This Is MS Multiple Sclerosis Knowledge & Support Community

You know, regarding the word liberation. I understood it like liberation of the blood flow. I think it was even said or written somewhere in 2009. I think only some patients or maybe press changed it to liberation from MS. I myself called it CCSVI procedure as I learned in 2009 it was endovascular ...

IM SORRY. thanks for your honesty. I have spent today in bed in a straight out extended position, doubled the baclofen and zanaflex but to no avail. It sickens me that you had relief and then it was gone...obviously we are all desperate, but this phenomenon(ccsvi liberation) is still missing someth...

I did. In fact, it was the most noticeable and relief-producing outcome of the CCSVI procedure. Unfortunately, I lost ALL of it, then some.

just wondering if any of the neurologists at the St. Michael's MS clinic are known to be interested in CCSVI?.... Jackiejay, what exactly do you mean by "interested"? Dr. Selchen met with Dr. Hubbard and had an information session in order to understand CCSVI better. This was back in June...

I don't have a problem with sweating either. It's mostly body sweat though.

Me too! Saw him in January. Totally blocked nothing he could do for me a the time. But this what he wrote to me the other day. Mike Arata I do think we may be able to help you by opening your azygos with the RF wire. I don't think this applies to your jugulars. Not sure if that's enough for you but...

Last time (in April) the test cost me $33 cad. No, MS is not one of the conditions that are on the list.

I hope they can be used in the stent as most occlusions we heard are happening within the stent.

Me too. Had ON on the left side (after which came the diagnosis), and I have a bum left jugular.

59.26% after I voted.

uprightdoc wrote:Mavis,
You definitely need to get your neck checked. You most likely have pressure on the upper cord causing the weakness in your legs. Trauma can cause MS that shows up years later.

Thanks Dr. F. I can't wait to see Dr. Sondhi.

Civickiller and Dorothy, thank you guys for the information. I think I will see Dr. Sondhi, he comes highly recommended. I hope he can help me.

Thank you Dr. Flanagan, it was awesome to learn that the adjustments should not be a problem. I fully intend to inform the doctor of my condition and stent when I see him hopefully sometime in September. I was diagnosed with MS almost 14 years ago. Going back though I could see the first signs of it...

Hello Dr. Flanagan, I am a pwMS living just outside of Toronto, Canada. I had the CCSVI procedure done and ended up with a stent on the left side. Do you think I can still go through the adjustments for my atlas without damaging the stent or my vein? And the next question would be do you have a name...

My neurologist always says the picture (MRI) and the patient can be completely different (and I believe in many cases they are), that's why they treat the patient. And that's why he never ordered another MRI for me. I also believe a big reason is the Canadian healthcare system. I find that with the ...