ccsvi tomorrow

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.
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ykonstan
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after procedure

Post by ykonstan »

i know u expect new victory but i don't feel anything yet. Dr. Mandato said it can take time to notice any improvement if any at all. I had one jugular and one azygous vein narrowed. they were fixed. Ultrosound after procedure showed they're open now.
I spoke to the doc afterwards and he told me to be patient. So, i do my best.
later on i'll let u know how is everything.
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NotFound
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Post by NotFound »

Congratulations on having it done!

I know we all expect immediate results, but I did not get them either. Will join you in patiently waiting.

Open veins are good no matter what :)
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HFogerty
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Post by HFogerty »

ykonstan: Dr. Mandato was my doctor as well. He is right, give it time. The standard I was told was "give it 90 days". Give it time to fix the wrong you have had for so long. I believe now that good blood flow is everything. Many things got better for me after a month and have held to date. Wishing you the best. :D
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Cracker
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Post by Cracker »

Happy New Year !!!
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leetz
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TO ALL CCSVI PIONEER'S

Post by leetz »

Yes! Give it time, I too got it done in Albany, I have some balance back, and little bit of leg strength...had EDSS 5.5...now I would say maybe a 4.5 and this is just 11 day's later. Dr. Siskin did mine and he said to NOT evaluate it day by day but more like Month by Month (so I jumped for him anyway, first time in about 2 years)...not too far off the ground buit at least I made it off of the ground!! Praise to the one and only Almighty God!! Bless all of us in the fight, may we prevail...

Happy 2011!!!
GOD BLESS.... CCSVI treatment Dr. Siskin great doc....symptom's improved for about 3 week's (gait, balance, spasticity) now back to square 1...
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ykonstan
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thanks

Post by ykonstan »

u encouraged me. thanks a lot. Happy new year everyone.
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mrbarlow
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Post by mrbarlow »

Good luck. Please keep posting your progress.

I'm hopefully going for Scan in Uk in February. :)
David1949
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Re: TO ALL CCSVI PIONEER'S

Post by David1949 »

leetz wrote:Yes! Give it time, I too got it done in Albany, I have some balance back, and little bit of leg strength...had EDSS 5.5...now I would say maybe a 4.5 and this is just 11 day's later. Dr. Siskin did mine and he said to NOT evaluate it day by day but more like Month by Month (so I jumped for him anyway, first time in about 2 years)...not too far off the ground buit at least I made it off of the ground!! Praise to the one and only Almighty God!! Bless all of us in the fight, may we prevail...

Happy 2011!!!
Amen!
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ykonstan
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procedure

Post by ykonstan »

today is exactly 2 weeks since i had my procedure in Albany. First days i didnt feel anything at all, then in a week i could sleep better and didn't feel that my body is very hot under blanket - meaning my body temperature was getting to be normal.

In two weeks i lost my good changes and returned back to my previous condition - i think i need to be patient and give it more time.
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SCGirl
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Post by SCGirl »

Good Luck!
I go to Albany on February 18th to see Dr. Mandato. I am a little apprehensive.... Wishing you the best of luck. God bless you.
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leetz
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it is soooo worth it!

Post by leetz »

I would do over again in a heartbeat! Remember to give it time and try things lil by lil like balance with one leg etc...

blessing's and to Amen comment.....Amen!!!
GOD BLESS.... CCSVI treatment Dr. Siskin great doc....symptom's improved for about 3 week's (gait, balance, spasticity) now back to square 1...
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