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by fiddler
Wed Jul 20, 2011 2:06 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Liberation follow-up results
Replies: 9
Views: 1660

Perspective

Hi Cece,
Amazing how a change in perspective can change things... before I was liberated, I very much wanted to "qualify" for CCSVI and was so happy to receive that diagnosis in Katowice. Now, not so much... :?
..Ted
by fiddler
Wed Jul 20, 2011 2:03 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Liberation follow-up results
Replies: 9
Views: 1660

Second opinion

Hi scorpion, I'm hoping for a second opinion from the folks at Barrie, though since this preliminary report didn't give details of how much the "some" reflux I have matters, I hesitate to call it a first opinion. Also, unfortunately, anybody qualified to give a second opinion is a long ways away fro...
by fiddler
Wed Jul 20, 2011 12:27 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Liberation follow-up results
Replies: 9
Views: 1660

Symptoms

Nope, my symptoms have not really changed since my improvements, most of which occurred in the months after the procedure: energy, balance and bladder are all still much better (except for rare times), my mobility (dropfoot) is not really better (though better balance helps a lot), my left side stre...
by fiddler
Wed Jul 20, 2011 9:34 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Liberation follow-up results
Replies: 9
Views: 1660

Liberation follow-up results

I just received my official "Preliminary Report" results back from the Eastern Maine Medical Centre: FINDINGS: On the right, the right internal jugular vein valve was visualized and appeared to be normal. The cross-sectional area of the internal jugular vein was 1.79 cm/squared in the supine positio...
by fiddler
Fri Jul 15, 2011 7:42 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Swollen foot
Replies: 6
Views: 2467

No restenosis

I was checked out a few weeks ago, and my blood flow (in my jugulars) seems to be good, so that doesn't seem to be the issue.
...Ted
by fiddler
Thu Jul 14, 2011 3:41 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: National MS Society one year studies update
Replies: 5
Views: 1753

Results

OK, so nothing, not even links, to the negative study(ies)? Kind of makes it hard to ascertain their validity and value.
...Ted
by fiddler
Thu Jul 14, 2011 2:16 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Liberation Day Song
Replies: 0
Views: 1006

Liberation Day Song

Any budding singers want to record this: http://my-darn-ms.blogspot.com/2011/06/ ... -song.html. I would love to see the result on you-tube. :D
...Ted
by fiddler
Thu Jul 14, 2011 2:07 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Swollen foot
Replies: 6
Views: 2467

Swollen foot

For the last few weeks my left (most affected side) foot has been swollen, especially after a day of sitting at a desk. Has anyone had success in dealing with such issues, post (or pre) liberation? Besides not sitting at my desk all day or taking Lasix (which will probably be prescribed, if it doesn...
by fiddler
Thu Jul 14, 2011 2:01 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: physical therapy after ccsvi
Replies: 4
Views: 1982

Physio

I exercise almost every day: biking, weights, core work. My physiotherapists have been very helpful. Just today they showed my wife and me how to do PNF (ask your physiotherapist - they all know it, usually used for stroke patients) to help me with my continuing weak left ankle and foot-drop problem...
by fiddler
Tue May 17, 2011 11:06 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: dr. mark eFer
Replies: 6
Views: 2497

Tea-party

Scorpion says:
Thanks Dr. Freedman for saying what many of us have been saying from the start.
Please skeptics, we need healthy skepticism

...Ted
by fiddler
Tue May 17, 2011 9:39 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: delayed results?
Replies: 2
Views: 1290

Zero

I had no noticeable improvement for the first few weeks (though folks said I "looked" better), then steady improvement for a couple of months (especially fatigue and balance), then mostly a plateau since then with some slight improvement over the remainder of my first year including, most recently, ...
by fiddler
Fri May 13, 2011 8:56 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: has anyone had cssvi treatment for more than 2yrs?
Replies: 22
Views: 3639

Miracles

As an SPMSer, I take my miracles where I can get them. One year after treatment, my fatigue remains much better, balance much better, mobility a bit better, bladder quite a bit better, manual dexterity slightly better. Given my trajectory before treatment, this change in my quality of life and outlo...
by fiddler
Thu May 12, 2011 8:01 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Travel insurance-Canadians
Replies: 9
Views: 2934

Travel insurance

It was over a year ago when I and some other Canadians were looking into this, trying to get quotes from some international medical travel insurance providers. In the end, they would only insure if a procedure was being done by an institution on their list, and they didn't have time (or interest?) i...
by fiddler
Sat May 07, 2011 1:47 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Who has had angioplasty and stopped drug treatment?
Replies: 26
Views: 4421

Betaseron

I stopped taking Betaseron last fall, but because my liver enzymes were up as much as because of my "liberation". However, if I (rather than my insurance company) was paying, I probably would have stopped injecting as soon as I was liberated (or never started). Given I'm SPMS, my neuro gave me the i...

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