Today is a reward, 5 1/2 months post surgery
- Katie41
- Family Elder
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- Joined: Sat Dec 05, 2009 3:00 pm
- Location: Southern California
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Rhonda,
What a wonderful day for you, your family, your TIMS family, and CCSVI! I'm so happy for you! It is especially nice to hear such positive news in light of some of the other news, today. Send it out to any newspapers in your area, someone will pick it up. Call or e-mail your radio and T.V. stations, too. Try to get it to the person in charge of Human Interest stories. If they won't pick it up, they will know who might.
Best of luck as you emerge as a particularly good spokesperson speaking from the heart.
Katie41
What a wonderful day for you, your family, your TIMS family, and CCSVI! I'm so happy for you! It is especially nice to hear such positive news in light of some of the other news, today. Send it out to any newspapers in your area, someone will pick it up. Call or e-mail your radio and T.V. stations, too. Try to get it to the person in charge of Human Interest stories. If they won't pick it up, they will know who might.
Best of luck as you emerge as a particularly good spokesperson speaking from the heart.
Katie41
Thanks Rhonda, you just made my day.
I am very near to having the procedure (poland april 27th) and getting more nervous every day. But when I read your post I know that this is what I am hoping for, why I am doing it.
To be able to spend a great day with my sons (twins,9) and my husband and not having to think about MS. Not that I would go kayaking...hey, you can't expect too much! Lol
I am very near to having the procedure (poland april 27th) and getting more nervous every day. But when I read your post I know that this is what I am hoping for, why I am doing it.
To be able to spend a great day with my sons (twins,9) and my husband and not having to think about MS. Not that I would go kayaking...hey, you can't expect too much! Lol
- ClaireParry
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- Location: Worcestershire, U.K
- Badger
- Family Elder
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- Joined: Mon Dec 14, 2009 3:00 pm
- Location: Glasgow, Scotland
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XXXXX
I am so happy for you!!! Congratulations.xxx
I had my surgery only 2 weeks ago so your posting gives me nothing but confidence in believing I will beat this.
I had my surgery only 2 weeks ago so your posting gives me nothing but confidence in believing I will beat this.

<em>Badger
RRMS 2004</em>
Appt Katowice 23/24th March
RRMS 2004</em>
Appt Katowice 23/24th March
Thank you all so much
I hope the future brings all of us a life without MS. With so much happening right now, (we seem to be in the thick of trying to figure out the many sides of CCSVI) it would be easy to feel some fear and doubt. When I began learning about CCSVI, hearing the stories of other's successes kept my faith admist the skepticism and doubt. This finding by Dr. Zamboni is nothing short of a miracle for us and with the brilliant doctors now researching and treating CCSVI we will have our answers. I see a very bright future for all of us!

Rhonda~
Treated by Dake 10/19/09, McGuckin 4/25/11 and 3/9/12- blockages in both IJVs, azy, L-iliac, L-renal veins. CCSVI changed my life and disease.
Treated by Dake 10/19/09, McGuckin 4/25/11 and 3/9/12- blockages in both IJVs, azy, L-iliac, L-renal veins. CCSVI changed my life and disease.
- tipsyturtle
- Family Member
- Posts: 56
- Joined: Sun Nov 29, 2009 3:00 pm
- Location: Canada
What an inspiring post..thank you so much...as I am here at the beginning of my adventure 17 days after liberation and I feel like a car engine that is spurting into life, one minute I am light and everything is functioning almost normally and the next minute I am back to staggering around between the furniture, but I know that changes are happening and because of your wonderful reply to my earlier post (home from Poland) I am being kind to myself and letting go and just letting be.
You are truly an inspiration! Well done to you
JO xx
You are truly an inspiration! Well done to you

Simply brilliant, thank you so much for sharing! I'm sure more good things are to come for you
Mutley goes to Poland 1st symptom was Optic Neuritis in 1998, DX RRMS Jan 2001, DX SPMS 2007. Last EDSS by doctor 7.5