CCSVI in Bulgaria
Thank you for your post and your update. Hope your mother-in-law is doing well after her procedure.
As soon as I got the apointment I started researching the hosptal, and my impression is exactly what you are describing; a modern state of the art medical facility, with well qualified staff. And I'm sertain we will all be in the best of hands. I trust them to use the apropriate stents, and if I should have stenosis anywhere its not ideal to stent, I trust them to leave it be. Who am I to argue with an experienced surgeon! After all he has the PhD, not me.
As soon as I got the apointment I started researching the hosptal, and my impression is exactly what you are describing; a modern state of the art medical facility, with well qualified staff. And I'm sertain we will all be in the best of hands. I trust them to use the apropriate stents, and if I should have stenosis anywhere its not ideal to stent, I trust them to leave it be. Who am I to argue with an experienced surgeon! After all he has the PhD, not me.
<div>I have lived with ms for 8 years. The last year has been hell, I've gone from shite to even worse every single month, until my liberation in May. </div>
ccsvi bulgaria
Hi,
When I click on pinksapphires link to her facebook I'm asked to log in,which I do but then it just goes to my home page. Can anyone tell me how to do it?
Thanks,
Slody.
When I click on pinksapphires link to her facebook I'm asked to log in,which I do but then it just goes to my home page. Can anyone tell me how to do it?
Thanks,
Slody.
http://www.facebook.com/home.php?#!/pro ... =530716100
try copying and pasting the whole thing and it should work. I did the same thing as you first time
try copying and pasting the whole thing and it should work. I did the same thing as you first time

- Algis
- Family Elder
- Posts: 829
- Joined: Sat Nov 21, 2009 3:00 pm
- Location: XinYi District, Taipei City, , Taiwan
copy the whole
http://www.facebook.com/home.php?#!/pro ... =530716100
in your browser location and hit enter
(it stop at the "!" in the URL)
http://www.facebook.com/home.php?#!/pro ... =530716100
in your browser location and hit enter
(it stop at the "!" in the URL)
Try this folks...
http://www.facebook.com/profile.php?id=530716100
BTW: Any updates from anyone after visiting Bulgaria?
http://www.facebook.com/profile.php?id=530716100
BTW: Any updates from anyone after visiting Bulgaria?
If I'm not mistaken colapesce, and costumenastional are in Bulgaria now. It will be exciting to hear from them.
pinksapphire has allready had her procedure done, and from what I've read so far, she seems to be happy with both the hospital and the results of procedure.
Have to check in on here many times a day, to see if there is any updates, any happy stories and good results.
This time next week, Ill be in Tokuda hospital waiting for my tests and procedure.
pinksapphire has allready had her procedure done, and from what I've read so far, she seems to be happy with both the hospital and the results of procedure.
Have to check in on here many times a day, to see if there is any updates, any happy stories and good results.
This time next week, Ill be in Tokuda hospital waiting for my tests and procedure.
<div>I have lived with ms for 8 years. The last year has been hell, I've gone from shite to even worse every single month, until my liberation in May. </div>
- costumenastional
- Family Elder
- Posts: 743
- Joined: Sat Jan 31, 2009 3:00 pm
- Location: Greece
- Contact:
Hi all.
I have had the operation yesterday. They found 2 blockages in my left jug and a mild one (30 %) in my right one. They also found a blockage in my asygos. Sorry for the spelling, slovenian keybord.
They used only balloons. I ll let you know of all details soon.
I do not feel any better or worse. I feel exactly as i was before the operation.
I hope i ll see a difference in the future...
2 ppms patients were found to have severe asygos stenoses and stents were placed in order to keep them open.
Anyway, i must admit that the outcome didnt meet my high expectations for instant relief. I am glad i fixed my blockages of course but i really dont know what to expect at the moment.
One last interesting thing. Grosdinki performed a doppler on me just before the operation. He told me that he could see critical blockages in both my jugs. This was the same i was told in Greece before i came here.
The flebography didnćt show the same outcome, There were stenoses in my left jug but from what i could tell looking at the monitor, not so critical. In my right jug things were smooth with only 30 percent stenosis. The ineresting part is that after left jug and asy angioplasty the doppler today showed that both my jugs are 5mms instead of one that they were before. I asked him how come there is such a difference in my right jug even though the balloning wasnt even necessery. He told me that there is a possibility that the asygos balloning may have something to do with it. They dont know how all these may interact with each other.
I ll have to come back in Sofia in 6 months time and i ll be on anticoogulants until then.
Sorry for the grey news. I wish i felt better to share with all of you but i dont. Talk soon cause this laptop is not mine.
ps. they are good at what they are doing here.
I have had the operation yesterday. They found 2 blockages in my left jug and a mild one (30 %) in my right one. They also found a blockage in my asygos. Sorry for the spelling, slovenian keybord.
They used only balloons. I ll let you know of all details soon.
I do not feel any better or worse. I feel exactly as i was before the operation.
I hope i ll see a difference in the future...
2 ppms patients were found to have severe asygos stenoses and stents were placed in order to keep them open.
Anyway, i must admit that the outcome didnt meet my high expectations for instant relief. I am glad i fixed my blockages of course but i really dont know what to expect at the moment.
One last interesting thing. Grosdinki performed a doppler on me just before the operation. He told me that he could see critical blockages in both my jugs. This was the same i was told in Greece before i came here.
The flebography didnćt show the same outcome, There were stenoses in my left jug but from what i could tell looking at the monitor, not so critical. In my right jug things were smooth with only 30 percent stenosis. The ineresting part is that after left jug and asy angioplasty the doppler today showed that both my jugs are 5mms instead of one that they were before. I asked him how come there is such a difference in my right jug even though the balloning wasnt even necessery. He told me that there is a possibility that the asygos balloning may have something to do with it. They dont know how all these may interact with each other.
I ll have to come back in Sofia in 6 months time and i ll be on anticoogulants until then.
Sorry for the grey news. I wish i felt better to share with all of you but i dont. Talk soon cause this laptop is not mine.
ps. they are good at what they are doing here.
And ten minutes later there was an update 
Thank you for that.
Sorry to hear about your disapointment, when it came to emediate benefits. Now only time wil tell, if it was really worth it for you. Patients have reported a gradual improvment as well as imediate results, so fingers crossed for you!
Again thanks for letting us know. Hopefully the other patients will post on here ith their results as well.

Thank you for that.
Sorry to hear about your disapointment, when it came to emediate benefits. Now only time wil tell, if it was really worth it for you. Patients have reported a gradual improvment as well as imediate results, so fingers crossed for you!
Again thanks for letting us know. Hopefully the other patients will post on here ith their results as well.
<div>I have lived with ms for 8 years. The last year has been hell, I've gone from shite to even worse every single month, until my liberation in May. </div>
- costumenastional
- Family Elder
- Posts: 743
- Joined: Sat Jan 31, 2009 3:00 pm
- Location: Greece
- Contact:
i am in room 611 in the 6th floor cardiology dpt. i ll be around for a couple of days. just ask for Spiros. all nurses know me here ;)
btw, i d also like to let you know that they will stent only if needed.
from what i hear from other patients (we are quite a few) they were trying many times to inflate the balloons without success prior to stenting.
the stents they use are most often self expandable.
btw, i d also like to let you know that they will stent only if needed.
from what i hear from other patients (we are quite a few) they were trying many times to inflate the balloons without success prior to stenting.
the stents they use are most often self expandable.
Costumenastional, you said:
"2 ppms patients were found to have severe asygos stenoses and stents were placed in order to keep them open. "
Is it possible to keep in touch with these two patients to see how their situation will evolve in the near future? Do they speak English.. I am very interested in contacting them if they are willing. Thanks for your help.
"2 ppms patients were found to have severe asygos stenoses and stents were placed in order to keep them open. "
Is it possible to keep in touch with these two patients to see how their situation will evolve in the near future? Do they speak English.. I am very interested in contacting them if they are willing. Thanks for your help.