Not Johnson?
Not Johnson?
Does anyone know if Not Johnson has a blog, or what's happened since his trip to Poland, how he's doing? I've not seen any updates in quite some time.
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prairiegirl
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newfie-girl
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actually when you think of it there are quite a few of the old timers that were very active on this site that had the procedure and have gone off the radar 
Hope they are all doin fine, I don't want to signal out anyone but you all know who you are.......love to hear some updates....lets see what happens?
Hope they are all doin fine, I don't want to signal out anyone but you all know who you are.......love to hear some updates....lets see what happens?
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newfie-girl
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costumenastional
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I heard that my absence has not gone un-noticed. Sorry to leave you all "up in the air".
I have been scarce on TiMS because I am so busy in the summer, but I have filled out the tracking thread (page six), and am trying to get to writing a report. That should come soon. Look for "The Polish Patient, featuring Johnson."
I'm still better than I was before the treatment, but it's not over yet for me. I have been in a slow decline since having the treatment. (feels like restenosis to me)
It is raining here this week-end, so my outdoor work has been precluded. I will do my best to write a report very, very soon.
Eric - there won't be a law suit until I feel better again. I don't have the energy for it right now, and it will be hard to convince a judge that I ought to be re-imbursed for a treatment that has not been entirely successful.
More, later.
I have been scarce on TiMS because I am so busy in the summer, but I have filled out the tracking thread (page six), and am trying to get to writing a report. That should come soon. Look for "The Polish Patient, featuring Johnson."
I'm still better than I was before the treatment, but it's not over yet for me. I have been in a slow decline since having the treatment. (feels like restenosis to me)
It is raining here this week-end, so my outdoor work has been precluded. I will do my best to write a report very, very soon.
Eric - there won't be a law suit until I feel better again. I don't have the energy for it right now, and it will be hard to convince a judge that I ought to be re-imbursed for a treatment that has not been entirely successful.
More, later.
My name is not really Johnson. MSed up since 1993
Good to hear from you.
We could guess that your outcome was not entirely successful as those with amazing results seem to become even more outspoken activists towards changing accessibility, they are yelling it from the rooftops and in the newspapers.
With such a high re-stenosis rate, there are many many reports such as yours coming out. It just makes local treatment even more pressing so that we at least have follow up care here. Hopefully the work so many of us are doing to pressure those in control will help bring it here sooner. The more doctors treating us, the more they learn, and the better able they'll become to hopefully lower re-stenosis rates. With BC being silent until after their meeting this week, we need all the help we can get in convincing government, regulatory bodies and the MS Society to allow it here. All voices and keyboards are urgently needed to press for local accessibility.
We could guess that your outcome was not entirely successful as those with amazing results seem to become even more outspoken activists towards changing accessibility, they are yelling it from the rooftops and in the newspapers.
With such a high re-stenosis rate, there are many many reports such as yours coming out. It just makes local treatment even more pressing so that we at least have follow up care here. Hopefully the work so many of us are doing to pressure those in control will help bring it here sooner. The more doctors treating us, the more they learn, and the better able they'll become to hopefully lower re-stenosis rates. With BC being silent until after their meeting this week, we need all the help we can get in convincing government, regulatory bodies and the MS Society to allow it here. All voices and keyboards are urgently needed to press for local accessibility.