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Thanks CIHR, Using scientific protocols is the only way to conduct proper research. Most unfortunate about those thousands (yes, thousands) of MS patients who will lose the use of their limbs, whose chronic pain will increase, whose bladder control will disappear, who will go senile, who will go bli...

I sit here in my wheelchair contemplating what has happened. A panel of blinded neurologists has won this day. In the face of massive patients testimony the federal government has chosen to let the worst MS patients simply burn. They will not ask. They will not act. I can feel the anger grow. I join...

Agree with all you have written, Cece. No data should be lost.

CharlieC

Apologies, PCakes. Asking a question.

Why is the data concerning assessments of these treated cases not being compiled and presented as a "study"? The neurologists have a record of their patients "before", surely they can assess and report on their "after".

[ b]Results of CCSVI study available[/b] An important study on CCSVI is underway and early results are available There have probably been over 100 Canada MS Patients treated for CCSVI by now. Each will have reported back or will soon be reporting back to their attending neurologist. Neurologists kee...

Results of CCSVI study available An important study on CCSVI is underway and early results are available There have probably been over 100 Canada MS Patients treated for CCSVI by now. Each will have reported back or will soon be reporting back to their attending neurologist. Neurologists keep good ...

Results of CCSVI study available An important study on CCSVI is underway and early results are available There have probably been over 100 Canada MS Patients treated for CCSVI by now. Each will have reported back or will soon be reporting back to their attending neurologist. Neurologists keep good ...

someone is taking out my posts. Why - I have right to post my opinions. Real facts is we need. not people from ms society - scanning the posts. Scorpion - have you been tested for ccsvi? No I have not and I am not interested in getting tested. As of yet I have seen nothing to convince me that CCSVI...

FOOT ON THE ACCELERATOR!!! Yves Savioe of the Canadian MSS is fond of saying that when it comes to researching CCSVI; they have their foot on the accelerator. What a reassuring metaphor. Why .. In a few short years, they will know if there really is any connection. A few very short years after that...

ozarkcanoer, won't be long for you. Best wishes for Tuesday. You have a great PCP. The warnings are pure and simple fear-mongering, to keep us from seeking treatment and adding to the increasing number of positive testimonials to the efficacy of this procedure, and any improvements patients are expe...

Cece, I feel as you do. The MSS of Canada has let us all down terribly, and our anger at this situation should be understood. Selkie, my arguments and yours are the same. I think you may have misunderstood my posting. I know that this procedure is not new or experimental, although the MSS of Canada ...

Foot on the Accelerator Yves Savioe of the Canadian MSS is fond of saying that when it comes to researching CCSVI; they have their foot on the accelerator. What a reassuring metaphor. Why .. In a few short years, they will know if there really is any connection. A few very short years after that th...

Apologies. Repeating the posting on the MSS website with the bolded operative words. 1. CMSS site 07/06/2010. Below is how the MS Society describes the potential complications of a procedure known to have a low risk. Note the bolded operative words What are the potential complications for this proce...

Have been reading all the posts and not weighing in. Here is how I feel. Why the MS Society policy on CCSVI is terribly wrong and failing patients: There is global medical activity taking place that has already demonstrated that clearing constricted veins in MS patients will halt symptom progression...