Search found 133 matches

by MS_HOPE
Sun Nov 27, 2016 4:51 am
Forum: Diet
Topic: Diet & MS Research
Replies: 123
Views: 28756

Re: (newsflash!) study: 85% of MS patients malnourished

Thanks for posting! Clearly diet and lifestyle need to be addressed in people with MS, and these are ignored or understated by most neurologists, to whom many patients look for advice in dealing with their MS. Would be more helpful for the researchers to have included a healthy control group. Unfort...
by MS_HOPE
Fri Jun 10, 2011 2:04 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: leafy greens may protect against venoplasty complications
Replies: 21
Views: 5310

Are the nitrates in beetroot juice different from those in processed foods like hot dogs, which some say have bad health effects?
by MS_HOPE
Sun Mar 27, 2011 10:57 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: IRON- how it gets there and why it's important - made simple
Replies: 3
Views: 1311

Thanks for the mini-education, MegansMom. It's posts like yours that keep me coming back to TIMS. Much appreciated. Gordon, from what I understand, we don't want to necessarily reduce our intake of iron, which the body needs (as pointed out by MM). The problem is that it's getting where it shouldn't...
by MS_HOPE
Sat Mar 26, 2011 12:53 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: And then I dreamt:
Replies: 24
Views: 3936

1eye, I don't know if Hubbard Foundation will mail the survey out of the country; why don't you email them and ask? I am with you in saying that Dr. Sclafani is the best :) particularly through his use of ivus, examination of the iliac and ascending lumbar veins, thoroughness with the azygous, and g...
by MS_HOPE
Sat Mar 26, 2011 8:00 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: And then I dreamt:
Replies: 24
Views: 3936

Any patient who wants their data to be collected should remember to send an email to Dr. Hubbard's group requesting the packet for the patient-centric registry! These forms can be brought to whatever doctor does your procedure. Good point, Cece. Hubbard Foundation may be reached at hubbardfoundatio...
by MS_HOPE
Fri Mar 25, 2011 10:51 am
Forum: General Discussion
Topic: Toe Nail Fungus Tablets - Terbinafine Hydrochloride
Replies: 12
Views: 15336

My daughter had success with Vick's Vapo Rub, but it must completely cover the nails and be used faithfully every day (and night?), for months, until the infected nail grows out. But no worries about liver effects. I don't know if a generic would also work. My sister-in-law, who used the prescribed ...
by MS_HOPE
Mon Mar 21, 2011 8:26 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Cece's turn
Replies: 722
Views: 131030

:D :D , Cece and CurIous.

Hope the neuros are reading this thread....
by MS_HOPE
Mon Mar 21, 2011 8:18 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Last year's word
Replies: 20
Views: 3810

MarkW, I see your point, as well as the others'. How about a thread specifically dedicated to long-term changes (or lack thereof) after venoplasty? Any neurologists reading would be well-served, in my opinion, by taking a look at the data being collected on www.ccsvi-tracking.com. Not without its sh...
by MS_HOPE
Sun Mar 20, 2011 3:44 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Cece's turn
Replies: 722
Views: 131030

Cece, love your posts of continuing improvements, and reactions of your kids. So heartwarming and hope-inspiring. Keep 'em coming!
by MS_HOPE
Sun Mar 20, 2011 3:40 pm
Forum: Introductions
Topic: Another Newbie from NC
Replies: 2
Views: 1283

Welcome to TIMS, Liz. I'm also from NC, and there are others on this site as well. Hope you find it as helpful as I have, especially all the info and discussions on CCSVI (Chronic Cerebrospinal Venous Insufficiency) in MS. Best of luck to you.
by MS_HOPE
Sat Mar 19, 2011 4:04 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Cost of Liberation procedure
Replies: 30
Views: 13063

I was treated a few weeks ago by James McGuckin, MD at Vascular Access Centers in Durham, NC. Total cost of $8000 included, in my case, a one-hour phone consultation with VAC's Patient Medical Advocate Kate Fitzgerald, a twenty-minute phone conversation with Dr. McGuckin, a procedure which included ...
by MS_HOPE
Sat Mar 12, 2011 9:53 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Delayed improvements, anyone?
Replies: 6
Views: 1423

I'm sorry you did not have immediate results. Remember the rule of thirds. You may be in the middle group. I had immediate results that were apparent to everyone but me. I was kind of hoping for major things, so I didn't notice the minor. However, I take them being there (clearer speech, mood impro...
by MS_HOPE
Sat Mar 12, 2011 9:45 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Delayed improvements, anyone?
Replies: 6
Views: 1423

Did you get treated locally, MS_HOPE? There is an American Access Care in North Carolina, when I was at the Brooklyn AAC there was a tech being trained in CCSVI ultrasounds because she was being transferred to the North Carolina branch. I ask because I am reminded of pklittle's case, who had no imp...
by MS_HOPE
Sat Mar 12, 2011 9:18 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Dr. Siskin's Paper - Safety of outpatient CCSVI treatment
Replies: 10
Views: 2909

Thanks very much for this post, Cece, which can be a very helpful paper to bring to the attention of fearful neurologists.
by MS_HOPE
Sat Mar 12, 2011 9:08 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Delayed improvements, anyone?
Replies: 6
Views: 1423

Delayed improvements, anyone?

If you experienced no improvements for at least the first week or so after CCSVI angioplasty, but then had later significant improvement(s), will you kindly post here? You will be helping those of us who don’t know whether to accept our new place in the ranks of the unimproved and move on, or to mai...

Go to advanced search