babiezuique in poland 22 june
- babiezuique
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- Location: Montreal
babiezuique in poland 22 june
I received i message from poland today, they offered me to go six month before.... I was on their list for January 2011.
They proposed me to go on the 22 of june;)
They proposed me to go on the 22 of june;)
- fiddler
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Getting in early?
Great news, Babiezuique. I think people would like to know how you got in early... did you tell them that you were ready to come on short notice?
...Ted
...Ted
Dx SPMS in 2004. Liberated 29/04/2010.
My blog: www.my-darn-ms.blogspot.com
My blog: www.my-darn-ms.blogspot.com
- Habenoughyet
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Not sure if they decided to setup schedules geographically, I got the same e-mail as babiezuique, and I'm from Montreal as well, 21th and 22th of June, oh and a please respond by the 20th of May, tomorrow... Not much time to set things up IMO.
BTW, how are you feeling since the "liberation" fiddler?
HEY
BTW, how are you feeling since the "liberation" fiddler?
HEY
"Never argue with stupid people... They bring you down to they're level and beat you with experience"
- fiddler
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Feeling better
Hi Hab,
I've had a few improvements over the last few days... better balance, better walking, a little better manual dexterity and more energy. It's going to be a long healing process and I don't know how far it'll go, but it seems that even us SPMSers can hope for some real improvements, not just an arrested progress of the disease.
When were you originally scheduled to go? And you didn't indicate that you would be willing to go on short notice? Some MSers following my blog would certainly be interested in your answers since they are scheduled for 2012.
...Ted
I've had a few improvements over the last few days... better balance, better walking, a little better manual dexterity and more energy. It's going to be a long healing process and I don't know how far it'll go, but it seems that even us SPMSers can hope for some real improvements, not just an arrested progress of the disease.
When were you originally scheduled to go? And you didn't indicate that you would be willing to go on short notice? Some MSers following my blog would certainly be interested in your answers since they are scheduled for 2012.
...Ted
Dx SPMS in 2004. Liberated 29/04/2010.
My blog: www.my-darn-ms.blogspot.com
My blog: www.my-darn-ms.blogspot.com
- Habenoughyet
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Well, I'm a PPMSer, and I never received any message since I sent my request, which was in late december, I simply went from one clinic to the next making requests, and my wife finally got the email this morning from Dr. Simka's group... I figure, hey, this is Dr. Simka's clinic, might as well go for it.
But, I think a few bailed out and they decided to look for replacements. Found it strange that the week before us, there are two people, that we know of, from Toronto being liberated... Coincidence??? Not sure... Maybe they plan on liberating Canada, city by city, before the feds cave-in and offer it to everybody...
HEY
PS. Good stuff on your improvements... Hope to join you
But, I think a few bailed out and they decided to look for replacements. Found it strange that the week before us, there are two people, that we know of, from Toronto being liberated... Coincidence??? Not sure... Maybe they plan on liberating Canada, city by city, before the feds cave-in and offer it to everybody...

HEY
PS. Good stuff on your improvements... Hope to join you

"Never argue with stupid people... They bring you down to they're level and beat you with experience"
- fiddler
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Not a coincidence
I don't know about your particular situation, but it sounds like there are lots of Canadians in almost every cohort going through... one British lady undergoing liberation complained that she would have a Canadian accent by the time she got back home!
Lots of MS here, and not much real movement in the medical community to do something about it.
Good luck with your trip. Pray to the volcano gods.
...Ted

Good luck with your trip. Pray to the volcano gods.
...Ted
Dx SPMS in 2004. Liberated 29/04/2010.
My blog: www.my-darn-ms.blogspot.com
My blog: www.my-darn-ms.blogspot.com
T'es pas GAME !!!
Good luck, I'm anxious for you. Any place for me at the same time?
Marc
Marc
- babiezuique
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- Habenoughyet
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Oui babiezuique, je suis bilingue. Voici l'extrait du e-mail que j'ai recu:babiezuique wrote:I would like to know,
1- what exact letter you received
2-how did you manage to pay from here...
do you speak french?
Barbara
"Dear Sir,
You've been put on a CCSVI treatment waiting list by dr Simka.
The treatment is possible earlier - it can possibly take place on 21st and 22nd June.
Are you interested in those dates ? Please let us know until Thursday 20th May.
IMPORTANT : Please inform us about your TELEPHONE NUMBER and wheather you'll
need WHEELCHAIR ADJUSTED accommodation.
Kind regards,
--
Marta Cichy
Patient Coordinator
Euromedic Poland
www.euromedicpoland.com
0048 32 603 02 31"
I assume that this is what you also received, and I received the price and procedure, and how to pay. I haven't payed yet and I asked for an extension in order to free up the funds, being on such short notice. But, essentially that was what I had gotten, and I never received any other e-mail response before this...
HEY
"Never argue with stupid people... They bring you down to they're level and beat you with experience"
- Habenoughyet
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Hi Jaguar,
Yes, I might actually take you up on that...
Wouldn't mind getting some tips from Poland. And maybe if Babiezuique would like to join us, seeing that I unpurposely "highjacked" her thread... Sorry
... A get together before liberation!
HEY
Yes, I might actually take you up on that...

Wouldn't mind getting some tips from Poland. And maybe if Babiezuique would like to join us, seeing that I unpurposely "highjacked" her thread... Sorry

... A get together before liberation!

HEY
"Never argue with stupid people... They bring you down to they're level and beat you with experience"