CCSVI in Bulgaria

burg · Post by **burg** » Tue Jun 15, 2010 9:56 am

Annap..sent you PM

burg · Post by **burg** » Tue Jun 15, 2010 10:09 am

woke up this morning, and my walking is a bit improved today. Balance also on the plus side...what sleep can do!!

Got my first prescription of Ampyra 10mg this morning. Debated whether to take or not, because I may skew results of Liberation. It may also skew side effects, such as magnifying numbness, etc.

Decision; I'm going to take it...right now, I've got to try everything I can. If I have any side effects...I'll stop. We'll see.

devine · Post by **devine** » Tue Jun 15, 2010 2:45 pm

pan wrote:Hi Anna, Imet you and your husband for a few minutes in the door way of my friends room in the hospital. I too have flown back home. Just have to say the first 2 day after the procedure I had so much energy and no ringing in my ear. Now I feel so tired, I never felt this tired before. Do you think they use steroids before,during or after the procedure to give us a bit of a lift.

Hi Pan,

I really don`t think they use steriods.. but I do have a little heads up about being tired.. One of my CCSVI friends had the operation done the same time as me back on June 1st.. She had a lot of problems with tiredness and couldn`t stop sleeping.. a couple of days before going back home she went back to the hospital to see the dr.`s where they had done a new doppler and blood tests.. everything was fine but it seems that it could have been her medication that made her so tired. They had cut down on some and after that she was able to regain her energy.. Hopefully for you it will be the same situation... As for changes... I have noticed no more pain in my right ear... my feeling of something in my throat is gone....my feet have improved from being frozen. my bladder has improved..and last but not least I`ve found alot more energy but I have a new symptom of feeling dizzy or like i`m gonna faint... I`m thinking it`s all about the blood thinners or the meds.... so not tooo worried about that.. but I wish you good luck in finding your energy once again...

pan · Post by **pan** » Tue Jun 15, 2010 10:49 pm

Hi Devine, thank you for that. everything you said make perfect sense. I spoke with dr. Petrov on the phone yesturday, he said they did not use steroids. The only reason I thought that is because I never had them before, and the first couple of days I had so much energy. Dr. Petrov said that I may have re stenosis. I could have another doppler test in the uk and send him the result. You are right, it my be the medication. with more blood flow and being thinner, it might have a small effect on the heart working slightly different. I want to thank everyone with their support and comments. I hope everbody is feeling good and continue to improve.

animal66 · Post by **animal66** » Wed Jun 16, 2010 7:07 am

For anyone going to be in Sofia June 24 it will be Enyouden it is a Festival connected with the summer solstice.
Here are some phrases for everyone going to learn!!
Dobar den ------means ---Good Day
Leka Nosht------means----Good Night
Mol YAH-------means----Please
BLA GO Dra Ya ---Means---Thank you
I havn't found where is the bathroom

RobSandra · Post by **RobSandra** » Wed Jun 16, 2010 5:54 pm

animal66 wrote:For anyone going to be in Sofia June 24 it will be Enyouden it is a Festival connected with the summer solstice.
Here are some phrases for everyone going to learn!!
Dobar den ------means ---Good Day
Leka Nosht------means----Good Night
Mol YAH-------means----Please
BLA GO Dra Ya ---Means---Thank you
I havn't found where is the bathroom

Keep em coming....I am cut/pasting all of them and will definately use them when we go in latter July.
thks again

ales · Post by **ales** » Wed Jun 16, 2010 6:06 pm

http://www.linguanaut.com/english_bulgarian.htm

This will definitely help. We'll be there from July 20th to the 26th.

animal66 · Post by **animal66** » Thu Jun 17, 2010 11:28 am

Thanks ales

The website you posted is wonderful, now I can at least ask for the bathroom. HA!ha!
It is so great to know that we are all looking out for one another even though we don't know each other.
Iguess there is still lots of good out there in this big old world.
THANKS EVERYONE

ales · Post by **ales** » Thu Jun 17, 2010 1:52 pm

I guess you could say a band of brothers and sisters unfortunately tied together by a terrible disease. I wish everyone all the luck in the world. Fingers crossed.

BillTerry · Post by **BillTerry** » Thu Jun 17, 2010 5:56 pm

animal66 wrote:For anyone going to be in Sofia June 24 it will be Enyouden it is a Festival connected with the summer solstice.
Here are some phrases for everyone going to learn!!
Dobar den ------means ---Good Day
Leka Nosht------means----Good Night
Mol YAH-------means----Please
BLA GO Dra Ya ---Means---Thank you
I havn't found where is the bathroom

hey animal, will you be my private translator when we are there together lol lol. keep it up, love it

Bill

BillTerry · Post by **BillTerry** » Thu Jun 17, 2010 5:57 pm

hey ales, when r u going to bulgaria. we are july 5

bill

RobSandra · Post by **RobSandra** » Thu Jun 17, 2010 6:24 pm

ales wrote:http://www.linguanaut.com/english_bulgarian.htm

This will definitely help. We'll be there from July 20th to the 26th.

Ales:
Perfect -thanks. We will see you before you leave as we chk into hospital the 26th

animal66 · Post by **animal66** » Fri Jun 18, 2010 8:41 am

Hey BillTerry
I do not know how much help Im going to be
Dont they say healthcare workers make the worst patients
You know ill do all I can to help.
Im not grossed out by much but nothing surprises me anymore.
Ha Ha We all have to keep our spirits up going into this and together we will all make it out in one piece.

Villagemaid · Post by **Villagemaid** » Fri Jun 18, 2010 8:48 am

This is a good one too:

"GO-VOR-AY-TAY LEE AN-GLEE-SKI, BLA-GO-DA-RHEA"

Do you speak English, please?

animal66 · Post by **animal66** » Fri Jun 18, 2010 9:38 am

Villagemaid

Did you know they do testing at the Falsecreek medical clinic in Vancouver. Iphoned there and they said they had 250 on a waiting list and that I could get in as early as this Fall