Search found 20 matches

by ykonstan
Fri Apr 15, 2011 9:03 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Anybody with no stents and no restenosis after one year?
Replies: 25
Views: 5092

i don't answer your question either but i have no restenosis after 3 months. My next appt with IR doctor will be in october, it makes 9 months and i'll let u know how it will work. right now i'm with u and also would like to hear from someone having this procedure one year ago and feeling good.
by ykonstan
Sat Mar 19, 2011 9:35 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: 3 month passed
Replies: 3
Views: 2293

3 month passed

i had my procedure done on december 28 last year. i don't know if someone has anything like i have. My condition may change several times a day: from very bad to almost normal and some day i can even lift my legs to walk (using walker as usual - because of my balance problem) but easier and my legs ...
by ykonstan
Tue Feb 22, 2011 8:07 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Question for the women
Replies: 4
Views: 2220

she can do either, it doesn't matter. they will shave little place where to put needle. if she will feel comfortable looking nice in that area - she can do whatever she likes to do. (i shaved - just lazy)
by ykonstan
Wed Feb 02, 2011 12:29 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Leg spasticity!
Replies: 41
Views: 10446

do u think we have it here in USA? think not. it looks much cheaper cause walkaide costs around $5,000 each - i need two for each leg.
how do u feel having some electical equipment on u? does it feel strange?
by ykonstan
Wed Feb 02, 2011 9:55 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Leg spasticity!
Replies: 41
Views: 10446

electric stimulater?

may i ask u what do u name "electric stimulater" ? is it walkaide? I will have an appointment on this friday with someone from that company to figure out if walkaide can help me (i have spasticity in both legs) and find out if my insurance is going to pay for it witch i doubt.
by ykonstan
Sat Jan 29, 2011 2:24 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: where to get ccsvi treatment?
Replies: 7
Views: 2934

why can't u have it in Israel?

http://www.thisisms.com/ftopict-9661.html
by ykonstan
Sat Jan 29, 2011 2:11 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Leg spasticity!
Replies: 41
Views: 10446

after the procedue i have a very strange changes. During a day for about 4-5 hours when my body's temperature is normal (for some unknown reason) i feel almost ok - i raise my legs and walk without spasticity ( well almost), then my spasticity comes back and i feel awful again. If some exircise can ...
by ykonstan
Fri Jan 28, 2011 7:10 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: in a month after procedure
Replies: 7
Views: 2432

just want to add when my body temp is normal i feel better than before the procedure - i enjoy walking holding on walls. For last two years i use walker all the time.
by ykonstan
Fri Jan 28, 2011 1:19 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: in a month after procedure
Replies: 7
Views: 2432

in a month after procedure

i had my procedure with dr. Mandato on dec. 28, it is exactly one month since i had it. My only change is constantly changing temperature of my body (no pms for me). it never happend before. Now if i feel normal temperature, i can walk ok (not perfect) using my walker. then i can feel cold or hot an...
by ykonstan
Wed Jan 12, 2011 11:20 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: ccsvi tomorrow
Replies: 25
Views: 6894

procedure

today is exactly 2 weeks since i had my procedure in Albany. First days i didnt feel anything at all, then in a week i could sleep better and didn't feel that my body is very hot under blanket - meaning my body temperature was getting to be normal. In two weeks i lost my good changes and returned ba...
by ykonstan
Tue Jan 04, 2011 8:51 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: SYMPTOMS WORSE AFTER LIBERATION
Replies: 13
Views: 3629

after procedure

right after liberation procedure i felt feet burning for couple of hours, then it passed. Now i don't feel anything.
by ykonstan
Mon Jan 03, 2011 8:59 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI in Bulgaria
Replies: 1107
Views: 301001

european doctors?

i certainly understand why people living in Europe are looking for doctors in Bulgaria or in some other european countries but Americans? Is it cheaper or what? i'm asking cause i can't imagine me traveling so far, it is not easy and costly. By the way, i'm 6 days away from my ccsvi procedure and no...
by ykonstan
Fri Dec 31, 2010 5:59 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: ccsvi tomorrow
Replies: 25
Views: 6894

thanks

u encouraged me. thanks a lot. Happy new year everyone.
by ykonstan
Thu Dec 30, 2010 8:02 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: ccsvi tomorrow
Replies: 25
Views: 6894

after procedure

i know u expect new victory but i don't feel anything yet. Dr. Mandato said it can take time to notice any improvement if any at all. I had one jugular and one azygous vein narrowed. they were fixed. Ultrosound after procedure showed they're open now. I spoke to the doc afterwards and he told me to ...
by ykonstan
Mon Dec 27, 2010 9:13 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: ccsvi tomorrow
Replies: 25
Views: 6894

ccsvi tomorrow

wish me good luck. I'm going to Albany tomorrow morning (if my husband will dig out our car from snow) to have ccsvi procedure. I'll tell u everything about it later.

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