Did Stanford cancel it's study?

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.
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catfreak
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Post by catfreak »

Hi John (jerkbutt),

I miss Holly and I never even got to meet her. She was the Chuck Yeager of MS and we all loved her.

Take care of yourself.

Cat
Holly - Shine On You Crazy Diamond - Pink Floyd

9/3/09 Stanford - Dr Dake - Stent in R-J to unblock Arachnoid Cyst in Sigmoid Sinus. Stent in narrowed L-J. Balloon in narrowing where R & L Jugulars meet.
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rettahb
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Post by rettahb »

"Posted: Thu Apr 01, 2010 8:50 pm Post subject:
Dudes... rumors be gone
I spoke with Dr. Dake last week, the study is on. He's getting all the ducks in a row, and is quite excited. He has already selected the people to be involved, and is not recruiting."

Has Dr. Dake already got ahold of the people for the study? I was still very hopeful I would be a part of this having talked with Dr. Dake in October and then the whole termination of patient procedures happened.
~retta
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ozarkcanoer
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Post by ozarkcanoer »

jerkbutt,

I did not join this board until October 2009, so I never met Holly. I am very sorry for your loss. I understand how desperate she must have been for relief from her MS symptoms. And I appreciate that you are still supporting her and the rest of us here on TIMS even after the tragedy of her death. Your anger that people are using her death to fight against CCSVI is justified. I hope you find some peace and happiness along with fond memories of Holly as time goes by. Remember we are here and watch us fight just like Holly did.

ozarkcanoer
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