CCSVI in Bulgaria

devine · Post by **devine** » Tue Jul 20, 2010 4:49 pm

GOOD LUCK ALES!! it`s your big day tomorrow... sending positive vibes your way.... your for sure in the right state of mind... and your dreams are about to become your reality in just a couple more hours.

Taps · Post by **Taps** » Tue Jul 20, 2010 5:23 pm

Thanks for the awesome update Ales!... Best of luck to you.

For those going in on the 27th - see you soon...

RobSandra · Post by **RobSandra** » Tue Jul 20, 2010 6:09 pm

ales wrote:Hi everybody,
I am writing this from the 6th floor of Tokuda hospital. My procedure is scheduled beginning with tests tomorrow morning at 9 a.m. I have met many Canadians since we arrived yesterday and all are having positive results. Some are better than others and some who have had it for 30 years have had little to no feelings in their hands and legs can now feel them. It is amazing and seems that the doctors here are very thorough. Two people are back now for re-stenosis. They were taken in immediately and seem to be doing well. Again this may take some time to heal us as we didn't get this bad over night. I ave had it for 18 years and can only hope things will work out tomorrow. HOPE is them key word. For so many years we have had nothing. At least I can "try" to sleep tonight and dream of a better tomorrow. Nine months ago that was impossible. To those who have gone before me I thank you for paving the way. To those who will follow me"Keep your chin up and dream big. We have a shot now to at least have some of our lives back. This is big. Even some some advances are exactly that. When is the last time any of us could say that ANYTHING got better in relation to our MS? I will post again tomorrow after the procedure. The hospital is nice and my thumbs are staying up. Hope my fellow MSers will keep us going. Stay positive!!!!

ALES
Best of luck to you!! We are there in a few days and hopefully will see you before you leave.

RobSandra · Post by **RobSandra** » Tue Jul 20, 2010 6:11 pm

Taps wrote:Thanks for the awesome update Ales!... Best of luck to you.

For those going in on the 27th - see you soon...

Taps

We arrive the 25th and scheduled for 27th. We'll see you soon!

ales · Post by **ales** » Tue Jul 20, 2010 11:42 pm

Just had the tests. Stenosis in both Jugs and the Azygos. I am now in my room awaiting the procedure. Big shout out to Anya and Albert. Thanks for the apples.

livabird · Post by **livabird** » Wed Jul 21, 2010 12:44 am

You are almost there Ales. Best of luck and soon you will be a new you.

Liva

Anya · Post by **Anya** » Wed Jul 21, 2010 4:38 am

Hi Ales,

We can't wait to hear your updates. Keep us posted.

caro · Post by **caro** » Wed Jul 21, 2010 12:17 pm

Hi everyone,

I have been reading this thread for a few months now, and this is my first post. The information here has been really helpful for me and my husband (who has ms) before we went to Bulgaria, so I thought you may also benefit from our experience.

My husband was liberated on June 13th and felt immediate relief. His balance was much better, his headaches were gone, his hands were less stiff, his urinairy problems were gone and his eyes were clearer. He was a new and improved person.This is still more or less the case and we are incredibly happy for that, but I think it is good to warn people that are waiting for the procedure for some things that nobody tells you before or after the liberation.

It is now a month ago and things are starting to stabilise at last. The time after the liberation has been an emotional rollercoaster, with old sympthoms coming and going all the time, sometimes even every hour! Good days followed by bad days. As my husband says: It is two staps forward and one step back. At first he thought he had restenoses because of the instability, but the people we met in Bulgaria all had more or less the same problems, which was a great relief to hear.

Of course it is logical, the body has to get used to a completely new situation and that takes time. Damage that has been done over a decade can not be repaired in a day, a week or a month. The blood flow is suddenly so different that the body needs some time to find a new balance. We wished though that we were informed about this, to avoid the panic we felt. That's why I'm telling you this.

Don't think that we are disappointed in any way. In fact we are trying to raise awareness for CCSVI in the Netherlands and motivate people to get liberated. We have spent a week in Tokuda Hospital and I can honestly say that it has been the most exciting time of our lives. We have seen so many happy faces. The hospital is very modern, the staff is great, the doctors are fantastic and I can not thank them enough for doing this procedure! We never felt that they only did this for the money. They are absolutely genuinly interested in the patients. We are actually so impressed that we've called our new kitten Petrov!

For everybody that is waiting for the procedure: take care and don't be nervous because they know exactly what they're doing and the procedure itself is a piece of cake!

Caro

livabird · Post by **livabird** » Wed Jul 21, 2010 12:35 pm

Caro thank you so much for your post. this is my second procedure but i am still totally squeamish but feel so cnfident going here. I know it will be slowgoing as i have had ms for thirty years. I am so happy for you and your husband may he keep getting better. All the best.

Liva

Koko · Post by **Koko** » Thu Jul 22, 2010 10:43 am

Hey everyone just back my hols and thot I would have a quick check to see how everyone is doing. Its so exciting when I read everyones posts who are going to Bulgaria - so positive and rightly so - PMA - positive mental attitude!
Good luck to everyone about to travel.

Ales cant wait to hear your update.

Village maid it's not long now until you go! It feels like ages ago that we were posting about it!

Good luck!!!!!!!!

Koko

Villagemaid · Post by **Villagemaid** » Thu Jul 22, 2010 11:10 am

Thanks Koko!!!! yes, today is T-45!!!!!

Anya · Post by **Anya** » Sat Jul 24, 2010 3:24 am

Hi Ales,

How are you doing? We are starting to worry since there was no update from you in a while.

livabird · Post by **livabird** » Sat Jul 24, 2010 3:57 am

Watchout for anyone taking vdeos in Bulgara. We are beng used. Make your own vdeos.

Liva

Read this topic and see what is going on

http://www.thisisms.com/modules.php?nam ... 134#125134

RobSandra · Post by **RobSandra** » Sat Jul 24, 2010 4:35 am

well....after a sleepness night of anticipation we are just getting ready to walk out our Saskatchewan door for the airport and the much anticipated Liberation in Sofia. Sandra was so excited she was up an hour before the 'already too early' alarm setting. At least it gives me time to send this off.
For you that are already there or are en route as well, we wish you all the best of luck and we"ll see you in 24hrs.
I'll document as much as I can as we move forward as I know how much it meant to us and others on this site to receive that information.

livabird · Post by **livabird** » Sat Jul 24, 2010 4:48 am

Best of luck RS. The best is yet to come.

Liva

This Is MS Multiple Sclerosis Knowledge & Support Community

CCSVI in Bulgaria

All the best Ales!

Re: All the best Ales!