Southern Ontarians Going to Albany

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.
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Blaze
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Southern Ontarians Going to Albany

Post by Blaze »

HockeyDad and I are both in southwest Ontario. We are both on the list for Albany.

I know many other Ontarians are also on the list. Is anyone interested in seeing if we could coordinate with Albany to all go at the same time so we could travel together?

Neither HockeyDad nor I know when we will be get the call for Albany, but it might be easier for traveling and more fun if several of us could travel together.

Anyone else interested? Of course, HockeyDad and I are still hoping Dr. McDonald or others may get something going right here in Ontario before we have to go to Albany (eternal optimists!)
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TFau
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Post by TFau »

Hi there:

My husband is on the list too. We're closer to the GTA, so not SouthWest I guess.

I don't know how practical it would be for us to travel with others, but we would love to meet up with others there!

I can't remember when we called to get on the list (and it's killing me not to email and ask), but it was late May or early June.

Thanks!
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MSbutnotMS
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Post by MSbutnotMS »

If you phoned around the 1st of June you should be getting a call soon. I called may 21 and this morning I recieved a phone call from Albany. My procedure will be take place Oct. 15. :D :D :D
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Blaze
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Post by Blaze »

That's fabulous news about October 13. Keep us informed.

The GTA might not make it impossible for travel. We would all have to cross into the US around either Niagara or eastern Ontario (Is it Brockville or Cornwall?), so maybe we could meet up somewhere convenient.

This may not be practical, depending on when we are all scheduled, but if we could get a group together, that would be great. Maybe we could even charter a bus--There certainly seem to be enough of us!
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thornyrose76
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Post by thornyrose76 »

MSbutnotMS wrote:If you phoned around the 1st of June you should be getting a call soon. I called may 21 and this morning I recieved a phone call from Albany. My procedure will be take place Oct. 15. :D :D :D
Are you having the procedure done in the clinic?
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MSbutnotMS
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Post by MSbutnotMS »

As of now I don't know if I am at the clinic or the hospital. I will find that out at a later date.
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Hockeydad
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Post by Hockeydad »

I called around June 1st, received my email a few weeks ago. So, I'm suspecting I'll get my call in September for a Christmas date (wishful thinking!). A little road trip, Santa style (I'll get the big red suit!!). As we get our appointments ,we should post. We're not going to car pool or anything, but having countrymen (women) with you is very comforting. Although a quick shopping trip to Manhattan may be even more comforting for my wife. :lol:
RRMS since Feb , 2010. No drugs, just vitamins and exercise.
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sensfantodd
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Post by sensfantodd »

I just got an appointment today for Oct 18th at the clinic.
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Blaze
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Post by Blaze »

Wow. Lots of people seem to be getting calls this week.

Sensanfod, when did you put your name on the list for Albany. Are you going to Dr. Siskin's clinic or Dr Mehta? Will you be treated in the clinic or in the hospital?
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whelper
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Post by whelper »

I'm newly diagnosed & am wondering where in Albony you go to have the procedure done?
Any help is greatly appreciated!
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Blaze
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Post by Blaze »

Whelper: There are two locations in Albany.

Check out the thread CCSVI Treatment available in U.S. The first posting gives a link to a site in Albany. A lot of the discussion on this thread (now almost 50 pages!) relates to Dr. Siskin and others at that clinic/hospital,

Also check out the thread Dr. Mehta in Albany NY--Thank you Kacey. Kacey's husband was the first to be treated by Dr. Mehta. I'm not sure what his status is at the moment. I know he has been awaiting approval of his study, but you can still get on his waiting list.

Hope that helps.
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whelper
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Post by whelper »

Thanks, I'm very new to this & every little bit helps!
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