Search found 78 matches

by mavis
Tue Nov 01, 2011 4:34 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Montel's announcement
Replies: 228
Views: 40374

Re: Montel on Dr Oz Show

You know, regarding the word liberation. I understood it like liberation of the blood flow. I think it was even said or written somewhere in 2009. I think only some patients or maybe press changed it to liberation from MS. I myself called it CCSVI procedure as I learned in 2009 it was endovascular ...
by mavis
Tue Nov 01, 2011 4:29 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: SPASM AND STIFFNESS AS SPASTICITY
Replies: 76
Views: 7921

Re: SPASM AND STIFFNESS AS SPASTICITY

IM SORRY. thanks for your honesty. I have spent today in bed in a straight out extended position, doubled the baclofen and zanaflex but to no avail. It sickens me that you had relief and then it was gone...obviously we are all desperate, but this phenomenon(ccsvi liberation) is still missing someth...
by mavis
Tue Nov 01, 2011 12:19 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: SPASM AND STIFFNESS AS SPASTICITY
Replies: 76
Views: 7921

Re: SPASM AND STIFFNESS AS SPASTICITY

I did. In fact, it was the most noticeable and relief-producing outcome of the CCSVI procedure. Unfortunately, I lost ALL of it, then some.
by mavis
Fri Oct 21, 2011 9:01 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: St. Michael's in Toronto
Replies: 8
Views: 1864

Re: St. Michael's in Toronto

just wondering if any of the neurologists at the St. Michael's MS clinic are known to be interested in CCSVI?.... Jackiejay, what exactly do you mean by "interested"? Dr. Selchen met with Dr. Hubbard and had an information session in order to understand CCSVI better. This was back in June I believe...
by mavis
Tue Oct 04, 2011 11:37 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Sweating decreases iron in body! ms with ms cannot sweat.
Replies: 15
Views: 8624

Re: Sweating decreases iron in body! ms with ms cannot sweat

I don't have a problem with sweating either. It's mostly body sweat though.
by mavis
Thu Sep 01, 2011 7:43 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DR ARATA Speech at Barrie Ontario
Replies: 6
Views: 1597

Me too! Saw him in January. Totally blocked nothing he could do for me a the time. But this what he wrote to me the other day. Mike Arata I do think we may be able to help you by opening your azygos with the RF wire. I don't think this applies to your jugulars. Not sure if that's enough for you but...
by mavis
Sun Aug 28, 2011 7:25 pm
Forum: Natural Approach
Topic: all things vitamin D
Replies: 1073
Views: 151621

Last time (in April) the test cost me $33 cad. No, MS is not one of the conditions that are on the list.
by mavis
Fri Aug 26, 2011 7:45 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: NEW DEVICE FOR OCCLUSIONS
Replies: 9
Views: 1674

I hope they can be used in the stent as most occlusions we heard are happening within the stent.
by mavis
Wed Aug 24, 2011 1:39 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Can bilateral symmetry shed some light?
Replies: 10
Views: 1898

Me too. Had ON on the left side (after which came the diagnosis), and I have a bum left jugular.
by mavis
Wed Aug 24, 2011 11:17 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Neuro Sense Poll
Replies: 14
Views: 1654

59.26% after I voted.
by mavis
Tue Aug 23, 2011 11:00 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI and CCVBP
Replies: 4794
Views: 571148

uprightdoc wrote:Mavis,
You definitely need to get your neck checked. You most likely have pressure on the upper cord causing the weakness in your legs. Trauma can cause MS that shows up years later.
Thanks Dr. F. I can't wait to see Dr. Sondhi.
by mavis
Tue Aug 23, 2011 9:19 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI and CCVBP
Replies: 4794
Views: 571148

Civickiller and Dorothy, thank you guys for the information. I think I will see Dr. Sondhi, he comes highly recommended. I hope he can help me.
by mavis
Tue Aug 23, 2011 9:15 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI and CCVBP
Replies: 4794
Views: 571148

Thank you Dr. Flanagan, it was awesome to learn that the adjustments should not be a problem. I fully intend to inform the doctor of my condition and stent when I see him hopefully sometime in September. I was diagnosed with MS almost 14 years ago. Going back though I could see the first signs of it...
by mavis
Mon Aug 22, 2011 3:50 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI and CCVBP
Replies: 4794
Views: 571148

Hello Dr. Flanagan, I am a pwMS living just outside of Toronto, Canada. I had the CCSVI procedure done and ended up with a stent on the left side. Do you think I can still go through the adjustments for my atlas without damaging the stent or my vein? And the next question would be do you have a name...
by mavis
Thu Jul 14, 2011 1:58 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Here's an interesting kettle of fish.
Replies: 10
Views: 1873

My neurologist always says the picture (MRI) and the patient can be completely different (and I believe in many cases they are), that's why they treat the patient. And that's why he never ordered another MRI for me. I also believe a big reason is the Canadian healthcare system. I find that with the ...

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