Suggestions

New Topic

72 topics

Topics

Replies

Views

Last post

EBV forum?

Last post by NHE « Mon Apr 01, 2019 7:34 pm
Replies: 1
by CureOrBust » Mon Apr 01, 2019 3:54 am

First post

Considering how persistent the link has been between EBV and MS, it recently occurred to me that the site does not have a specific forum on the...

Last post

Considering how persistent the link has been between EBV and MS, it recently occurred to me that the site does not have a specific forum on the...

1 Replies

3812 Views

Last post by NHE
Mon Apr 01, 2019 7:34 pm
SOLUTIONS for SYMPTOMS

Last post by NHE « Sat Oct 21, 2017 3:02 am
Replies: 1
by THX1138 » Fri Oct 20, 2017 1:03 pm

First post

:-D There is so much good information on this site.

The problem is finding it in the large haystack. :confused:

We need some kind of a set up...

Last post

:-D There is so much good information on this site.

The problem is finding it in the large haystack. :confused:

We need some kind of a set up...

1 Replies

2989 Views

Last post by NHE
Sat Oct 21, 2017 3:02 am
Thread on IVIG Therapy

Last post by NHE « Mon Sep 04, 2017 7:48 pm
Replies: 4
by javaneen » Fri May 29, 2009 5:28 am

First post

I would love to see a topic on IVIG. I just started this therapy and am interested in hearing others comments on it.

Last post

IVIG helped my RRMS, subQ Ig was even better, can keep a steady level w it, ins stopped paying, I have gotten worse.
Thanks for the suggestion. Why...

4 Replies

5834 Views

Last post by NHE
Mon Sep 04, 2017 7:48 pm
Suggestion board

Last post by NHE « Mon May 01, 2017 6:23 pm
Replies: 2
by fee002 » Sun Nov 20, 2011 6:18 pm

First post

Somebody suggested a Limboland board, but they dont seem to have received a response. I think its a brilliant idea...

Last post

Medical Marijuana and Treatment Efficacy in RRMS

Thank you for the suggestion.

2 Replies

4881 Views

Last post by NHE
Mon May 01, 2017 6:23 pm
Could be possible to have a subforum about etiology?

Last post by frodo « Mon Mar 27, 2017 3:14 am
Replies: 2
by frodo » Thu Mar 16, 2017 8:07 am

First post

Could be possible to have a subforum about etiology or research into pathogenesis? There is a lot of news in this area that could be interesting.

Last post

Could be possible to have a subforum about etiology or research into pathogenesis? There is a lot of news in this area that could be interesting....

2 Replies

2606 Views

Last post by frodo
Mon Mar 27, 2017 3:14 am
Another "Mark topics read" button

Last post by niezniszczalny « Tue Oct 11, 2016 11:15 pm
Replies: 3
by niezniszczalny » Sun Jul 03, 2016 10:03 am

First post

I've got a suggestion. I think it could be useful to add Mark topics read button to apper after clicking View unread posts . So then, one could...

Last post

I know this Mark topics read button, it's extremely useful. But what I've seen on the other forum was this button on the bottom of posts, near page...

3 Replies

3721 Views

Last post by niezniszczalny
Tue Oct 11, 2016 11:15 pm
Stem Cells

Last post by vesta « Sat Mar 05, 2016 9:04 am
Replies: 2
by ssmme » Fri Feb 12, 2016 9:58 am

First post

I suggest the stem cells topic be broken into specific treatments. HSCT (hematopoietic stem cell transplant) aka bone marrow transplant is a...

Last post

I suggest the stem cells topic be broken into specific treatments. HSCT (hematopoietic stem cell transplant) aka bone marrow transplant is a...

2 Replies

3078 Views

Last post by vesta
Sat Mar 05, 2016 9:04 am
suggestion for a forum

Last post by Sahsh1862 « Thu Dec 17, 2015 7:25 am
Replies: 4
by Maledicte » Wed Dec 28, 2011 5:45 pm

First post

how about a support forum

for when things fall apart in your life and you wish you could talk about it but its not totally about ms
(losing a friend...

Last post

Can we talk about ms and Lyme disease? I saw some and look for more!

4 Replies

5160 Views

Last post by Sahsh1862
Thu Dec 17, 2015 7:25 am
How bout a "like" button peoples posts?

Last post by NHE « Sun Apr 26, 2015 11:42 pm
Replies: 1
by Youarethecure » Sun Apr 26, 2015 5:19 pm

First post

I feel like this could benefit the forum if it was part of the website. Many times people will post things that are very informative and helpful. New...

Last post

Thanks for the suggestion. The forum software does not provide this option.

By the way, there are thumbs up and thumbs down smileys. :thumbup:...

1 Replies

3557 Views

Last post by NHE
Sun Apr 26, 2015 11:42 pm
the teaMS study-research to raise awareness about life w/ MS

Last post by teaMSstudy « Sun Sep 14, 2014 8:51 am

by teaMSstudy » Sun Sep 14, 2014 8:51 am

I am a doctoral candidate in Clinical Psychology at the University at Albany, SUNY. Together with my advisor, I am conducting a new online survey...

0 Replies

3358 Views

Last post by teaMSstudy
Sun Sep 14, 2014 8:51 am
undiagnosed forum????

Last post by MrsMomTo6 « Tue May 28, 2013 9:08 pm
Replies: 8
by Mike56 » Fri Sep 11, 2009 6:58 am

First post

How about a forum for those of us still looking for a dx? I know there are quite a few of us in here, and whether the eventual diagnossis is MS or...

Last post

Wish we could all share what our MRI reports read, that led to our diagnosis of MS...
combined with
What symptoms were presenting at the time that...

8 Replies

8821 Views

Last post by MrsMomTo6
Tue May 28, 2013 9:08 pm
Vitamin D Deficiency in MS

Last post by lyndacarol « Tue May 28, 2013 5:40 pm
Replies: 1
by MrsMomTo6 » Tue May 28, 2013 10:35 am

First post

Just wanted to post a comment about the Vitamin D research.

My best understanding of the ''job' of Vitamin D is to transport calcium from the GI...

Last post

Excellent thoughts!

I think this explains the development of my kidney stone after taking 6000-8000 IU of vitamin D3 daily for about a year and a...

1 Replies

6895 Views

Last post by lyndacarol
Tue May 28, 2013 5:40 pm
Brainstorming MS

Last post by ljelome « Sun Feb 17, 2013 9:41 pm

by ljelome » Sun Feb 17, 2013 9:41 pm

Hello everyone, member of this forum. Thank you for the opportunity given to me so i’m still here in this forum. Do you know that TIMS forum is very...

0 Replies

4118 Views

Last post by ljelome
Sun Feb 17, 2013 9:41 pm
Important conclusion/note for every topic/forum?

Last post by ljelome « Wed Jan 30, 2013 8:42 pm

by ljelome » Wed Jan 30, 2013 8:42 pm

Hi, i'm wondering if there's any place where i could see important conclusion for every post or topic related to MS? If there's none, i find myself...

0 Replies

4119 Views

Last post by ljelome
Wed Jan 30, 2013 8:42 pm
Live Chatroom

Last post by NHE « Wed Oct 17, 2012 7:49 pm
Replies: 3
by LR1234 » Tue Nov 17, 2009 4:18 pm

First post

Would be great to have a button to go to live chat. Then people online that want to talk in real time can

Last post

Thank you for the generous offer re. donating software and services to the site. However, at this time ThisIsMS already has a private messaging...

3 Replies

6169 Views

Last post by NHE
Wed Oct 17, 2012 7:49 pm
Facebook 'like' and Twitter

Last post by jimmylegs « Thu Oct 11, 2012 2:39 pm
Replies: 1
by Barry » Thu Oct 11, 2012 9:27 am

First post

I don't know if TIMS has a Facebook page or Twitter account but if you do.... I run a phpbb site too and would happily supply
the little bit of code...

Last post

good idea barry - would be good to have an fb page for sure. what do you think, NHE?

1 Replies

4203 Views

Last post by jimmylegs
Thu Oct 11, 2012 2:39 pm
1. How about just "Limbo" / 2. "Bones" forum

Last post by CuriousRobot « Fri Feb 17, 2012 7:55 am

by CuriousRobot » Fri Feb 17, 2012 7:55 am

1. Limboland sounds much like a novelty theme-park. How about just Limbo ?
2. Bones forum (semi-facetious) chiropractic + surgical interventions on...

0 Replies

4744 Views

Last post by CuriousRobot
Fri Feb 17, 2012 7:55 am
Any possibility of new forum: Hypothesis â€“ MS Not Autoimmune

Last post by lyndacarol « Sun Feb 12, 2012 1:00 pm
Replies: 9
by lyndacarol » Mon Jan 10, 2011 4:50 pm

First post

Could a forum entitled something like Hypothesis: MS is Not an Autoimmune Disease be established so that links to PDF files of full text articles by...

Last post

For #4 in my initial post to this thread or for #10 in sou's list, I propose the following article:

Researcher Contends Multiple Sclerosis Is Not A...

9 Replies

6554 Views

Last post by lyndacarol
Sun Feb 12, 2012 1:00 pm
Board topic order

Last post by NHE « Tue Dec 06, 2011 1:26 am
Replies: 1
by CureOrBust » Mon Dec 05, 2011 5:37 pm

First post

I would guess that the moderators or the site admin can configure the order of the topics/forums within the board index . People are clearly starting...

Last post

I would guess that the moderators or the site admin can configure the order of the topics/forums within the board index . People are clearly starting...

1 Replies

4253 Views

Last post by NHE
Tue Dec 06, 2011 1:26 am
A general comment

Last post by fee002 « Sun Nov 20, 2011 10:39 pm

by fee002 » Sun Nov 20, 2011 10:39 pm

Somebody suggested a Limboland board, but they dont seem to have received a response. I think its a brilliant idea...

0 Replies

4490 Views

Last post by fee002
Sun Nov 20, 2011 10:39 pm
Mobile version?

Last post by NHE « Thu Sep 15, 2011 2:36 am
Replies: 3
by WantingToKnow » Fri Jul 29, 2011 2:31 pm

First post

Hi :) I was thinking earlier, a lot of sites have mobile versions now and it would be cool to have a mobile version of this site so people could look...

Last post

Here's another possibility for anyone willing to test it out. The phpBB.com site has a demo of different themes. Please take a look at the Artodia:...

3 Replies

4399 Views

Last post by NHE
Thu Sep 15, 2011 2:36 am
"limboland "

Last post by NHE « Thu Aug 04, 2011 10:47 pm
Replies: 1
by fee001 » Thu Aug 04, 2011 2:42 am

First post

Hi!

Is there a limboland/awaiting diagnosis board.

People with indicative symptoms to ms but clear MRIs and LPs

also is there a translation of of...

Last post

Hi!

Is there a limboland/awaiting diagnosis board.

People with indicative symptoms to ms but clear MRIs and LPs

also is there a translation of of...

1 Replies

4275 Views

Last post by NHE
Thu Aug 04, 2011 10:47 pm
alternative therapies??

Last post by Daisy3 « Tue Jan 18, 2011 8:40 am
Replies: 1
by scorpion » Tue Jan 18, 2011 8:01 am

First post

Is it time for an alternative therapy section on thisisms? I can not imagine being newly diagnosed with MS and coming on this site looking for...

Last post

I think that's a really good idea. Most people want to have the option of learning about and trying out an 'alternative therapy'.
Having information...

1 Replies

4491 Views

Last post by Daisy3
Tue Jan 18, 2011 8:40 am
Add a new catagory for helmithic therapy under "treatme

Last post by Apuman « Mon Dec 27, 2010 8:08 am

by Apuman » Mon Dec 27, 2010 8:08 am

Considering the growing interest in the subject, the wide scope of information pertaining to the subject, as well as the growing number of TIMS users...

0 Replies

4312 Views

Last post by Apuman
Mon Dec 27, 2010 8:08 am
GILENYA

Last post by NHE « Wed Dec 15, 2010 4:03 am
Replies: 3
by Chilax » Fri Dec 10, 2010 8:33 am

First post

Gilenya should be added to the Treatments forum.

Last post

New forums for both Gilenya and Ampyra have been added. 8)

NHE

3 Replies

5228 Views

Last post by NHE
Wed Dec 15, 2010 4:03 am
CCSVI Info should be on the www.ThisIsMS.com home page

Last post by MegansMom « Mon Oct 18, 2010 4:10 am

by MegansMom » Mon Oct 18, 2010 4:10 am

The more I nose around www.thisisms.com and read threads other than CCSVI I realize that some MSers come to the site and zero in on their drug...

0 Replies

4487 Views

Last post by MegansMom
Mon Oct 18, 2010 4:10 am
Can we add a "Latest Posts category"

Last post by MegansMom « Sun Oct 03, 2010 7:21 am
Replies: 2
by MegansMom » Thu Sep 30, 2010 6:32 pm

First post

I belong to another forum and it looks very similar to this. I am thinking its probably the same host software, Can you add a Most recent posts...

Last post

Yes Thanks

2 Replies

4710 Views

Last post by MegansMom
Sun Oct 03, 2010 7:21 am
more Basics for a New Patient & Family.

Last post by NHE « Wed Sep 08, 2010 10:53 am
Replies: 1
by MegansMom » Wed Sep 08, 2010 5:34 am

First post

The encyclopedia needs updating with allof the medicalwords,jargon and abbreviations.

A how to get diagnosed and the MacDonald Scale and Diability...

Last post

Thanks for the suggestion. You may wish to look through the following site.

NHE

1 Replies

4463 Views

Last post by NHE
Wed Sep 08, 2010 10:53 am
subforums in ccsvi forum

Last post by NHE « Tue Jul 06, 2010 12:32 am
Replies: 1
by Frank » Mon Jul 05, 2010 12:21 pm

First post

Because of the vast count of posts and therefor to improve the accessibility I wanted to suggest to further divide the ccsvi forum in sub-forums....

Last post

Hi Frank,
Thanks for the suggestion. I agree with you that the CCSVI forum could use better organization. However, I don't believe that it would be...

1 Replies

4579 Views

Last post by NHE
Tue Jul 06, 2010 12:32 am
Separate listings for each person on CCSVI tracking

Last post by jimmylegs « Thu Jun 17, 2010 2:04 pm
Replies: 3
by smokey » Tue Jun 15, 2010 3:30 am

First post

Hi....I'd like to see a separate tracking for each person on CCSVI so we can easily see when there are updates. Thanks Smokey

Last post

no probs NHE :)

3 Replies

4690 Views

Last post by jimmylegs
Thu Jun 17, 2010 2:04 pm
Parents with MS

Last post by NHE « Sun May 02, 2010 4:45 pm
Replies: 2
by sofia » Thu Apr 29, 2010 3:57 am

First post

Could be nice to have a forum for parents with ms, and how to cope with family life. How to devide the family workload, and how to cope with the...

Last post

The new forum for parents with MS is up and running.

NHE

2 Replies

4541 Views

Last post by NHE
Sun May 02, 2010 4:45 pm
insurance & disability forum

Last post by rethink « Thu Jan 28, 2010 10:25 am
Replies: 3
by Slumby » Sun Oct 18, 2009 11:26 pm

First post

Insurance & related topics.

Last post

rethink
I'm drawing soc sec. disability. I went thru a company and they charged the most they could, because they were not in any rush to put a...

3 Replies

5238 Views

Last post by rethink
Thu Jan 28, 2010 10:25 am
Download CCSVI dossier

Last post by NHE « Sun Jan 10, 2010 8:38 pm
Replies: 1
by Algis » Sat Jan 09, 2010 12:46 am

First post

Wouldn't it be wise to have a complete download of the necessary files re.CCSVI to bring to the doctor?

The download section should contain that, no?

Last post

Wouldn't it be wise to have a complete download of the necessary files re.CCSVI to bring to the doctor?

That sounds like a great idea. Why don't...

1 Replies

4742 Views

Last post by NHE
Sun Jan 10, 2010 8:38 pm
Update the home page

Last post by Sneaky « Sat Oct 10, 2009 2:27 pm

by Sneaky » Sat Oct 10, 2009 2:27 pm

When I first started coming here, not knowing anything about MS, I did alot of reading on the front page of this site. Only to much later realize...

0 Replies

4755 Views

Last post by Sneaky
Sat Oct 10, 2009 2:27 pm
Relationship Forum

Last post by Lorin « Fri Aug 28, 2009 7:19 am
Replies: 1
by scoobyjude » Wed Nov 19, 2008 8:13 pm

First post

How about a forum on relationships? A place where the single and attached could discuss all the difficulties and joys. I think I would feel kind of...

Last post

Or how about gender-specific forums?

1 Replies

5438 Views

Last post by Lorin
Fri Aug 28, 2009 7:19 am
Help with search functions

Last post by catfreak « Sun Aug 23, 2009 4:49 pm
Replies: 2
by catfreak » Sun Aug 23, 2009 7:20 am

First post

I would like a topic that explains the basics of searching the site and forums etc...

I can never get the search to find anything. I am sure it is...

Last post

Thanks NHE,

I was using the search function on the left had side not a the top. DUH!!!

Thanks again!

Cat

2 Replies

4815 Views

Last post by catfreak
Sun Aug 23, 2009 4:49 pm
Separate forum for CCSVI?

Last post by cheerleader « Fri May 01, 2009 9:11 am
Replies: 4
by cheerleader » Sat Mar 14, 2009 6:45 am

First post

To TPTB....
The Zamboni/CCSVI thread in the general forum has become a bit unwieldy. Can we have a separate forum for it? Now that folks are going...

Last post

Thanks to NHE and Aaron for setting up a separate thread.

I wanted to mention that I mistakenly called this diagnosis CCVI when I first posted back...

4 Replies

5454 Views

Last post by cheerleader
Fri May 01, 2009 9:11 am
CCVI

Last post by chrishasms « Wed Apr 22, 2009 12:39 pm

by chrishasms » Wed Apr 22, 2009 12:39 pm

You guys need to start a separate topic forum for CCVI. It's 38 pages long and its gotten to the point anyone new to it would have no clue where to...

0 Replies

4895 Views

Last post by chrishasms
Wed Apr 22, 2009 12:39 pm
Ignore Button

Last post by Artifishual « Wed Apr 08, 2009 2:27 pm

by Artifishual » Wed Apr 08, 2009 2:27 pm

OK, some message boards have this little thing called a Ignore Button where if you really get fed up with someone like Peta Kitty , you simply go to...

0 Replies

4854 Views

Last post by Artifishual
Wed Apr 08, 2009 2:27 pm
Forum for parents with MS

Last post by jlbb « Sun Apr 05, 2009 9:22 pm
Replies: 2
by jlbb » Sat Apr 04, 2009 10:56 am

First post

Please let me know if I've missed it, but I'd like to see a forum for parents who are dealing with raising children while coping with MS symptoms...

Last post

Thanks so much for forwarding it - I've been on a couple of well populated mommy sites and asked if there are others with MS and small children, but...

2 Replies

5224 Views

Last post by jlbb
Sun Apr 05, 2009 9:22 pm
vbulletin

Last post by Artifishual « Fri Feb 20, 2009 5:53 am
Replies: 1
by Artifishual » Thu Feb 19, 2009 8:11 am

First post

:wink:

Last post

sorry, here is a link that explains vbulletin a little more in depth.

1 Replies

5513 Views

Last post by Artifishual
Fri Feb 20, 2009 5:53 am
video blog

Last post by robbie « Wed Feb 04, 2009 6:04 pm
Replies: 2
by robbie » Wed Feb 04, 2009 1:18 pm

First post

love to put a face with the members. talk about anything other than worms .

Last post

thanks NHE

2 Replies

5092 Views

Last post by robbie
Wed Feb 04, 2009 6:04 pm
LARGER FONT

Last post by CureOrBust « Tue Jan 27, 2009 3:31 pm
Replies: 2
by spiff » Tue Jan 27, 2009 11:00 am

First post

I have asked to enlarger the font on this site to no avail!!!!!!!!!!

Since I can no longer read because of MS vision problems, and so far have...

Last post

In windows internet explorer, you can go to up to 400%.

2 Replies

5154 Views

Last post by CureOrBust
Tue Jan 27, 2009 3:31 pm
Effectiveness of Treatments Survey

Last post by Waterbear « Thu Oct 02, 2008 2:30 pm
Replies: 2
by daisy » Wed Jan 31, 2007 9:49 pm

First post

Okay - so I know I am new but I stumbled on this website today. Yes it's people's subjective opinions of what is working, what's hurting and what's...

Last post

I agree that forum statistics,though not scientific by any means,would be very interesting.Another possible format for the polls from a UK MS related...

2 Replies

6181 Views

Last post by Waterbear
Thu Oct 02, 2008 2:30 pm
Rtiuxan

Last post by Artifishual « Fri Sep 26, 2008 5:18 am
Replies: 2
by Artifishual » Tue May 06, 2008 5:46 am

First post

Just a sugestion but how about place on the treatment board for Rituxan? I know there are a few here that are trying Rituxan even though it is not...

Last post

I thank you and I'm sure others will too, God Bless!!
sorry I misspelled Rituxan on the title :? :oops:

2 Replies

5555 Views

Last post by Artifishual
Fri Sep 26, 2008 5:18 am
Suggestions

Last post by Artifishual « Sun Jun 22, 2008 9:34 am
Replies: 6
by Artifishual » Mon May 19, 2008 6:44 pm

First post

I have a suggestion. Try responding to suggestions and PM's. I find it odd that no one takes time to respond to any of these suggestions. I...

Last post

Sorry, sometimes I have few drinks and post 8O , but its nice to know someone is listening, thanks :?

6 Replies

6402 Views

Last post by Artifishual
Sun Jun 22, 2008 9:34 am
Is there a central place for each user's ms history?

Last post by Nessabear « Thu May 08, 2008 12:11 am

by Nessabear » Thu May 08, 2008 12:11 am

Hi there,

I haven't been on the site for a while but am back researching Tysabri and after reading some of the forums, I felt it would be helpful to...

0 Replies

5273 Views

Last post by Nessabear
Thu May 08, 2008 12:11 am
Profile Query

Last post by NHE « Wed Apr 02, 2008 6:59 pm
Replies: 1
by ShootingStar » Wed Apr 02, 2008 12:05 pm

First post

Why can't we show the things like where we live, hobbies etc. in our profiles? Location if nothing else. It's fun to see where people are from.

Last post

Hi ShootingStar,
If you click on the profile link at the top of each page after you log into the site you should find fields for entering Location:,...

1 Replies

5546 Views

Last post by NHE
Wed Apr 02, 2008 6:59 pm
dorkus malorkus

Last post by jimmylegs « Tue Mar 25, 2008 3:14 pm

by jimmylegs » Tue Mar 25, 2008 3:14 pm

so aaron. what if some poster is just annoying. i'm not naming any names, but it starts with e and ends with c and rhymes with bee cow see

0 Replies

5297 Views

Last post by jimmylegs
Tue Mar 25, 2008 3:14 pm
search members by location

Last post by Longing4Cheese « Fri Mar 07, 2008 6:17 pm
Replies: 1
by VirtuallyFine » Fri Mar 19, 2004 5:47 pm

First post

i would love to be able to search members by location...is this a possibility?

Last post

Hi. I would like to suggest that we could have a group for regions, so that people could find others in their area with whom to share information. I...

1 Replies

6336 Views

Last post by Longing4Cheese
Fri Mar 07, 2008 6:17 pm

New Topic

72 topics

Return to Board Index

Forum permissions

You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum