Search found 55 matches

by joeymia
Tue Jan 17, 2017 10:47 am
Forum: Copaxone
Topic: Copaxone 40mg and intense exercise
Replies: 5
Views: 2706

Re: Copaxone 40mg and intense exercise

This is what I was doing in terms of time on the bike during the time before I got sick. Time/mileage does not include rides done in indoors which I believe there was 3 in there and also whatever cross training I did. This will give you an idea of how my 2 years of no copaxone and no relapses was li...
by joeymia
Tue Jan 17, 2017 10:40 am
Forum: Copaxone
Topic: Copaxone 40mg and intense exercise
Replies: 5
Views: 2706

Re: Copaxone 40mg and intense exercise

I take 20mg daily and exercise vigorously on an almost daily basis BUT wear a cooling vest during such exercises. As every person responds differently, you will need to see for yourself what you can do and handle and how your body responds. I do think that preventing getting hot is paramount but th...
by joeymia
Tue Jan 17, 2017 10:24 am
Forum: Introductions
Topic: New from Miami, Florida
Replies: 5
Views: 1851

Re: New from Miami, Florida

Hi Wendy, I am also from Miami just curious because I rarely speak with people with MS. Do you know of any active support groups here or therapists with MS experience? I've had a rough year after being with my fiance for 3 symptom free great years. The last year has been rough and I was wondering wh...
by joeymia
Tue Jan 17, 2017 10:15 am
Forum: Humor
Topic: Copaxone Shared Solutions Website
Replies: 0
Views: 2310

Copaxone Shared Solutions Website

Not sure why I found this so funny. Had to call Shared Solutions today went to their website and their webchat isn't working. I was like "poor Claire maybe she has a relapse" lol

Image
by joeymia
Tue Jan 17, 2017 8:18 am
Forum: Copaxone
Topic: Copaxone 40mg and intense exercise
Replies: 5
Views: 2706

Copaxone 40mg and intense exercise

Hello been a long while since I posted on this site. I started taking 20mg Copaxone around 2010. I used it everyday for 3 years but eventually had to stop. I ran out of injection sites my tissue became really hard. I am skinny so not much fat on me so I repeated a lot of the injection sites. Before ...
by joeymia
Mon Jun 20, 2011 9:49 am
Forum: Copaxone
Topic: Oral MS drug Teriflunomide may boost Glatiramer efficacy
Replies: 2
Views: 3274

anyone know if you could just take a regimen of Leflunomide? Leflunomide is pretty cheap. I found this interesting in the wikipedia for Leflunomide "Teriflunomide can be found as late as 2 years after termination of therapy in human plasma in sufficient levels to cause severe harm to pregnant women ...
by joeymia
Mon Jun 13, 2011 4:57 pm
Forum: General Discussion
Topic: Fatigue often first symptom of MS
Replies: 8
Views: 1690

Same started in my early 20's. Got brain washed into thinking I was depressed since that's all you see on TV. Went to a psychologist. Are you tired? Does that make you sad that you are tired? Were you active before? OMG U BIPOLAR!!! what a racket that is... Tired various drugs none work. One almost...
by joeymia
Mon Jun 13, 2011 2:42 pm
Forum: General Discussion
Topic: Fatigue often first symptom of MS
Replies: 8
Views: 1690

paul2008 wrote:that is so true......i gave up 2 jobs because i was so tired and totally exhausted all day and didn't know what was causing it. MS was diagnosed 4 years later and i still have the same severe fatigue.
have you tried Modafinil (Provigil) It has worked wonders for me.
by joeymia
Mon Jun 13, 2011 2:41 pm
Forum: General Discussion
Topic: Fatigue often first symptom of MS
Replies: 8
Views: 1690

Same started in my early 20's. Got brain washed into thinking I was depressed since that's all you see on TV. Went to a psychologist. Are you tired? Does that make you sad that you are tired? Were you active before? OMG U BIPOLAR!!! what a racket that is... Tired various drugs none work. One almost ...
by joeymia
Mon May 16, 2011 8:05 am
Forum: Introductions
Topic: 28yr old male, not Dx'd yet, scared
Replies: 18
Views: 3270

Get a copy of your MRI images, make a Neurologist appointment and have him go over the images with you. Most MRI facilities will give you a CD with a program that will load up the images. Radiologists can screw up reports. I had one completely miss 4 clearly lesions in my brain in 2007 and I was 27 ...
by joeymia
Mon May 16, 2011 7:59 am
Forum: General Discussion
Topic: Lesions Disapeering
Replies: 1
Views: 1105

Lesions Disapeering

I have an MRI of my brain from 2007 and 2010. In those two MRI you can clearly see about 4 lesions. There was barely any change between 2007 and 2010. I got an MRI last week after 1 year of getting treatment. I did not start treatment in 2007 because I was misdiagnosed. I can spot just 1 lesions and...
by joeymia
Fri Apr 22, 2011 2:24 pm
Forum: Regimens
Topic: Regimens for Neuroprotection
Replies: 43
Views: 9894

I've been taking Lion's Mane which is known to increase levels of NGF. Might want to also give that a try. Thanks for this, I've picked some up and added it in. I did not know about it before your post, but like what I've read so far. --Tracy This is a good article about it http://www.longecity.org...
by joeymia
Fri Apr 22, 2011 12:26 pm
Forum: General Discussion
Topic: Constipation
Replies: 21
Views: 4621

Eating a bunch of fish oil helps me. I guess it lubes the stuff up lol. Not sure if that is safe while pregnant. If not try olive oil capsules?
by joeymia
Fri Apr 22, 2011 11:33 am
Forum: Regimens
Topic: Updated Regimen
Replies: 0
Views: 1843

Updated Regimen

30 year old Male Daily Copaxone Injection around 10pm Morning: As needed 100mg Modafinil (Modapro, or Modalert) With Food: 81mg Bayer low dose Aspirin 600mg NAC (N-Acetyl-L-Cysteine) 400mg COQ10 1000mg Fish Oil Lion's Mane Capsule 750mg Aniracetam (depending on how I feel) 130mg DMAE Lunch: 750mg An...
by joeymia
Fri Apr 22, 2011 11:19 am
Forum: Regimens
Topic: Regimens for Neuroprotection
Replies: 43
Views: 9894

I've been taking Lion's Mane which is known to increase levels of NGF. Might want to also give that a try.