Poland W/C Monday May 3rd - anyone going?

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.
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Mutley
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Post by Mutley »

mags4short wrote: Let me know if you will be around on Tuesday or Wednesday eve. You are going back on the Friday I think?
Mags
Hi Mags,

I should be out of Euromedic by Wednesday afternoon so as long as I'm not feeling too sorry for myself then I'm sure I can manage a trip to the Sky Bar.

Not long now....
Last edited by Mutley on Thu Apr 29, 2010 11:49 pm, edited 1 time in total.
Mutley goes to Poland 1st symptom was Optic Neuritis in 1998, DX RRMS Jan 2001, DX SPMS 2007. Last EDSS by doctor 7.5
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Mutley
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Post by Mutley »

crocky wrote:Just to wish you all Mutley, Sunlounger. Mags, Fiddler et al, all the very very best for your procedures.
I'm about 20 days after mine now, a little disappointed with the result so far, but things are changing, so I am still optimistic.
I feel much better in myself now - I use to feel sick and flu ish all the time - unfortunately I still suffer from fatigue - wishing it would go away, but it was really really bad, so reckon it's going to take some time.
I still really believe in this stuff - (I'm sp ms and have to use a wheelchair outside the house due to fatigue).
I wish you a great stay and lasting results!a
Suzanne
Hi Suzanne,

Thank you so much for the good wishes. Sorry to hear that you are feeling a little disappointed with your results though. Like you say, it may take time for things to iron themselves out, but rest assured that we’re all sending you our positive thoughts.

All the best!
Mutley goes to Poland 1st symptom was Optic Neuritis in 1998, DX RRMS Jan 2001, DX SPMS 2007. Last EDSS by doctor 7.5
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esta
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mutley, mags and sunlounger

Post by esta »

Hi all
we are in there May 4 to May 9. So we'll all get together somehow IM sure... we should wear little hello my name is sticky signs almost... we are leaving in two days much too excited to find the little stick ons, but the idea was good see you all there!!!!!!!!!!!!!!!!!!
esta
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mags4short
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Post by mags4short »

Looking forward to meeting you Esta. Will a pink carnation do as I can't remember my own name half the time :)

See you there, and good luck

Mags xx
Alone we can do so little, together we can do so much :)
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mags4short
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Post by mags4short »

crocky wrote:Just to wish you all Mutley, Sunlounger. Mags, Fiddler et al, all the very very best for your procedures.
I'm about 20 days after mine now, a little disappointed with the result so far, but things are changing, so I am still optimistic.
I feel much better in myself now - I use to feel sick and flu ish all the time - unfortunately I still suffer from fatigue - wishing it would go away, but it was really really bad, so reckon it's going to take some time.
I still really believe in this stuff - (I'm sp ms and have to use a wheelchair outside the house due to fatigue).
I wish you a great stay and lasting results!a
Suzanne
Thanks Suzanne,

I hope that your recovery involves a further reduction in the fatigue very soon and that your optimism never diminishes ;)

Take care,
Mags x
Alone we can do so little, together we can do so much :)
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mags4short
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Post by mags4short »

Mutley wrote:
mags4short wrote: Let me know if you will be around on Tuesday or Wednesday eve. You are going back on the Friday I think?
Mags
Hi Mags,

I should be out of Euromedic by Wednesday afternoon so as longs as I'm not feeling too sorry for myself then I'm sure I can manage a trip to the Sky Bar.

Not long now....
OK Mutley,

Hope all goes well on Wednesday and you are able to make it to the bar. If you are still feeling sorry for yourself come anyway it might just help :)

All the very best and fingers crossed for Wednesday.

Mags x
Alone we can do so little, together we can do so much :)
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sunlounger
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Post by sunlounger »

thanks Suzanne I was sorry to hear you've not had much improvements,
especially with that dreaded fatigue :(
hope this will changing for you in time

goodluck mutley,mags and esta look forward to maybe bumping into you next week,
ha ha yes we should get name badges with are TIMS and real names

fingers crossed :D
You might find that you’re not lost
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edi
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Post by edi »

Hi Mutley!
Can you tell us, how are you? are you after your procedure?
Did you get a stent?
I still keep my fingers crossed for you!

Best wishes
Ania
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