CCSVI in Bulgaria

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.
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72DEMON416
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Post by 72DEMON416 »

pinksapphire wrote:Hey everyone. Just thought I'd post my Blog again if anyone wants more info on Bulgaria. You can never have enough info. I know I couldn't get enough before I went : ))


http://mymsliberationprocedure.blogspot.com/
Thanks very much for sharing- it is a good read!
I feel a little mor confident about this whole deal now.

Rick
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ven
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ccsvi

Post by ven »

hyyy
i need help pls..i did d ccsvi last week i bought the pills from bulg hosptal dand now am seeing that i have detralex for 6mon is that right or for 1month we have to take it any help plssssssssssssssssssss
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burg
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Post by burg »

I am going to be there June 7.
Anyone have advice to use my scooter, or have them take me in a wheelchair? Here in the US, you can ride yourself to the plane, and they load the scooter at the gate with the strollers. Then, when you land, it's waiting at the gate. I'm not sure how they would handle internationally. I'm going either Air France or Lufthansa.
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whyRwehere
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Post by whyRwehere »

From my husband's last experience landing in Paris, I would suggest taking LH. There was no organization for him being met with a wheelchair and it was a long walk, with a bus ride from the plane, ugh.
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RobSandra
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Post by RobSandra »

Question for those whom have been to Sofia already? Is bringing Euro's sufficient or do you recommend both Euro and Bulgarian Lev currency? I was just going to get Euro's but thought I better check with some of you to get your suggestions?
thanks
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RobSandra
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Post by RobSandra »

Got my answer from AK -thanks very much.
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pmouse
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Post by pmouse »

RobSandra wrote:Question for those whom have been to Sofia already? Is bringing Euro's sufficient or do you recommend both Euro and Bulgarian Lev currency? I was just going to get Euro's but thought I better check with some of you to get your suggestions?
thanks
EURO is sufficient. There is Tokuda bank inside hospital so if you need some LEV (snack, water, meals) you can easy change EUR to LEV (1 EUR is 2 LEV).
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colapesce
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Post by colapesce »

hi ven
re Detralex - it should be written on your epicrisis that they give to you before leaving Tokuda. I take it twice per day for 6 months

On MINE it looks like this
Plavix 75 mg / дневно за 3 месеца.
Аspirin 100 mg / дневно за 6 месеца
Daflon 2 х 1 за 6 месеца

Plavix 75mg daily for 3 months
Aspirin 100mg daily for 6 months
Daflon (Detralex) 1 tablet, twice per day, for 6 months

Check yours carefully though as I don't know whether we all get prescribed the same thing :)
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ven
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Post by ven »

colapesce wrote:hi ven
re Detralex - it should be written on your epicrisis that they give to you before leaving Tokuda. I take it twice per day for 6 months

On MINE it looks like this
Plavix 75 mg / дневно за 3 месеца.
Аspirin 100 mg / дневно за 6 месеца
Daflon 2 х 1 за 6 месеца

Plavix 75mg daily for 3 months
Aspirin 100mg daily for 6 months
Daflon (Detralex) 1 tablet, twice per day, for 6 months

Check yours carefully though as I don't know whether we all get prescribed the same thing :)
thanks a lot have to take them the same as u..tks for your kindness help..
are you going again in 6months pls?
tks a lot
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Villagemaid
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Post by Villagemaid »

Yay!!! I got my date at Tokuda Hospital!

It is September 8th. So relieved and happy!
35 (f) dx'd since July 2000 RRMS
Treated in Bulgaria on September 8 2010
80 percent narrowed RJV and 90 percent narrowed Azygos
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Taps
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Post by Taps »

Villagemaid wrote:Yay!!! I got my date at Tokuda Hospital!

It is September 8th. So relieved and happy!
Awesome!!!

Time for you to get your travel arrangements ready... :)
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ven
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Post by ven »

72DEMON416 wrote:
pinksapphire wrote:Hey everyone. Just thought I'd post my Blog again if anyone wants more info on Bulgaria. You can never have enough info. I know I couldn't get enough before I went : ))


http://mymsliberationprocedure.blogspot.com/
Thanks very much for sharing- it is a good read!
I feel a little mor confident about this whole deal now.

Rick
hey
am very happy for you!!
I would like to asl i made the procedure week ago my back pain is much better but still am not walking a lot tomorrow am stating pysco therpy any suggestion fro, your side plss
dr in sofia told me it worked 100% and have month recverey i cant wait to walk good without holding :)
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Villagemaid
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Post by Villagemaid »

Thanks!

Wow...travel arrangements.....
35 (f) dx'd since July 2000 RRMS
Treated in Bulgaria on September 8 2010
80 percent narrowed RJV and 90 percent narrowed Azygos
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Daisy3
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Post by Daisy3 »

Villagemaid wrote:Thanks!

Wow...travel arrangements.....
Tokuda hospital? where is that?
We have been offered a space in July by Dr Petrov.

Bit nervous as we don't know what to expect..it might be nothing, it might be something..
Also, to the guys who have already been, how was the healthcare teams english or french? What if we cannot communicate?!!
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Niceflow
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metal implant

Post by Niceflow »

Hello, I was told by a European hospital that any metal implant in the body may interfere with the MRI or it could be even dangerous. I would like to ask those who have been already there to give us some information about this issue.

I do have a permanent dental bridge, and I guess there is metal in it (I will have to check with my dentist) and am wondering if this would be a major obstacle for me going through the tests. Thanks.
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