*delete*

[RD1000]

Hey everyone, thanks for the help with my anxiety!

[jimmylegs]

if you feel the strange sensation mostly when bending your neck, it sounds like l'hermitte's. and that means an active cervical spinal lesion. if you have a b12 history this can be causal. a big differential dx prior to deciding on ms. you may want to check into 1) reasons for your low b12 and 2) other known 'lows' in ms besides b12. interconnections are key, you can't necessarily nail it on one thing. pm me if you don't already know the usual suspects, and want to know.

[RD1000]

Yes!

[jimmylegs]

hi rob, if you're veggie, low b12 is pretty typical and it can cause spinal cord damage - thoracic and cervical lesions are the classic pattern. the cervical ones cause l'hermittes sign, odd feelings in various parts of the body when you move the neck. if that is what it is, it would mean you'd have active spinal cord damage. also, veggies will probably have low zinc levels. if that's the case, your liver wouldn't be able to properly convert ammonia byproducts from eating food, into urea, which is why you'd probably also have low uric acid, also typical in ms. AND i have not heard of any dietary sources of d3 that were not animal based. so that will be down too. i mean it's down in meat-eaters anyway, so veggies would probably just be that little bit worse off. unless you get tons of sun.
by the way if you did not already know this, you're talking to an EX-15-year vegan.

[RD1000]

hi rob, if you're veggie, low b12 is pretty typical and it can cause spinal cord damage - thoracic and cervical lesions are the classic pattern. the cervical ones cause l'hermittes sign, odd feelings in various parts of the body when you move the neck. if that is what it is, it would mean you'd have active spinal cord damage. also, veggies will probably have low zinc levels. if that's the case, your liver wouldn't be able to properly convert ammonia byproducts from eating food, into urea, which is why you'd probably also have low uric acid, also typical in ms. AND i have not heard of any dietary sources of d3 that were not animal based. so that will be down too. i mean it's down in meat-eaters anyway, so veggies would probably just be that little bit worse off. unless you get tons of sun.
by the way if you did not already know this, you're talking to an EX-15-year vegan.

Thanks again, Jimmy. I have an appointment with my doctor again, I had seen her to discuss this and she didn't think it was anything serious, and did not think it was MS as I haven't had any other symptoms, but I don't entirely trust her or think she's taking me seriously.

If it was a B12 deficiency that was causing this, a cervical lesion for instance, is there anything that can be done aside from taking B injections? I've had 4 injections now over 5 weeks and although things have not gone away entirely, it has been changing as I noted in my first post.

I have no idea what the time-frame is with B injections and nerve-damage repair, or if a cervical lesion from low-B12 would even heal?

Thanks again for your insight, I guess the only way to know for sure is to end up getting an MRI.

[jimmylegs]

i found once my levels were down enough for me to feel b12 deficiency, that a bunch of other things were down also.

you probably will want to get a bunch of bloodwork done and get a clear picture of your biochemistry.

i'd say for starters, while you're still flying relatively blind, the rest of the b complex. b100-complex is good for starters, plus a high potency multivitamin/multimineral.

the bloodwork can point out the rest, and then you can figure out some next steps.

[Absentee]

JL -
you say that L'Hermitte's is a sign of an active lesion. I could not find that mentioned in any of the regular MS sources. Is this an assumption or am I missing it it my searches?

[NHE]

L'Hermittes sign is commonly associated with MS but it can have other causes.

In MS, L'Hermitte's is an indicator of lesions in the cervical spine (the part of spine in the neck). Movement of the neck causes the damaged nerves (the demyelinated neurons) to be stretched and send erroneous signals. The symptoms can occur anywhere below the neck and many people with MS find that it moves around their body from one day to the next.

L'Hermitte's is associated with a number of conditions including arthritis, cervical spondylosis, disc compression, pernicious anaemia, tumours and multiple sclerosis. In many cases, the cause cannot be found.

NHE

[jimmylegs]

it's definitely part of the pre-MRI assessment of lesions, absentee. i had it when i was diagnosed and i had a cervical lesion show up on MRI too. my lesion is no longer active and i don't have any more l'hermitte's symptoms.