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Pan
they have TVs in all the rooms, but if they show football at all is another question
they have bbc world news, and russia tv that was in english. no entertainment, just news.
the bulgarian channels showed something that looked like soaps all day.
and the last english channel was fashion tv.
will be over there my self for a check up on the 9th. cant wait to see what is happening as symptoms were clearing, but started coming back, one new symptom as well. many of them has stayed away though, sp very happy with that.
<div>I have lived with ms for 8 years. The last year has been hell, I've gone from shite to even worse every single month, until my liberation in May. </div>
I just registered on this site, although I have been a lurker for a couple of months
I have MS. I was diagnosed 9 years ago, and have seen 3 different neurologists. In the beginning I was put on Avonex, but I found the side effects unbearable.
I have just received a date of Oct. 22 for my procedure with Dr. Grozdinski. I am very excited, but extremely nervous. I am in the process of making travel arrangements.
I just wanted to thank everyone who has posted information on this board.
They came and told us about 6:30 that surgery would be at 8 pm. Then at 7:30 they told us that Dr. Petrov was delayed at a conference or something and we will not go until tomorrow. So one more night with MS. Obviously much better than those of you still waiting for your date some time off but very difficult to lie here waiting. The MS "Pro-Tester" and I are the next two to go and are patiently waiting.(check out her you tube video, unde,r CCSVI Song, it is really cool) TV in the room is BBC news only so I have been watching tv shows on youtube to pass the time.
I had my surgery yesterday morning. They cleared stenosis and twisting in both jugular veins. I did not have any azygous problem. They put one stent in the left side. My veins had a lof of fibrosis and were very resistent to stretching. They used 12 atmospheres of pressure. There were 4 surgeries here yesterday and each person ahd a different experience. I got sick to my stomach when they injected dye so they gave me drugs for that. Also because of the pressure the surgery was fairly painful so they gave me drugs for that also. I spent most of yesterday sleeping. They stopped the IV and took the weights off of my groin this morning. The puncture they made for the surgery just looks like a larger version of the hole left by an IV. I was able to take a sponge bath and they brought breakfast. I did not eat anything yesterday because I felt too sick. I feel a lot better today but I noticed swallowing really hurts and my neck and chest are red from them rooting arround in there yesterday. When I started eating breakfast I found out that chewing husts way more than swallowing so I only ate a little bit. They said the neck discomfort will be there for 7 to 10 days. Maybe I will lose some weight. The stent is right at my jaw line. Others who have not had a stent do not have the same pain.
Walking is much smoother now and I am walking without looking at my feet like before. The right leg and right arm are tingling and I can flex my calf muscle which I could not do before. I seem to have more energy and am definitely thinking more clearly. There has been no one here who has had the surgery that has not had improvement. I am looking forward to continuing to improve more as time goes on.
Congratulations mduffy on a "successful" operation. I'm sure, due to amount of stenosis and the stent insertion that it will take some take to recover but lets hope that very soon things take a huge upswing for you and you begin your speedy road to recovery. Good luck over the next few hours and days and if you have time let us know how things continue.
Well Done McDuffy! So glad that it's done for you now. I felt for you when you were talking about the delays for your procedure. I'm the most impatient person in the world so god knows what I would have been like if it had been me. It's so good to know that you can see improvements in such a short space of time even if they are small. Thanks for sharing you give hope to us all!
I'm in Bulgaria, had my procedure on the 7th, went well. Dr. Grozdinski found stenosis in both jugulars in 10 minutes---left .5mm and right 1.6, and in the agysos, he knows his stuff, as does Dr. Petrov ...My two new favorite people!!
I see a little change, wish it was more, I I guess I have to give it more time.
The hospital is beautiful, nurses are friendly and the hospital food is good.
Congratulations on getting liberated!!You send good news about the hospital and docs which is all we've had I have to say so thanks for that. You feel a difference in your body too which is fantastic. So its all good and especially good for those of us yet to go through it. Well done!!
Got discharged from Tokuda Hospital today...Wednesday at 11:00AM. At Greenville Hotel..going home tomorrow morning with my wife to NYC, USA.
I met AnnaP, and her wonderful husband, and many other outstanding people.
As AnnaP said, Doctors and staff are great. Hospital is pretty new, so all equipment is pretty much, the latest technology.
I had a moderate stenosis in the left jug..severe stenosis in the right jug. azygos was nothing remarkable. Dr Petrov ballooned and cleared both Jugs. It feels like a really bad earache, then when he goes higher, pain goes there. As soon as he deflates, pain subsides. When you know he's accomplishing the mission though, you feel the temporary pain is worth it.
Actually, the way people on this thread act, I feel a particular closeness with all of you..so as far as the discomfort, I guess I took one for the team!
My proceedure began at 6:30 PM, on Monday evening, June 7. Was supposed to be Tuesday morning, but the night before was great as far as I was concerned. Start to end..about 1 hour 20 minutes. 4 nurses and 2 doctors in op room. Now you know why they charge what they charge.
My hospital room was equipped with 2 beds, which my wife was able to use one. A couch, table, even a small fridge and range. I was able to get this all handled by the floor nurse, who was amazing! I asked upon arrival for plenty of fruits and vegetables, and all I had to do was ask. I had a separate fresh fruit basket, bananas,apples,oranges, and a fresh vegetable basket, whole tomatos, cucumbers,etc. At first, I asked my wife where she got them, and it turned out the nurses had the kitchen put it together.
Nothing on TV for English speakers except for BBC. Canadians...you guys are ok...lots of French TV. Computer works great with high speed access. Plenty of great Canadian patients. I was the only American. I don't understand why Americans aren't flocking to get the procedure. There seems to be more of a united front by Canadians to get liberated.
Now the most important part. I have SPMS, diagnosed in 2001, but had Lyme Disease that had to be treated first, with a 1 year IV antibiotic regimen. I am a cane walker, getting much relief as of late from a wheelchair. Started on Avonex, then Tysabri, then Rituximab. No help at all from anything. Just getting worse.
Not a lot of change, but anything is something. The evening right after the procedure, I felt a little more warmth in my usually icy right foot and leg.
My usually annoying bladder has become more than bearable. Slept through the night...no annoying wake ups, deciding to take the walk and get relief, then walk back and try to fall asleep again. Daytime better also.
My wife says my face is pinker, instead of white/pale.
Also, whenever I would stand from a lying down prone position, or a sitting position, I would stand and stretch my body, arms and legs. Not any more.
Personally, I felt before going in; I'll be happy where I am...as long as i stay where I am, I'm good. In Las Vegas, a "push" is a win! So in essence, the little changes I've had are great. Anything positive is a win!
AnnaP...great meeting you and Tony! and remember...
Great to read your brilliant news! Hopefully it's a fresh start for you now, a clean sheet and the start of a new pain free life. Keep well!! Thanks for sharing!
sofia wrote:Pan
they have TVs in all the rooms, but if they show football at all is another question
they have bbc world news, and russia tv that was in english. no entertainment, just news.
the bulgarian channels showed something that looked like soaps all day.
and the last english channel was fashion tv.
will be over there my self for a check up on the 9th. cant wait to see what is happening as symptoms were clearing, but started coming back, one new symptom as well. many of them has stayed away though, sp very happy with that.
heyyy sofia
how r u doing???? any changes??when are you going back i was thinking between september and november.i still didnt make an app with d prof
