CCSVI in Bulgaria

AnnaP · Post by **AnnaP** » Mon Jun 14, 2010 3:14 am

Hi everyone,

Got back yesterday (June 13) from Bulgaria. I am LIBERATED!!! I have SPMS. I see a few changes: better bladder, fatigue gone and balance is better too, I will have to do physio for my drop foot to get my leg bending again.

You guys are in excellent hands.

Hi Burg, I'm glad I met you in person. It was fun to be with people who totally get it. See you on the blog! take care
Anna

animal66 · Post by **animal66** » Mon Jun 14, 2010 7:48 am

tracyann · Post by **tracyann** » Mon Jun 14, 2010 1:04 pm

just reading everyones post, there seems to be quite a few people going to Bulgaria in July hope we can meet up. Thanks to all those that have had the op you give the rest of us ms's hope

burg · Post by **burg** » Mon Jun 14, 2010 2:34 pm

Hi Anna...happy you guys are home and you're ok and improving..
It's one week since liberation...

Just for all of you with questions...I was the same...couldn't live without all the info I could get...so..hope I can help..

The last few days (3 or 4) I seem to be in a holding pattern. My walking seemed to be improving, but then, gotten worse. I'm just not sure anymore. I was able to cross my legs, so I was lifting my right leg,crossing my left, uncrossing and back on floor. I couln't do that for 5 years. so I did it...over and over. Now, it's become hard to do. My wife says that I was overdoing it. She's probably right...MS or not..They're always right! What keeps going through my mind is I restenosed. Reading about Sofia (one of my heroines..I follow all of your posts!!) and others, I thought that maybe,I restenosed. However..my bladder control, foot temperature and numbness are still improved, so...who knows.

Anyway...I am so elated that I did the procedure. There were people there that had immediate relief. Some that didn't. But...go for the gold. Look...it took me 10 years to get where I now am; its going to take time to get better.

I'm looking forward to all of you beating this, and getting well!!

animal66 · Post by **animal66** » Mon Jun 14, 2010 6:07 pm

Tracyann
yes I hope we can all meet up in Sofia My friend and I will be at greenville from the 6th right through to the 13th. My birthday is on the 17th so I am hoping to be celebrating the best birthday ever!!!!!!!!!

dania · Post by **dania** » Mon Jun 14, 2010 6:27 pm

animal66 wrote:Dania
When will you be in sofia ? I am from Canada so I will be taking a little of everything Canadian, and Euro's.

I will be in Sofia June 21 to June27. I was in contact with someone who was just there. He said $25-$50/day should do it. I am taking euros.

animal66 · Post by **animal66** » Mon Jun 14, 2010 6:39 pm

I sure hope that all the people who have been LIBERATED dont forget to keep us all up to date on thier recovery and how they are doing with thier symtoms if they are continuing to go away or whatever. Ican only imagine they are all feeling so good they are all out whooopin it up!!But seriously it would be good to hear from some of the first ones that had it done to see how they are feeling.

pan · Post by **pan** » Mon Jun 14, 2010 10:50 pm

Hi Anna, Imet you and your husband for a few minutes in the door way of my friends room in the hospital. I too have flown back home. Just have to say the first 2 day after the procedure I had so much energy and no ringing in my ear. Now I feel so tired, I never felt this tired before. Do you think they use steroids before,during or after the procedure to give us a bit of a lift.

alanya · Post by **alanya** » Tue Jun 15, 2010 12:56 am

Hiya,

I'm heading over to sofia on june 22 for the procedure. I'm staying in the greenville for 2 days and then I'm booked into the hospital. I hope to meet up with a few of you guys while I'm over there. I am traveling over from Dublin/Ireland.

BillTerry · Post by **BillTerry** » Tue Jun 15, 2010 1:11 am

hi tracy, will see you there. cant wait to meet everyone too.

bill

sofia · Post by **sofia** » Tue Jun 15, 2010 4:49 am

Hello pan
I don't think they gave us steroids before, during og after procedure. I had my op on the 12th of May 2010. I know how I respond to steroids, and I am 100% sertain that nobody gave me any steroids.

I've had a setback, but the last month has been much better then any of the others for the last year.

Taps · Post by **Taps** » Tue Jun 15, 2010 4:57 am

pan wrote:Hi Anna, Imet you and your husband for a few minutes in the door way of my friends room in the hospital. I too have flown back home. Just have to say the first 2 day after the procedure I had so much energy and no ringing in my ear. Now I feel so tired, I never felt this tired before. Do you think they use steroids before,during or after the procedure to give us a bit of a lift.

Hi Pan,

Do you think the air travel had anything to do with you feeling tired? or is this the general MS "tired"?

Thanks for keeping us all in the loop as well...

tracyann · Post by **tracyann** » Tue Jun 15, 2010 5:02 am

I will be at greenville hotel sat 10th july till 13th then move into the hospital. I'm easy to spot as i have a mobility scooter with Tracy Ann wrote on the back. Please shout out when you see me lol

Taps · Post by **Taps** » Tue Jun 15, 2010 5:16 am

sofia wrote:Hello pan
I've had a setback, but the last month has been much better then any of the others for the last year.

Hi Sofia,

What type of setback are you experiencing? Please share if possible... and thanks!

colapesce · Post by **colapesce** » Tue Jun 15, 2010 8:48 am

I had procedure done on 7 May.
Was recovering well until catching a bug! Have been taking it very easy over the past week and am now starting to feel better again. Certainly no regrets from me.

Burg - listen to your wife!

Sofia - will pm you this eve x

This Is MS Multiple Sclerosis Knowledge & Support Community

CCSVI in Bulgaria

Sofia/Bulgaria

cya then

Hope you get better from all the fatigue...

Setback...