CCSVI SURGERY YESTERDAY! PLeASE HELP!

[leetz]

Hi guy's, got it done yesterday @ albany, 33% blockage on LIJV and 50% on RIJV, notice very lil so far like more veins looking fuller, a lil less spasticity. My question is: Why is only the left side of my neck sore? Ride side does not hurt. Also, most of my symptoms are leftsided so if the right IJV never really stayed open (dunno feel asleep during surgery) only woke up when he said to hold my breath...probably like 3 or 4 different times during surgery...why haven't I noticed any really big improvements? Why does only one side of my neck hurt?

[Cece]

Dr. Siskin does a follow-up ultrasound the next day, doesn't he? (Or his partners?) That will tell if the vein stayed open. Otherwise, perhaps the left was more resistant so might've taken more ballooning. I would ask him these questions or check the report if you have one. But I am sorry if you did not get any big improvements. You have my hopes that things improve gradually.

[leetz]

now i go on thurs...for followup...

[NotFound]

Not everybody gets improvements as unfortunate as it may be.

Some people get improvements later, some never, a lucky few get immediate and drastic improvements.

Why one side hurts more than another? Could be a certain nerve was hit on the left side and the one on the right side "avoided collision".

[CureIous]

Hi Leetz, had a reply to you earlier but it went into the "website not found" black hole that seems an almost daily occurrence on TIMS now.

Remember on your images, that left side was string-beany small? That may be a contributing factor since it had to stretch out further than the right, insofar as pain goes?

While some have had the mountain-topping heavens-parted-and-I-heard-angels experience, that's far from the norm from what I've seen, some stuff is gradual, and only seen in retrospect, assuming it will happen in the first place of course. MANY times it does seem to hinge on the length of disease course before treatment, though not always. Since of course I was an MS newbie so to speak, I can't take my experience (nor I think anyone else can either) and apply to anyone else's situation. We are all just too different to know how things will turn out based on someone else's experience.

While stents and angioplasty are not exactly comparable, it's still getting in there and stretching stuff outwards, nerves are funny creatures, I've had a rib broken near my vetebrae, that caused radiation of pain all the way to my chest area. You will be very sensitive the first week/month to any sort of twinge just about anywhere, so try not to read too much into those twinges just yet.


This is why I think it is very important for everyone to sit down and make a detailed sketch of their exact condition prior to the procedure, and use that to gauge success/failure in the months that lie ahead, as some things won't be that noticeable right off the bat. Not trying to make any excuses here, just trying to think through it with you is all.

As I've stated before, I gave myself a 3 month internal milestone checkpoint, all else before that I considered as part of the journey, but only until the checkpoint was reached and the car was put on the lift and given a thorough inspection, did I let my guard down a bit. Then 6 months, then 1 year before internally "relaxing" and ending the questioning (is this going to last, is this for real, is this in my head, am I just seeing what I want to see, am I afraid this won't work, am I in denial, what are others saying, what is my doctor saying, my neurologist, wife, family, am I trying to prove something out of fear of failure, what is REALLY going on), to name a few.

I could only really, truly, and honestly sit down and answer those questions, after about a year, before that, there was ALWAYS those questions in my head.

Just saying, give it some time to make a thorough rearview mirror assessment, there's just no way to know (to the good, or the bad) either way this early on. Rootin for ya Leetz!

Mark