Search found 125 matches

by NotFound
Wed Dec 22, 2010 3:34 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Can venous blood clots dissolve?
Replies: 11
Views: 5618

After my thrombosis I was put on coumadin for 3 months and Lovenox until I get INR 2-3. I took 11 WEEKS to get therapeutic (>2). They kept increasing the coumadin but the highest I got was 2.09! I weight 115lbs and don't eat meat (harder to increase INR) Wow! Let's see how long my up curve will tak...
by NotFound
Wed Dec 22, 2010 2:39 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Can venous blood clots dissolve?
Replies: 11
Views: 5618

Remind me: do you know if you have a clot? No, I am just worried because it's been a week of low INR after my procedure - plenty of time to get that clot started :( Why didn't I think of taking aspirin for a few days prior... Should INR levels on Coumadin be between 2 - 3? Yes! Have you read what J...
by NotFound
Wed Dec 22, 2010 10:40 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Russian language article on CCSVI procedures in Azerbaijan
Replies: 2
Views: 1652

Well, thank you so much!

Now I do not have to struggle with translation to explain CCSVI to my relatives :) (the English to Russian that is)
by NotFound
Wed Dec 22, 2010 10:38 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Can venous blood clots dissolve?
Replies: 11
Views: 5618

Yes, it's recanalization if the body dissolves the clot: http://www.thisisms.com/ftopicp-144699.html#144699 It seems to be a roll of the dice if it happens or not? When people get put on blood thinners after coming down with a clot, it is in attempt to prevent further clotting and allow the body to...
by NotFound
Tue Dec 21, 2010 9:30 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Can venous blood clots dissolve?
Replies: 11
Views: 5618

Can venous blood clots dissolve?

Seems that it is / should be a body's natural mechanism for getting rid of clots once they performed their function (stopped the bleeding). I seem to be reading references to either surgical removal or "living with a blocked vein". Can the following happen: Liberation procedure --> shear stress to t...
by NotFound
Tue Dec 21, 2010 6:16 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI SURGERY YESTERDAY! PLeASE HELP!
Replies: 4
Views: 1790

Not everybody gets improvements as unfortunate as it may be.

Some people get improvements later, some never, a lucky few get immediate and drastic improvements.

Why one side hurts more than another? Could be a certain nerve was hit on the left side and the one on the right side "avoided collision".
by NotFound
Tue Dec 21, 2010 6:07 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: That's it! my CCSVI journey is over.
Replies: 34
Views: 6561

Vivavie, I have no wise words to share, but please accept my hugs, well wishes and Holiday greetings. Not seeing results after two procedures in my case is highly disappointing, I can only imagine how it must feel after five. A gentle PS... Did you get tested for Lyme by any chance? Headaches, noise...
by NotFound
Mon Dec 20, 2010 6:35 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: No improvements, more weakness 6 days post-op --> clots?
Replies: 8
Views: 1677

An IVUS ([3-D color] Interventional Radiology Ultra-Sound) like the first one you had, if you did have one, will show if you have clots. They did not do the ultrasound on me (or any tests for that matter) because I brought the test results from Poland with me. Yes, the blood thinners do make you ve...
by NotFound
Mon Dec 20, 2010 6:29 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: No improvements, more weakness 6 days post-op --> clots?
Replies: 8
Views: 1677

AlmostClever wrote:NotFound,

Pls refresh us on what you had done to which veins. Balloon or stents?

Thx
I had a left IJV ballooned and my azygous stented.
by NotFound
Mon Dec 20, 2010 1:55 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: No improvements, more weakness 6 days post-op --> clots?
Replies: 8
Views: 1677

No improvements, more weakness 6 days post-op --> clots?

Or still recuperation? Blood thinners bringing my energy down?

The fact that you can only tell for sure that there are clots if you "go in" again (venogram) sucks :(
by NotFound
Mon Dec 20, 2010 10:42 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Question about the angioplasty procedure
Replies: 15
Views: 2714

except the nurse who brought me the bad pan. I am scared of catheter but I have no problem with the bad pan. They do not like to use catheter in Bratislava/Slovakia only if the patient asks for it. Erika Thankfully there was none of this in the States. I was allowed to go to the restroom (yes, with...
by NotFound
Sun Dec 19, 2010 10:08 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Question about the angioplasty procedure
Replies: 15
Views: 2714

Johnson wrote:
One might choose to do some shaving him/herself, because some nurses are far from being "gentile" when doing several patients in the row.
They're not circumcising, are they?
Not females, that I can promise you. Guys do come out looking somewhat different though...
by NotFound
Sun Dec 19, 2010 10:06 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: so what really IS an auto-immune disease?
Replies: 12
Views: 2257

Well said Lyon.
by NotFound
Sun Dec 19, 2010 5:24 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: so what really IS an auto-immune disease?
Replies: 12
Views: 2257

Re: so what really IS an auto-immune disease?

When you have an autoimmune disease, your immune system attacks healthy cells in your body by mistake. Immune system does what it supposed to do - goes where inflammation is. I truly believe that in MS, just like in other "auto-immune" diseases immune system response comes AFTER something came and ...
by NotFound
Sun Dec 19, 2010 5:17 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Google Body Browser
Replies: 4
Views: 1907

Fun :D

Somewhat slow, could be my computer though.