Search found 21 matches

by davmets2
Wed Jul 13, 2011 9:35 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 1595095

Dr Sclafani, I just had my 3 month ultrasound. My procedure was done in 2 stages, one week apart. While doing the second procedure for the RJV the venogram showed that the LJV that was done the week before with 18 mm balloon had restenosed and clotted. He attempted to re-balloon without any success...
by davmets2
Thu Jun 09, 2011 6:11 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 1595095

heat in back, chest discomfort & bladder retention probl

drsclafani, I don't know if you remember my case. I had 2 procedures done back in January with Dr. Mehta. I came off of warifin on April 12th after 2 months. On the 12th the US said I had flow, but couldn't tell me how much. On May 6th I needed to go on solumedrol (3 days) with a 12 day taper. I see...
by davmets2
Tue Apr 19, 2011 11:24 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 1595095

You are indeed fortunate that your thrombosis was able to reverse itself while on coumadin. Often, occlusion of the jugular vein is a permanent thing. You might not have had such an outcome if this vein had been the second vein treated rather than the first one. I think that the ultrasound examinat...
by davmets2
Wed Apr 13, 2011 10:19 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 1595095

Dr Sclafani, I just had my 3 month ultrasound. My procedure was done in 2 stages, one week apart. While doing the second procedure for the RJV the venogram showed that the LJV that was done the week before with 18 mm balloon had restenosed and clotted. He attempted to re-balloon without any success....
by davmets2
Tue Mar 22, 2011 10:04 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Dr. Mehta in Albany, NY - Thank you, Kacey!
Replies: 315
Views: 69133

The juries still out on improvements. Warifin can give you side effects and I'm hoping that these are some of the things that I'm experiencing...fatigue and leg weakness. I've been SPMS for the last, I don't know 8 years and was diagnosed RRMS in 1979. I wasn't expecting any quick symptom fixes, but...
by davmets2
Tue Mar 22, 2011 7:52 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Dr. Mehta in Albany, NY - Thank you, Kacey!
Replies: 315
Views: 69133

Dr. Mehta is a very capable vascular surgeon with a lot of experience. His facilities and personel for CCSVI are impressive. If you're without a participating insurance company it could get rather expensive though. I had two procedures done there and the charge would have been approximately $15,000 ...
by davmets2
Tue Feb 08, 2011 8:39 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: I'm confused about the best position..
Replies: 5
Views: 1608

Post-venoplasty, though, the jugulars should be wide open and we want them to stay open. With the bed flat, that would require flow to go through the jugulars which would keep them the widest during that stretch of night. By having the bed flat in an attempt to maximize flow through the jugulars at...
by davmets2
Mon Jan 31, 2011 6:54 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Procedure done last week, now clotting
Replies: 30
Views: 6561

* not doing a repeat procedure but putting the patient on strong anticoagulants (coumadin or lovenox) so that the clot does not worsen (because without anticoagulation the presence of a clot will encourage further clotting as the bloodstream hits against the clot) and the body gets a chance to reca...
by davmets2
Wed Jan 19, 2011 2:59 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Procedure done last week, now clotting
Replies: 30
Views: 6561

Starting warfarin sodium (coumadin) tonight. Hopefully this will treat me better.
by davmets2
Wed Jan 19, 2011 6:14 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Procedure done last week, now clotting
Replies: 30
Views: 6561

DrCumming, The clotting was discovered during the second procedure , so it was discovered 7 days after the first procedure. I'm sure I anticoagulated during the procedure, heperin I think? I was also taking an 81 mg aspirin 5 days before the first procedure and am still taking. Unfortunately I won't...
by davmets2
Tue Jan 18, 2011 5:34 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Procedure done last week, now clotting
Replies: 30
Views: 6561

Dr. Sclafani, No a stent wasn't used. He mentioned to me as I was laying there that his options were that he may have to stent later on or do some type of bypass procedure around the clot doing surgery at the neck. Just an after thought, but wouldn't it be wise to use a blood thinner in all cases fo...
by davmets2
Mon Jan 17, 2011 5:44 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Procedure done last week, now clotting
Replies: 30
Views: 6561

Procedure done last week, now clotting

I had my first procedure done last Monday, left jugular and azycos chest vein. I went for second procedure today to have right jugular done. It was discovered that my left jugular had clotted and was showing colatterals for the blood flow. I asked my Doctor last week if he used blood thinners, and h...
by davmets2
Thu Jan 13, 2011 1:23 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI tracking project-POST PER P.1 FORMAT ONLY
Replies: 163
Views: 284144

CCSVI TRACKING MS HISTORY Name: Don Male/Female: M Age: 53 Date(s) & type of neurological diagnosis : 1979 - RRMS, 2003 - SPMS Lesion locations (most affected side, if known), number: Brain & Spine MS treatments: Betaseron, Novantrone, Avonex, Tysabri (3 yrs), for the last year - Copaxone & LDN. Bac...
by davmets2
Tue Jan 04, 2011 10:38 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Has insurance paid for anyone?
Replies: 11
Views: 2217

I live in Albany, NY and work for the state. My insurance is United Health Care. They preapproved the procedure that I'm gonna be having next Monday (1/10) with Dr. Mehta of the Vascular Group. He requires two procedures, so I guess that's what my insurance will be picking up. There's normaly a copa...
by davmets2
Wed Nov 17, 2010 12:26 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Albany - Mehta
Replies: 42
Views: 6016

Great news Kaboodah! You mentioned that you'll be going in for the second procedure on the 30th, so I assume they ballooned one JV and will do the other one next, along with the azogos if needed? I think that's Dr. Mehta's protocol. I guess things could improve even more! Glad to here it wasn't bad....