..today, tomorrow and each day thereafter .. pick up the phone, click send, mail a letter..!!
"I am a Canadian. My name is _______ and as a Canadian I have a right to, and demand, diagnosis and treatment for any and all health issues regardless of pre-existing conditions. Chronic Cerebro-Spinal Venous Insufficiency is a treatable health issue. Denying persons with Multiple Sclerosis diagnosis and treatment is prejudicial and unethical."
Minister of Health Canada e-mail contact info:
http://www.hc-sc.gc.ca/contact/ahc-asc/minist-eng.php
Minister of Health Canada postal mailing address:
The Honourable Leona Aglukkaq, P.C., M.P.
Health Canada
Brooke Claxton Building, Tunney's Pasture
Postal Locator: 0906C
Ottawa, Ontario K1A 0K9
Dr. Kirsty Duncan Liberal MP - Critic Public Health Canada
e-mail address:
Duncan.K@parl.gc.ca
postal address:
Dr. Kirsty Duncan Liberal M.P.
House of Commons
Ottawa, ON K1A 0A6
Phone: (416) 747-6003
Fax: (416) 747-8295
Minister of Health Services British Columbia Kevin Falcon
e-mail address:
kevin.falcon.mla@leg.bc.ca
postal address:
MINISTRY OF HEALTH SERVICES
1515 BLANSHARD STREET
VICTORIA BC V8W 3C8
Telephone:
Toll-free in B.C.: 1 800 465-4911
In Victoria: 250 952-1742
Other Provincial/ Territorial Ministries of Health:
http://www.hc-sc.gc.ca/hcs-sss/delivery ... ex-eng.php
Filing a complaint/ concern to the 'College of Physicians & Surgeons British Columbia'
https://www.cpsbc.ca/public-info/compla ... d-concerns
hear ye! hear ME! Oh Canada...
hear ye! hear ME! Oh Canada...
Last edited by PCakes on Wed Jun 02, 2010 7:13 pm, edited 4 times in total.
Maybe this is a good start?
http://www.ada.gov/investag.htm
The Americans with Disabilities Act prohibits discrimination of medical treatment based upon a disability.
http://www.ada.gov/investag.htm
The Americans with Disabilities Act prohibits discrimination of medical treatment based upon a disability.
Three veins angioplastied. One renewed life.
-
Hope66
- Family Member
- Posts: 62
- Joined: Tue Feb 24, 2009 3:00 pm
- Location: Southwestern Ontario, Canada
- Contact:
Ontario
Oh...and for those in Ontario...pretty much anyone who works for the province (including the Premier) can be reached by the following email:
first name, dot, last name, dot ontario,dot ca.
For example: joe.blow@ontario.ca
Cheers,
Hope
first name, dot, last name, dot ontario,dot ca.
For example: joe.blow@ontario.ca
Cheers,
Hope
-----------
Dx March 2003
Avonex
Dx March 2003
Avonex
-
Kate_PghPA
- Family Member
- Posts: 44
- Joined: Tue Apr 06, 2010 2:00 pm
- Location: Near Pittsburgh,PA
- Contact:
Americans in USA...write here !!
Thank you BooBear
Health and Human Services. Complaints about government programs, services, or activities related to child care, elder care, preschool, social services, or health care programs (including schools of medicine, dentistry, nursing and other health-related fields) should be directed to:
U.S. Department of Health and Human Services
Office for Civil Rights
200 Independence Avenue, S.W.
Room 509F HHH Building
Washington, D.C. 20201
http://www.hhs.gov/ContactUs.html
WILL they HEED us NOW ? ? ?
Health and Human Services. Complaints about government programs, services, or activities related to child care, elder care, preschool, social services, or health care programs (including schools of medicine, dentistry, nursing and other health-related fields) should be directed to:
U.S. Department of Health and Human Services
Office for Civil Rights
200 Independence Avenue, S.W.
Room 509F HHH Building
Washington, D.C. 20201
http://www.hhs.gov/ContactUs.html
WILL they HEED us NOW ? ? ?
Here is today's neurological disease subcommittee audio
http://parlvu.parl.gc.ca/Parlvu/TimeBan ... rmatID=710
http://parlvu.parl.gc.ca/Parlvu/TimeBan ... rmatID=710
Garyak.. welcome!! and good job!!
thanks for making it worth while..
thanks for making it worth while..
Last edited by PCakes on Thu Jun 03, 2010 2:23 am, edited 1 time in total.
Hi BooBear, Kate, Cece.. I did some surfing on this site... http://www.hhs.gov/
not a peep on CCVSI.. !
This seems a good place to start.. http://www.hhs.gov/feedback.html
and...
Information for Americans with Disabilities
"HHS has a strong commitment to Americans with disabilities. Learn about President Obama’s Year of Community Living and visit the Office on Disability’s website for more information." http://www.hhs.gov/od/index.html
or e-mail: ODInfo@hhs.gov
I'm not having any luck finding contact info for: HHS Secretary Kathleen Sebelius
not a peep on CCVSI.. !
This seems a good place to start.. http://www.hhs.gov/feedback.html
and...
Information for Americans with Disabilities
"HHS has a strong commitment to Americans with disabilities. Learn about President Obama’s Year of Community Living and visit the Office on Disability’s website for more information." http://www.hhs.gov/od/index.html
or e-mail: ODInfo@hhs.gov
I'm not having any luck finding contact info for: HHS Secretary Kathleen Sebelius
Re: hear ye! hear ME! Oh Canada...
repost and a reminder.. please please please keep "talking"...PCakes wrote:..today, tomorrow and each day thereafter .. pick up the phone, click send, mail a letter..!!
"I am a Canadian. My name is _______ and as a Canadian I have a right to, and demand, diagnosis and treatment for any and all health issues regardless of pre-existing conditions. Chronic Cerebro-Spinal Venous Insufficiency is a treatable health issue. Denying persons with Multiple Sclerosis diagnosis and treatment is prejudicial and unethical."
Minister of Health Canada e-mail contact info:
http://www.hc-sc.gc.ca/contact/ahc-asc/minist-eng.php
Minister of Health Canada postal mailing address:
The Honourable Leona Aglukkaq, P.C., M.P.
Health Canada
Brooke Claxton Building, Tunney's Pasture
Postal Locator: 0906C
Ottawa, Ontario K1A 0K9
Dr. Kirsty Duncan Liberal MP - Critic Public Health Canada
e-mail address:
Duncan.K@parl.gc.ca
postal address:
Dr. Kirsty Duncan Liberal M.P.
House of Commons
Ottawa, ON K1A 0A6
Phone: (416) 747-6003
Fax: (416) 747-8295
Minister of Health Services British Columbia Kevin Falcon
e-mail address:
kevin.falcon.mla@leg.bc.ca
postal address:
MINISTRY OF HEALTH SERVICES
1515 BLANSHARD STREET
VICTORIA BC V8W 3C8
Telephone:
Toll-free in B.C.: 1 800 465-4911
In Victoria: 250 952-1742
Other Provincial/ Territorial Ministries of Health:
http://www.hc-sc.gc.ca/hcs-sss/delivery ... ex-eng.php
Filing a complaint/ concern to the 'College of Physicians & Surgeons British Columbia'
https://www.cpsbc.ca/public-info/compla ... d-concerns
here's some inspiration.. http://www.ctvbc.ctv.ca/servlet/an/loca ... lumbiaHome
My letter to politicians
I like it ... short, sweet, to the point.
Here's what I sent to both federal and privincial Ministers of Health, my MLA and MP:
Dear Minister:
The parliamentary subcommittee on Neurological Health that met on June 2 heard testimony on CCSVI – a vascular condition that has been shown to be common in a large proportion of people who also suffer from Multiple Sclerosis. Compelling information was presented by Dr McDonald, a vascular surgeon, and by two people who have MS and have had the circulation in their veins improved.
Although in Canada, there are simple, safe procedures for screening for and treating this vascular condition, they are being withheld from people with multiple sclerosis simply because of their MS diagnosis. These services are listed in the provincial medical services plans as insured services and Dr. McDonald estimates the cost to the medical system for testing and treatment at about 1500 dollars. Canadians with MS have left Canada and paid as much as 25,000 dollars to be treated, and are reporting significant improvement to their quality of life. Most persons with MS cannot afford to travel and pay huge sums for treatment.
Please click on the link below and listen to Dr. McDonald's testimony and the heartfelt stories of two Canadians who have received treatment. (there are a few moments of silence before the audio begins) I am sure that you will feel compelled to take every possible action to make screening and treatment immediately available within our publicly funded system, to persons with MS who are also suffering from this crippling vascular condition.
http://www2.parl.gc.ca/committeebusines ... l=40&Ses=3
Go to Meeting #6
Here's what I sent to both federal and privincial Ministers of Health, my MLA and MP:
Dear Minister:
The parliamentary subcommittee on Neurological Health that met on June 2 heard testimony on CCSVI – a vascular condition that has been shown to be common in a large proportion of people who also suffer from Multiple Sclerosis. Compelling information was presented by Dr McDonald, a vascular surgeon, and by two people who have MS and have had the circulation in their veins improved.
Although in Canada, there are simple, safe procedures for screening for and treating this vascular condition, they are being withheld from people with multiple sclerosis simply because of their MS diagnosis. These services are listed in the provincial medical services plans as insured services and Dr. McDonald estimates the cost to the medical system for testing and treatment at about 1500 dollars. Canadians with MS have left Canada and paid as much as 25,000 dollars to be treated, and are reporting significant improvement to their quality of life. Most persons with MS cannot afford to travel and pay huge sums for treatment.
Please click on the link below and listen to Dr. McDonald's testimony and the heartfelt stories of two Canadians who have received treatment. (there are a few moments of silence before the audio begins) I am sure that you will feel compelled to take every possible action to make screening and treatment immediately available within our publicly funded system, to persons with MS who are also suffering from this crippling vascular condition.
http://www2.parl.gc.ca/committeebusines ... l=40&Ses=3
Go to Meeting #6