Search found 175 matches

by carolsue
Thu Feb 23, 2017 8:07 pm
Forum: Tecfidera (BG-12, dimethyl fumarate)
Topic: Tecfidera users: favour please?
Replies: 3
Views: 2293

Re: Tecfidera users: favour please?

I have the 240 mg capsule on hand and it's 7/8 of an inch long and 1/4 of an inch wide. As I recall the 120 mg capsule looked identical.
by carolsue
Sun Nov 06, 2016 9:12 pm
Forum: Tecfidera (BG-12, dimethyl fumarate)
Topic: For those of you thinking about starting on Tecfidera
Replies: 8
Views: 4620

Re: For those of you thinking about starting on Tecfidera

Actually, I don't even need to take Tec with a meal anymore. No flushing, no GI problems.
by carolsue
Mon Apr 18, 2016 1:48 pm
Forum: Tecfidera (BG-12, dimethyl fumarate)
Topic: **IMPORTANT** PML & Tecfidera
Replies: 6
Views: 4271

Re: **IMPORTANT** PML & Tecfidera

I get tested every 6 months for JC Virus. So far negative, but if I ever test positive, I know I'll be looking at other treatments. I think you should definitely inquire.
by carolsue
Thu May 28, 2015 6:46 am
Forum: Tecfidera (BG-12, dimethyl fumarate)
Topic: Tecfidera and vitiligo
Replies: 4
Views: 2711

Re: Tecfidera and vitiligo

I have never heard of this, but I am so sorry for what you're going through. Best of luck.
by carolsue
Mon Apr 06, 2015 8:23 am
Forum: Tecfidera (BG-12, dimethyl fumarate)
Topic: Tecfidera vs no med
Replies: 8
Views: 7376

Re: Tecfidera vs no med

I was diagnosed in 2004 after exacerbations that I fully recovered from. No exacerbations since. I am very active and eat very well. I had always been very healthy. Despite my reluctance to rely on medication, I went on Rebif right away. My neuro convinced me, with the help of some graphs, that even...
by carolsue
Fri Mar 20, 2015 4:43 pm
Forum: Drug Pipeline
Topic: Phase I trial data for remyelinating antibody in MS released
Replies: 1
Views: 2307

Re: Phase I trial data for remyelinating antibody in MS rele

Science magazine has an informative article about so-called natural antibodies, including rHIgM22. Fascinating. And reminds me that we understand so so little about the immune system! http://www.sciencemag.org/content/347/6226/1058.full
by carolsue
Sun Mar 08, 2015 7:19 pm
Forum: General Discussion
Topic: 120 mg or 240mg Tecfidera dose
Replies: 11
Views: 2477

Re: 120 mg or 240mg Tecfidera dose

Excellent question. I had the same question for my neuro when I was on Rebif because I seem to have a mild disease course. The answer was: "MS is a nasty disease; if you're tolerating the higher dose, why would you want to mess around?" I'm on Tec these days and I do wonder the same thing. Please le...
by carolsue
Mon Feb 23, 2015 7:08 pm
Forum: Rebif
Topic: thinking of quitting Rebif, what to try next?
Replies: 2
Views: 4415

Re: thinking of quitting Rebif, what to try next?

I tolerated Rebif well for 10+ years until my skin developed enough scar tissue to make injections a real drag. I was hesitant to switch to anything different because I was doing really well symptom-wise. Finally, I switched about 9 months ago to Tecfidera. So far I'm very happy that I did, still no...
by carolsue
Mon Nov 03, 2014 8:25 pm
Forum: Tecfidera (BG-12, dimethyl fumarate)
Topic: does it get worse before getting better
Replies: 3
Views: 2030

Re: does it get worse before getting better

I didn't experience any MS-like symptoms when starting Tec. I just felt incredibly lousy (nausea and fatigue) for about 4 days after starting the full dose.
by carolsue
Sat May 10, 2014 2:14 pm
Forum: Rebif
Topic: Skin reaction
Replies: 2
Views: 3788

Re: Skin reaction

I believe that's "lipoatrophy" occurring. To my knowledge, it doesn't go away. I've also been told to avoid injecting into those spots. I also used my buttocks and belly but I rotated so that each region had at least 4 weeks of rest. I kept careful track of this, but it wasn't hard to do because I h...
by carolsue
Sat May 10, 2014 2:11 pm
Forum: Rebif
Topic: Going Off Of Rebif... Withdrawal?
Replies: 3
Views: 4715

Re: Going Off Of Rebif... Withdrawal?

I recently stopped taking Rebif and did not have a withdrawal, but I started up with Tecfidera right after.
by carolsue
Thu Mar 27, 2014 1:57 pm
Forum: General Discussion
Topic: Rebif and Red Spots
Replies: 2
Views: 1025

Re: Rebif and Red Spots

My advice is to get used to the red spots. They hang around a few weeks before fading; some itch and some don't. I never found any way to avoid them. But try to massage with a warm compress after a shot to speed up dispersion of the medication and to discourage forming of scar tissue (lumps). For pa...
by carolsue
Tue Sep 03, 2013 9:39 pm
Forum: General Discussion
Topic: Question on benign MS
Replies: 7
Views: 3003

Re: Question on benign MS

Steve, me too. Diagnosed 2004 and on Rebif ever since. No progression in MRIs, no symptoms to speak of. Initial symptoms were numbness and a spasm in my face but the only times I've felt an eye twitch or a numb toe, it was short lived and was when I was fatigued and stressed. I'm also eager to get o...
by carolsue
Fri Apr 26, 2013 6:13 am
Forum: General Discussion
Topic: potential health implications of glyphosate (roundup)
Replies: 1
Views: 1074

Re: potential health implications of glyphosate (roundup)

Above link is to a review article in the journal Entropy that describes a number of ways the herbicide Roundup (which is often used in conjunction with GMO crops that are designed with "Roundup ready" resistance) can facilitate onset and progression of various diseases, including (albeit just a shor...