CCSVI in Bulgaria

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.
User avatar
Villagemaid
Family Elder
Posts: 198
Joined: Sun Mar 14, 2010 3:00 pm
Location: BC, Canada
Contact:

Post by Villagemaid »

Animal< yes, I was tested there in May. I got my imaging done...they were great....I got to Bulgaria for September 8th!
35 (f) dx'd since July 2000 RRMS
Treated in Bulgaria on September 8 2010
80 percent narrowed RJV and 90 percent narrowed Azygos
User avatar
animal66
Getting to Know You...
Posts: 18
Joined: Wed Jun 09, 2010 2:00 pm

Post by animal66 »

Villagemaid

What did the testing there show if you dont mind me asking
after you have the testing and procedure in Bulgaria will you return to Bulgaria for a checkup or will you just go to Falsecreek for a check to make sure everything is staying open
User avatar
Villagemaid
Family Elder
Posts: 198
Joined: Sun Mar 14, 2010 3:00 pm
Location: BC, Canada
Contact:

Post by Villagemaid »

I have flattening of both internal jugular veins and a slight narrowing of the asygoz vein.....they also found the two thyroid nodules...lol...

After Bulgaria I will hopefully be able to get scnned here - working with m Doctor (my gp, not the neuro). If not, I'll go to a private clinic to get a check up.....

How far along the ccsvi process are you?
35 (f) dx'd since July 2000 RRMS
Treated in Bulgaria on September 8 2010
80 percent narrowed RJV and 90 percent narrowed Azygos
User avatar
Koko
Family Member
Posts: 52
Joined: Tue May 11, 2010 2:00 pm
Location: Scotland
Contact:

Post by Koko »

Hey Village maid -

"GO-VOR-AY-TAY LEE AN-GLEE-SKI, BLA-GO-DA-RHEA" - Its a bit of a mouthful I'll have wet myself before Ive finished asking!! I go to Sofia next week with my hubby - YIKES! Cant believe its come around now. Keeping everything crossed! I read that you already know what's going on with your veins. I wish I was in that position as you could say Im going blind. That's more stressul than the procedure for me at the moment the just not knowing. Anyway I'll know soon!

Koko
User avatar
Villagemaid
Family Elder
Posts: 198
Joined: Sun Mar 14, 2010 3:00 pm
Location: BC, Canada
Contact:

Post by Villagemaid »

Koko< That wasn't for the bathroom...that was "Do you Speak English"...lol...you want this phrase:

WHERE IS THE BATHROOM: Kade e toaletnata
(kuh-day-ay-toh-alet-natah)



I'm sure your veins are blocked......don't worry.....all the best!!! Can't wait for my turn!!!
35 (f) dx'd since July 2000 RRMS
Treated in Bulgaria on September 8 2010
80 percent narrowed RJV and 90 percent narrowed Azygos
User avatar
mommyg
Getting to Know You...
Posts: 10
Joined: Thu Apr 22, 2010 2:00 pm
Location: Halifax
Contact:

Post by mommyg »

Village Maid...My husband and I will be in Bulgaria for his 'Liberation' on September 8th also. Hopefully we'll see you there!!
User avatar
alanya
Newbie
Posts: 8
Joined: Mon May 10, 2010 2:00 pm

Sofia/Bulgariaville on june

Post by alanya »

Hi all,

I will be in the greenville on june 22 for hospital appointment on june 24. hoping to meet up with a few of you guys there. I'm traveling from dublin/Ireland.
User avatar
Koko
Family Member
Posts: 52
Joined: Tue May 11, 2010 2:00 pm
Location: Scotland
Contact:

Post by Koko »

OOps sorry Villagemaid! Thanks. :lol:
User avatar
Koko
Family Member
Posts: 52
Joined: Tue May 11, 2010 2:00 pm
Location: Scotland
Contact:

Post by Koko »

Hey Alanya

We might see you there.

Koko :)
User avatar
ven
Family Member
Posts: 54
Joined: Sun Apr 04, 2010 2:00 pm

Post by ven »

does any one here did the stream cell pls??????any help
User avatar
alanya
Newbie
Posts: 8
Joined: Mon May 10, 2010 2:00 pm

Post by alanya »

Hi Koko,

We are in the greenville tonight(22nd) so hopefully we'll see you there.
User avatar
animal66
Getting to Know You...
Posts: 18
Joined: Wed Jun 09, 2010 2:00 pm

Post by animal66 »

villagemaid

Iposted your pm
User avatar
BillTerry
Getting to Know You...
Posts: 20
Joined: Tue Jun 01, 2010 2:00 pm

flying from canada

Post by BillTerry »

Hi everyone, do you need to fill out a medical note etc for the airlines. Also do you tell them you are going to the hospital for surgery. sorry we are leaving on july 5 from canada .

bill
User avatar
animal66
Getting to Know You...
Posts: 18
Joined: Wed Jun 09, 2010 2:00 pm

Post by animal66 »

I cant believe it is only 2 weeks untill I am liberated along with all my new friends. I fly out on the 5th from Calgary cant wait.
User avatar
Taps
Getting to Know You...
Posts: 23
Joined: Mon May 03, 2010 2:00 pm
Location: Toronto, Canada
Contact:

Re: flying from canada

Post by Taps »

BillTerry wrote:Hi everyone, do you need to fill out a medical note etc for the airlines. Also do you tell them you are going to the hospital for surgery. sorry we are leaving on july 5 from canada .

bill
BillTerry,

I'm confident you do not need a note or anything special for the airlines.

The most you would need to do (which I have done previously) is request "Special Assistance" (i.e. state you have a disability) at time of booking or right at checkin if you've already booked... This way they're a bit better prepped to accomodate you if you need things.

This allows you some more flexibility and priority for the flight... like boarding, transport from one gate to another, etc.

Hope this helps...

T.
Taps
Post Reply

Return to “Chronic Cerebrospinal Venous Insufficiency (CCSVI)”