CCSVI and CCVBP

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.
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NZer1
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Post by NZer1 »

Another article;
Cysts, Syrinxes and CSF
Posted on August 22, 2011 by uprightdoctor
Cavities such as cysts and syrinxes that may or may not contain cerebrospinal fluid (CSF) are seen in the brain and cord. In this post we are concerned with the types that contain CSF. Faulty fluid mechanics in the brain and cord can cause these types of cavities to form. Likewise, cysts and syrinxes can cause faulty fluid mechanics in the brain and cord.

* Dr F this talk of gut permeability has me wondering about the endothelial layers of the veins in the gut and the endothelial layer of veins in the brain. If there are breaches in the gut into the veins then there would be breaches of the veins into the brain (BBB). Blood will transport its contents throughout the bloody. So entering the supply, all be it return flow, in the gut will transport via arteries around to the brain on another cycle of flow. The crossing of the BBB at Postcapilary venules back across the BBB is very likely?

* The second thought is about measuring flow of the CSF. I have heard people say this has been tested and that there is flow. For instance after decompression of Chiari. Is it actually flow that is recorded or is it assumed because of the test process? I am of the opinion that there is insufficient 'proof' of flow and that is why there are so many unknowns in many of the brain conditions such as MS.

* The other thought that has come to mind is about the likely hood of Parkinson’s disease after cyst decompression or when there is Chiari or flow problems found? Is there preventative measures that a person should be attending to?

Another great article thanks Dr.
Regards Nigel, counting down, 4 more sleeps.
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HappyPoet
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Post by HappyPoet »

Hi everyone!

Sorry I missed the Hawaiian party. I'll sure try to be at the next one!

Dr. Flanagan, I'd love to see the October presentation which sounds like it will be very comprehensive. Will the presentation of last Tuesday and the one coming up in October be available to be viewed on the Internet? Have you already told us? Have I already asked this question, lol?

Civic, I think you've got a good handle on the theories by your post on Fiona's thread... imo, you've found a very easy way to explain the neuro puzzle of 'MS' -- that half the puzzle is CCSVI and the other half is CCVBP. The frame for the puzzle is made up of contributing factors like Vit. D, Candida, and other factors, including many possible unknown factors.

I was diagnosed with both syndromes and underwent the CCSVI procedure 2x and UCC care in which I continue to try to have a recheck every two months which so far is the amt of time I can hold my adjustments... and I know when it's time for an adjustment because numbness starts creeping back into my feet.

BUT I prefer not to let things get that far because recovery from the numbness can take a couple of weeks each time it happens--I'd prefer to have an adjustment before the numbness returns. I wish I had started with CCVBP before CCSVI.
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HappyPoet
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Post by HappyPoet »

Nigel, oh no, what have I missed?

What are you counting down "sleeps" for???
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uprightdoc
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Post by uprightdoc »

NZer1 wrote: * Dr F this talk of gut permeability has me wondering about the endothelial layers of the veins in the gut and the endothelial layer of veins in the brain. If there are breaches in the gut into the veins then there would be breaches of the veins into the brain (BBB). Blood will transport its contents throughout the bloody. So entering the supply, all be it return flow, in the gut will transport via arteries around to the brain on another cycle of flow. The crossing of the BBB at Postcapilary venules back across the BBB is very likely?

In leaky gut syndromes the antigens enter the arterial side of circulation. I suppose theoretically antigens can enter the veins and find their way into the arterial side. When it comes to the brain however, venous blood leaves the system and the only way back in is to cross the BBB. Many things increase the permeability of the BBB.

* The second thought is about measuring flow of the CSF. I have heard people say this has been tested and that there is flow. For instance after decompression of Chiari. Is it actually flow that is recorded or is it assumed because of the test process? I am of the opinion that there is insufficient 'proof' of flow and that is why there are so many unknowns in many of the brain conditions such as MS.

That's interesting. I haven't come across anything yet that diputes whether or not CSF flows. There is definitely flow and it is easy to see with phase contrast cine MRI. Any neurosurgeon who specializes in shunts will also tell you that CSF flows. When it doesn't, it causes hydrocephalus.

* The other thought that has come to mind is about the likely hood of Parkinson’s disease after cyst decompression or when there is Chiari or flow problems found? Is there preventative measures that a person should be attending to?

I will be explaining more about the cisterns and Parkinson's in future posts. Decompressing enlarged ventricles won't cause Parkinson's or Alzheimer's but it may not cure it either. My theory is that chronic compression of brain structures causes permanent atrophy.
I am looking forward to you seeing Dr. Dobson. It would be terrific to get NZ involved in all this research from CCSVI to CCVBP - and leaky guts. On that note, its time to stoke up the grill.
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mavis
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Post by mavis »

Hello Dr. Flanagan,

I am a pwMS living just outside of Toronto, Canada. I had the CCSVI procedure done and ended up with a stent on the left side. Do you think I can still go through the adjustments for my atlas without damaging the stent or my vein?

And the next question would be do you have a name for a good UCC doctor in the area I live?

Thanks so much for your time. The procedure didn't work for me, hope this provides some relief. I am continuously progressing.
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NZer1
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Post by NZer1 »

HP, I have finally tracked down the best option or only option for UCC treatment in NZ and thanks to a lovely Fairy, I am able to afford to go for two treatments over this coming weekend. :wink:
Due to a little nest egg, I am able to go and have xrays and treatment over a three day period with Dr. Dobson who is the lead tutor at the Chiropractic College in Auckland. I have been communicating with him on and off since February, and talking about Dr. F and his book, plus CCSVI and other associated aspects of Atlas alignments.
Regards Nigel
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Post by Ruthless67 »

Nigel,

How wonderful. It makes my evening just reading your news. I hope Dr. Dobson is able to be of tremendence help to you. Best of luck on your journey.

Lora

Gotta love those lovely faries!
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blossom
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Post by blossom »

hi nigel, so glad to hear you are able to get started with some treatments. someone with the passion and knowledge you bring here sure deserves this option. i hope to hear you tell of amazing improvements soon.
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civickiller
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Post by civickiller »

mavis,

i found this on nucca.org

Dr. Brett Moore
275 Trafalgar Rd.
Oakville, ON L6J 3H1
Phone: 905-845-5747
Fax: 905-845-0306
Email: bkmoore@cogeco.ca
Member Type: Gregory Circle Bronze Level JR
Years In Practice: 8
Conferences Attended: Spring 2011, Fall 2010, Spring 2007, Fall 2007, Spring 2005, Fall 2004

Dr. Vic Sondhi
Atlas Spinal Care
12-4646 Heritage Hills Blvd
Mississauga, ON L5R 1Y4
Phone: 905-712-9670
Fax: 905-712-1956
Email: drvicsondhi@hotmail.com
Member Type: Established Member
Years In Practice: 10
Techniques: NUCCA
Conferences Attended: Fall 2004, Spring 2004, Fall 2003, Spring 2003, Fall 2001, Spring 2001
http://www.atlasspinalcare.ca

Dr Moore seems to be more educated but farther away, Dr Sondhi has a few more years experience. maybe Dr F can give a better recommendation
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NZer1
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Post by NZer1 »

Thank you the wishes everyone :D

Dr. a question or two or three or four or five now actually,

* Is Chiari or problems with contact of the brain stem, some thing that happens over time? I am guessing that it is de-generative and likely to increase with age? and or postural de-generation in MS type situations?

* When an adjustment is make to the upper spine, how soon should there be physical change in alignment?
I remember John doing my adjustments and that he did not check after, in any way. The atlas adjustment was one that I am most interested in as when he used the drop table, with me on my right side, afterwards he did not check for any changes and the atlas was the last adjustment after doing my spine from base to top with the actuator, then I was out the door see you later, please pay on your way out.
I can imagine that actuator adjust is a mystery to Chiropractors let alone medical 'testing', but the atlas alignment is involving force and I would imagine that there would be a measurable result.

* Would an adjustment be seen on xrays straight after?

* Is there change that would be measurable after all and any particular types of adjustments?

* Lastly do the veins returning from the brain I presume through or along side the brain stem, thread through the atlas vertebrae? This quest is along the lines of a shear effect if the skull and veins are not in 'line'. I gather than the cord is challenged by misalignment of the atlas with the skull due to potential contact or stretching. If the veins are to line up with passages in the atlas then alignment issues would also be flow issues for the main flow when vertical. Jugs being mostly for horizontal.
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Post by uprightdoc »

Sorry you missed the Hawaiian party HP. I hear tell we have some more pineapple weather coming up this weekend along with my brother and his wife for their thirty-fifth anniversery.

I'll keep you apprised about October.
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Post by uprightdoc »

mavis wrote:Hello Dr. Flanagan,

I am a pwMS living just outside of Toronto, Canada. I had the CCSVI procedure done and ended up with a stent on the left side. Do you think I can still go through the adjustments for my atlas without damaging the stent or my vein?

And the next question would be do you have a name for a good UCC doctor in the area I live?

Thanks so much for your time. The procedure didn't work for me, hope this provides some relief. I am continuously progressing.
Hello Mavis,

Yes you can get adjusted. There are many low force or non-force techniques. NUCCA is very safe, uses very little force and it shouldn't hurt the stent. Just make sure the doctor is fully apprised of your condition and the stent.

Can you tell me a little more about your case. How long have you had MS and what are your signs and symptoms? Do you have any history of trauma?

There is a NUCCA doctor in Mississagua who is highly recommended by Dr. Chuck Woodfield of the NUCCA research foundation. His name is Dr. Vic Sondhi. His website and information are at:

http://atlasspinalcare.ca/dr-vic-sondhi/

Let me know if that works for you.

Dr. F
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uprightdoc
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Post by uprightdoc »

NZer1 wrote: * Is Chiari or problems with contact of the brain stem, some thing that happens over time? I am guessing that it is de-generative and likely to increase with age? and or postural de-generation in MS type situations?

It can happen as a result of a head tilt or whiplash type trauma. I suspect that it can also happen due to aging and failure of the support system that allows the brain to sag in the vault.

* When an adjustment is make to the upper spine, how soon should there be physical change in alignment?

In most cases it takes time to see changes. Board certified NUCCA doctors like Dr. Dickholtz make rapid changes in the first visit or two. Regardless of visible changes, functional changes occur fairly quickly such as range of motion and blood flow etc.

* Would an adjustment be seen on xrays straight after?

Most orthogonal methods show change soon after if not straight afterwards.

* Is there change that would be measurable after all and any particular types of adjustments?

Yes. You can show structural and postural changes, as well as range of motion. You can also show physiological changes in skin temperature, blood flow and EMG's for example.

* Lastly do the veins returning from the brain I presume through or along side the brain stem, thread through the atlas vertebrae?

Yes. They pass down through the spinal canal of the upper cervical spine.
The soft tissue suboccipital cavernous sinus, which is for venous blood leaving the brain, is also attached to the atlas vertebra. Misalignments can cause deformation of the sinus.
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Post by HappyPoet »

NZer1 wrote:HP, I have finally tracked down the best option or only option for UCC treatment in NZ and thanks to a lovely Fairy, I am able to afford to go for two treatments over this coming weekend. :wink:
Due to a little nest egg, I am able to go and have xrays and treatment over a three day period with Dr. Dobson who is the lead tutor at the Chiropractic College in Auckland. I have been communicating with him on and off since February, and talking about Dr. F and his book, plus CCSVI and other associated aspects of Atlas alignments.
Regards Nigel
Fantastic news, Nigel. :)

You've helped so many people that it's great to see you get your turn. Can't wait to see your X-rays. Best wishes!
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Post by Kathryn333 »

Mavis, I've been going to Dr. Sondhi in Mississauga since last October. Dr. Flanagan recommended him through Dr. Woodfield. He's very good.

I found there are very few NUCCA doctors in Ontario.

Good luck. If you decide to go to him, I hope he can help you. :)

Dorothy
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