LDN, LYME & ABX Just Curious

remnants · Post by **remnants** » Sun Jan 22, 2006 8:40 am

I have several nagging questions that present frequently as I visit the forum and consider the Wheldon protocol in addition to or in place of LDN.

1. It seems MS had been misdiagnosed in some people with Lyme disease. Will Lyme disease show similar MRI results too? If Lyme disease will show lesions on an MRI, will it also show lesions in the spine?

2. Will LDN have similar results for Lyme Disease?

3. If Lyme disease is so difficult to diagnose and often misdiagnosed, could it be that the abx treatments are actually having an impact on Lyme?

4. Does anyone know anyone who has been diagnosed with MS and later found that they did not have MS but rather Lyme?

Information regarding any of the above the questions will be most appreciated.

Thanks,
Cindy

remnants · Post by **remnants** » Sun Jan 22, 2006 12:03 pm

If the cause of MS is an infection, cpn, or undiagnosed lyme disease, how does that theory relate to the statistics of MS, specifically the higher number of women - wouldn't men be as susceptible to infection?

CureOrBust · Post by **CureOrBust** » Mon Jan 23, 2006 1:19 am

you may get morte responses under the general forum, as what u ask is not LDN specific.

AND I would really like to know the answer to the first question RE MRI (and the rest!)

remnants · Post by **remnants** » Mon Jan 23, 2006 7:29 am

Thanks! I really wasn't sure where to post since my questions actually covered several topics. However, since I posted I did learn that Lyme disease can present lesions in both the spine and the brain on an MRI.

I was thinking I couldn't have been misdiagnosed because I have lesions in my cervical spine. I do think my diagnoses is correct, but if I thought there was a possibility of Lyme, then all the more reason to try the abx.

All of the research is beginning to drive me crazy. I don't know why I continue to read it. The more I read, the angrier I become. All this time, money and research and we don't have a cure. In fact, I don't believe there has been a cure for any disease in the last 50 years.

Cindy

CureOrBust · Post by **CureOrBust** » Tue Jan 24, 2006 3:01 am

remnants wrote:...all the more reason to try the abx...

Im on abx for the slight chance it may help. it doesnt do much harm, but the potential benefits are just too good to not try.

sojourner · Post by **sojourner** » Tue Jan 24, 2006 6:04 am

Hi Cindy,
I am no expert, but I have done some poking around to find more about a connection between Lyme and MS.

We live in a very "high" Lyme area so I have often wondered if my husband's MS could in fact be late stage Lyme.

And yes, Lyme can produce lesions on the spine.

Here's a collection of web sites and research that raises some interesting questions.

http://www.geocities.com/gallisto1/Rapo ... sta_7.html
This is a summary of a Lyme conference with some very influential Lyme researchers presenting their views. Note at the end of article that Steve Phillips (head of the ILADS) calls for widescale use of antibiotics in MS.

http://www.ilads.org/
This is the International Lyme and Associated Diseases Society website

http://www.geocities.com/playpub/LD-MS.htm
This is a site with interesting links to MS/Lyme research

My husband has recently started abx and has been having some interesting reactions!! The Wheldon Protocol is also cutting edge treatment for Lyme.

Sorry, everyone for the thread drift here--I just wanted to respond to some of Cindy's questions.

Lexy

remnants · Post by **remnants** » Tue Jan 24, 2006 7:00 pm

Thanks for all the info. Lexy and your input as well CureOrBust.

I did have one G.P. who focuses on alternative therapies, tell me he thought I had lyme disease and that I should have the Bowen Research Test done.

Lexy, did your husband take LDN prior to the abx regimen?

Thanks Again,
Cindy

sojourner · Post by **sojourner** » Tue Jan 24, 2006 7:16 pm

No problem, Cindy. There is so much to digest I'm glad to get some of it off my chest.

Jim has never taken LDN. He used to only take Avonex.

We used to be real walk the straight and narrow, only do what the dr. orders people. Now we are unconventional crazy people who are starting to listen to and think for ourselves.

happily, Lexy

remnants · Post by **remnants** » Wed Jan 25, 2006 5:55 am

Lexy,

I just finished reading all of the info. from the three sites you posted - quite a bit to digest when you combine it with the info. on cpn and hormones. Interestingly I felt like a bit like a yo-yo or ping-pong ball. First site - I'm thinking Lyme, second - no Lyme, third - could be Lyme.

Thankfully I am doing well on the LDN for now; however, I am seriously considering the abx regimen.

I wish you and Jim the best in the maze of unconventional thinking, frustrating as it may seem, I think it will be much more productive than the conventional.

Best Regards,
Cindy

sojourner · Post by **sojourner** » Wed Jan 25, 2006 7:21 am

I know several people doing well on LDN.

Interesting how it is thought to boost the immune system--exactly the opposite objective of those wrapped in the autoimmune explanation of MS.

I wish you the best,
Lexy

gibbledygook · Post by **gibbledygook** » Thu Jan 26, 2006 3:38 am

I tried LDN with the antibiotics and with Avonex. The overnight result was very bad in that my leg went very very stiff. However now I'm off the Avonex I may dust down the pack of LDN and give it another go. Especially as I have the WORST cold.
Does anyone know if LDN interacts with melatonin?

remnants · Post by **remnants** » Thu Jan 26, 2006 7:38 am

I've took Melatonin for sleep disturbances while on LDN and didn't have any problems; however, the Melatonin I use does note:

Individuals with autoimmune conditions .... should consult their physician prior to use.

I used 3MG. With Valerimint by Solaray.

Take Care!

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