you were able to walk without your cane which is remarkable! I had my procedure the day after you and my improvements are more subtle. I do have more ener...
by Bizzy
Fri Jul 16, 2010 12:42 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Jacek Kosteki
Replies: 377
Views: 58255

I have had so many people ask me about getting in with Dr. Kostecki that I put the information on my blog. I wrote this blog to update my family and friends on my progress but if it can help other people then I don't mind sharing. Here is the site: http://soobiz-live-love-laugh.blogspot.com/

Sue