Search found 13 matches

by PatGF
Mon May 16, 2011 10:17 am
Forum: General Discussion
Topic: Zonulin, BBB, Coeliac disease and MS....
Replies: 11
Views: 6578

Gut Bacteria Can Affect Neurologic Inflammation

Proinflammatory T-cell responses to gut microbiota promote experimental autoimmune encephalomyelitis Lee, Yun Kyung; Menezes, Juscilene S.; Umesaki, Yoshinori; Mazmanian, Sarkis K. National Academy of Sciences 2011-03-15 Summary: Although the effects of commensal bacteria on intestinal immune develo...
by PatGF
Mon May 16, 2011 10:11 am
Forum: General Discussion
Topic: Zonulin, BBB, Coeliac disease and MS....
Replies: 11
Views: 6578

Probiotics Make Gluten More Tolerable

VSL#3 probiotic preparation has the capacity to hydrolyze gliadin polypeptides responsible for Celiac Sprue. Author: De Angelis M; CG Rizzello; A Fasano; MG Clemente; De Simone C; All authors Biochimica et biophysica acta, 2006 Jan; 1762(1): 80-93 Database: From MEDLINE®/PubMed®, a database of the U...
by PatGF
Sat Apr 30, 2011 3:06 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: 2nd Annual CCSVI Symposium in NYC July 15-17
Replies: 158
Views: 26621

Conference

I'm planning to attend. I live in Connecticut so it will be a day trip for me. I'm interested in learning about new treatments. My left jugular is occuluded from a thrombosis on one of my three stents. Since my right jugular opened successfully I have no MS symptoms. But if I experience restenosis I...
by PatGF
Tue Apr 19, 2011 2:51 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI and Hypothyroidism (Underactive thyroid)
Replies: 13
Views: 3558

My Thyroid changed after CCSVI

My ultrasound the day after my venoplasty did not show any thyroid abnormality. My 3 month follow-up did. I don't have my blood results yet and will have another ultrasound next week. I'm sure that I was sub-clinical for thyroid dysfunction and the procedure may have caused some inflammation. My mot...
by PatGF
Sun Mar 20, 2011 2:31 pm
Forum: General Discussion
Topic: Epstein-Barr virus disrupts blood-brain barrier....
Replies: 12
Views: 3538

Epstein-Barr Virus

I had EBV in college. I am a chronic carrier. I was exposed to two students at the college where I teach with active EBV and my titer shot up to 3 times normal. My neuro prescribed Acyclovir 800 mg 2 X day.
by PatGF
Tue Feb 22, 2011 11:24 am
Forum: Revimmune (cyclophosphamide or cytoxan)
Topic: Starting Chemo for MS in 9 Days. Am I nutz?
Replies: 6
Views: 7081

Cytoxan

I'm glad you are getting great information to make your treatment choices. I was given Cytoxan in 2007 during a particularly bad relapse. I took it for about a year for 4 days once a month. It really helped me. I wish I had followed it up with Copaxone, rather than Betaseron. I'd rather have another...
by PatGF
Tue Feb 22, 2011 11:17 am
Forum: Antibiotics
Topic: Antibiotics and ccsvi
Replies: 10
Views: 6047

Xifaxan and Bacterial Overgrowth

I am just amazed there is a connection with MS. I was tested with the Hydrogen Breath test 12 months ago for a myriad of GI discomforts. They stopped the testing after 30 minutes because the hydrogen was off the chart. So to treat my "bad" hydrogen forming bacteria I take daily Xifaxan and probiotic...
by PatGF
Sun Feb 20, 2011 8:35 am
Forum: Introductions
Topic: Nutmeg Nutritionist - Introduction
Replies: 3
Views: 1712

Tumeric (Curcumin)

A recent paper has a good review of the studies on curcumin (tumeric) and its effect on insulin. This was an in vivo rat model. Mohamed Abdel Aziz;et al. The Effect of Curcumin on Insulin Release in Rat-Isolated Pancreatic Islets. Angiology, 61, no. 6 (2010): 557-566 Their theory is based on the obs...
by PatGF
Fri Feb 18, 2011 9:04 am
Forum: Copaxone
Topic: CCSVI and Capaxone
Replies: 5
Views: 2421

Copaxone

I'm not ready to give up Copaxone until I have my one year follow-up MRI to compare to my research MRI performed at BNAC. The medical researcher I talked to at TEVA told me the strangest thing, he said "We really don't know how Copaxone works." That has me thinking...
by PatGF
Tue Feb 15, 2011 12:00 pm
Forum: Copaxone
Topic: CCSVI and Capaxone
Replies: 5
Views: 2421

CCSVI and Capaxone

I've seen many posts about people wanting to discontinue Capaxone after CCSVI. My response is that it is too soon to know. I called TEVA and talked with their medical research team. They did not have a positive view of CCSVI because the people they have spoken to did not have a positive response. So...
by PatGF
Tue Feb 15, 2011 11:44 am
Forum: Introductions
Topic: Nutmeg Nutritionist - Introduction
Replies: 3
Views: 1712

Nutmeg Nutritionist - Introduction

I am a Registered Dietitian from Connecticut and MS sufferer since 2006. I had CCSVI 6 weeks ago - so far so good. You may see me post when people are skeptical of CCSVI or promote some nutritional supplement. CCSVI is an emerging story. I hope there is a happy ending. I am not against supplements, ...
by PatGF
Fri Feb 11, 2011 1:58 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: circulation (moved from tracking)
Replies: 12
Views: 3307

Cold Intolerance and CCSVI

I was diagnosed in 2006 but have had MS for probably 10+ years. It is 6 weeks after CCSVI and was able to go to Vermont (14 degrees below zero weather) for a dogsled ride. It never would have happened before. My toes are warm and I actually am too hot at night for a down comforter. I will have to pu...
by PatGF
Tue Jan 25, 2011 10:45 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI tracking project-POST PER P.1 FORMAT ONLY
Replies: 163
Views: 299723

CCSVI Tracking

MS HISTORY Name: Pat Grace-Farfaglia: Male/Female: F Age: 55 Date(s) & type of neurological diagnosis : 05/09/2006 RRMS Lesion locations (most affected side, if known), number: Lesions vary in size and shape and allocated for the most part peripherally. Also, diffuse areas of T2 hypersensitivity in ...

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