CCSVI in Bulgaria

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.
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Niceflow
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Post by Niceflow »

Hi Anna,

Nice to meet you ! Thanks for your reply. You just mentioned in another thread on this forum that there is a newspaper article in Bulgaria about Bulagrian patients already having the treatment and successfully.. could somebody find us a link to that newspaper or article? That would be encouraging :)
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Villagemaid
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Post by Villagemaid »

I just got my email from Dr. Grozdinski stating I am scheduled for someitme in October or November.

YAY!!!!!!

I hope that others (from Canada) will post their experiences on here about treatment in Bulgaria...where they stayed.....any helpful information.

I sincerely thank everyone who has gone before me in this amaing journey.

:D -VM-
35 (f) dx'd since July 2000 RRMS
Treated in Bulgaria on September 8 2010
80 percent narrowed RJV and 90 percent narrowed Azygos
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SofiaK
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Stent

Post by SofiaK »

I hope there's someone that can please, please offer some clues/answers.
I'm very concerned about getting the alloy stent placed in my veins if needed. A foreign substance. I'm so worried because I'm so sensiitive.

Has anyone here had stents placed? How long ago has this been done and how are you now??

Thank you for any help! :D
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Jaguar
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Post by Jaguar »

I had a huge surprise yesterday - I received a phone call from Euromedic Poland. They had a cancellation. I had been on the wait list since December and had already gone ahead with an appointment in June in Bulgaria.

I have now cancelled Bulgaria, and my flights, and will be in Katowice next Wednesday - talk about unexpected.

I am very happy to be going to see Drs Simka/Ludyga, although I had come to have complete faith in the Bulgarian system and was looking forward to seeing Sofia!

For those of you waiting, the appointment I have cancelled is on June 7 at Tokuda.
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Villagemaid
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Post by Villagemaid »

I'm sure there will be a TON of these kind of things happeneing as most people (myself included) are on two waiting lists - seems like we will take whatever one comes quicker!!

Take care and GOOD LUCK...all the best!

-VM-
35 (f) dx'd since July 2000 RRMS
Treated in Bulgaria on September 8 2010
80 percent narrowed RJV and 90 percent narrowed Azygos
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Villagemaid
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Post by Villagemaid »

But it also makes me hopeful that I will get into Poland......argh......this is frustrating...lol....
35 (f) dx'd since July 2000 RRMS
Treated in Bulgaria on September 8 2010
80 percent narrowed RJV and 90 percent narrowed Azygos
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ven
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ccsvi

Post by ven »

TindraSweden wrote:Hello everyone :lol:
I'm from Sweden and I go to Bulgaria on 27th of April. I'm looking forward to finally find out if I have some problem with my veins. I'm curious if someone of you are going to be there at the same time as me?
If you are it will be nice to know for fun. Maybe we meet there and we can change some expirience with each other.
TindraSweden :roll:

hello
WISH YOU BEST OF LUCK AM GOING TO BE THERE IN MAY...PLS LET ME KNOW HOW THINGS GO:)
GOOD LUCK
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TindraSweden
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Re: ccsvi

Post by TindraSweden »

ven wrote:
TindraSweden wrote:Hello everyone :lol:
I'm from Sweden and I go to Bulgaria on 27th of April. I'm looking forward to finally find out if I have some problem with my veins. I'm curious if someone of you are going to be there at the same time as me?
If you are it will be nice to know for fun. Maybe we meet there and we can change some expirience with each other.
TindraSweden :roll:

hello
WISH YOU BEST OF LUCK AM GOING TO BE THERE IN MAY...PLS LET ME KNOW HOW THINGS GO:)
GOOD LUCK
Hi!
Thank You, it is not many days left now...I will try to tell as soon as i can :) Good Luck You Tooooo! 8O :lol:
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pinksapphire
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Post by pinksapphire »

TindraSweden!!!!
I'll be there that day. My appointment is for the next day. We spoke throughemail : )) Our days are less than 2 weeks away!!! Do you have FB maybe you can add me Karla Biron-Tuck
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ven
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ccsvi

Post by ven »

'
pinksapphire wrote:TindraSweden!!!!
I'll be there that day. My appointment is for the next day. We spoke throughemail : )) Our days are less than 2 weeks away!!! Do you have FB maybe you an add me Karla Biron-Tuck
GOOD LUCK :)
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pinksapphire
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Post by pinksapphire »

Thank you so much Ven!!!! My heart is pounding now :D
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pinksapphire
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Post by pinksapphire »

Thank you so much Ven!!!! My heart is pounding now :D
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ven
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Post by ven »

pinksapphire wrote:Thank you so much Ven!!!! My heart is pounding now :D
I understand you cause i have to go in may and already am exited :)
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sofia
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Post by sofia »

I think the reason the examination in Bulgaria is so relativly expencive is because the use venogram to diagnose, the gold standard described by Zamboni.

Examination with venogram is, examination with venogram is in itself an "operation"/procedure, and they will preforme the corrective surgery at the time of the examination if they find a stenosis.

This might have been answerd before. Well I am having it done, and I am very excited about it :D
Good luck to all of us, lets stay in touch!
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caraboo
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ccsvi bulgaria

Post by caraboo »

Hi sophie,


When do you go in may? I arrive 31st May hospital on the 1st June.


best of luck
caraboo
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