Dr Dake speech at MSketeer Fundraiser

MrSuccess · Post by **MrSuccess** » Tue Aug 24, 2010 11:09 am

super job

btw ...... I also .....left my heart in San Francisco .....

Mr. Success

cheerleader · Post by **cheerleader** » Tue Aug 24, 2010 3:04 pm

Brainteaser wrote:Can we get Dr Dake set up in Singapore or somewhere, where he's free to study and treat patients to his heart's content and make big bucks - without all this Western medicine sham study nonsense? It must be driving him insane!

Phil

Hey Phil--
Dr. Dake has a well-established practice at Stanford, and he's also got an endowed chair (1 million- Thelma and Henry Doelger prize) so he's not really looking to move. His son's at Stanford, too.

That said, he's really excited to get this study up and running, and is working his tail off for pwMS. He really doesn't understand the resistance, but he is undaunted. You gotta like that it a person...

Rose---I just heard from Carole that the tally is up to $18,000!!! Good work, MSketeers! (And it will please you to know that one of Jeff's musical ventures is a fabulous musical adaptation of Dumas' The Count of Monte Cristo....we've work-shopped it in LA and France, and hope to get some producers on board someday. One for all!!)
cheer

concerned · Post by **concerned** » Tue Aug 24, 2010 3:28 pm

cheerleader wrote: Hey Phil--
Dr. Dake has a well-established practice at Stanford, and he's also got an endowed chair (1 million- Thelma and Henry Doelger prize) so he's not really looking to move. His son's at Stanford, too.

He also receives money from big biomedical companies that deal in stents. Who was the first to start using stents for "Liberation"? I think he was the first Dr. I heard was using stents, but i could be wrong.

Cece · Post by **Cece** » Tue Aug 24, 2010 3:55 pm

His IRB trial will not be testing the use of stents. Just ballooning vs control group.

Rose2 · Post by **Rose2** » Tue Aug 24, 2010 4:34 pm

Joan!
I got tingles just reading Jeff's news! Purfect! Can't wait to hear it! yep $18,000+ and I know some people who are still out of town, so I don't think we are done counting yet!!

It was soooo great to see you! Hope you got home and settled into school and all. Keep up the good work!

Rose ;)

CureIous · Post by **CureIous** » Tue Aug 24, 2010 5:15 pm

Cece wrote:
CureIous wrote:I think it's always been known that the waiting line post-study for the fulfillment of the procedure from Dake was fairly short.
I'd missed that bit of info somehow. Back in May, when Dr. Sclafani kept suggesting that a two-year randomized trial would be needed, that was cause for some angst. It makes sense, if they are studying CCSVI, short-term outcomes are acceptable; if they're studying MS, longer-term outcomes might be better.

I guess it all depends on what the study is geared towards. Yes, obviously a longer term study would have more scientific teeth, but I doubt when that happens, any sham surgeries will be included, just a guess. Shorter term, seems more palatable. I do think though that a short termer right now is going to give CCSVI a serious kick in the pants like it needs, and get many other institutions off the fence and into the fray. By including the shams in the short term study, the placebo effect will be muted, not eliminated but certainly quieted down, keeping an eye towards the future criticism of said study of course. Hopefully someday there will be a more low key long term tracking of treated patients, by this time next year there will be plenty of 1 year plus people to choose from, and some 2 year people too!

M.

concerned · Post by **concerned** » Tue Aug 24, 2010 8:31 pm

Cece wrote:His IRB trial will not be testing the use of stents. Just ballooning vs control group.

Still, a connection like that may be a cause for concern, especially considering his past actions and affiliations.

Rokkit · Post by **Rokkit** » Wed Aug 25, 2010 7:07 am

Dr. Dake must think that significant benefit will likely be apparent in the short 3 month timeframe or he wouldn't design the trial this way. That is very encouraging to me.

ozarkcanoer · Post by **ozarkcanoer** » Wed Aug 25, 2010 10:54 am

I love the MSketeers. I love the name. But I am a child at heart. Good for the MSketeers and their fundraising for Dr Dake and MS. Good for the MStery parties raising money for BNAC. Can we come up with more MS/CCSVI slogans that will amuse ?

ozarkcanoer

cheerleader · Post by **cheerleader** » Wed Aug 25, 2010 1:40 pm

Rokkit wrote:Dr. Dake must think that significant benefit will likely be apparent in the short 3 month timeframe or he wouldn't design the trial this way. That is very encouraging to me.

Rokkit--He's looking at the symptoms that are clinically associated with venous insufficiency (stuff you see in people suffering from CO2 poisoning, diffuse cerebral hypoxia or low O2 levels)--fatigue, cognitive fog, heat intolerance, urgent bladder, spasms. These are the "MS symptoms" that seem to be affected most in the very beginning when venous return is established. The other symptoms that are due to long term axonal damage may not resolve in three months (if ever)....and Dr. Dake doesn't want to wait years to treat the rest of the patients in the placebo end of the trial.
cheer

Rokkit · Post by **Rokkit** » Thu Aug 26, 2010 6:20 am

cheerleader wrote:Rokkit--He's looking at the symptoms that are clinically associated with venous insufficiency (stuff you see in people suffering from CO2 poisoning, diffuse cerebral hypoxia or low O2 levels)--fatigue, cognitive fog, heat intolerance, urgent bladder, spasms. These are the "MS symptoms" that seem to be affected most in the very beginning when venous return is established. The other symptoms that are due to long term axonal damage may not resolve in three months (if ever)....and Dr. Dake doesn't want to wait years to treat the rest of the patients in the placebo end of the trial.
cheer

Thanks, Cheer, I think focusing on those symptoms is brilliant and the only way to get this thing off high center any time soon.

jamit · Post by **jamit** » Fri Aug 27, 2010 12:59 pm

I cancelled my Euromedic July appointment. I was worried about restenosis and no local support, as Cheerleader pointed out the importance of in one of her posts thank you. I have read pretty much all your posts, very informative and I for one cannot thank you enough. I would probably have restenosed from worry alone.

But I did want treatment and was happy to find out I am also on the trial list. I was one of the people waiting for a call from dr. Dake last fall. I cannot wait. Frankly I had given up hope, but I feel really good about Dr. Dake and yes I cannot wait, but with respect to ccsvi I consider anything less than 6 months a no wait.

cheerleader · Post by **cheerleader** » Fri Aug 27, 2010 2:22 pm

jamit---
there are a couple of places in southern California now treating, if that's a bit more local for you, and Dr. Dake doesn't get up and running in your time frame--
The Hubbard Foundation in San Diego is testing and treating and has an IRB approved:
http://www.hubbardfoundation.org/
and Pacific Interventionalists
http://www.pacificinterventional.com/about_ccsvi.html
Both groups use the Haacke diagnostic protocol (similar to Dr. Dake's MRVs) and both groups are in touch with all of the doctors and Dr. Zamboni. I'll be meeting these docs next month in socal. Looking forward to talking with them.
For patients in the US, there is no need to travel thousands of miles...it's so much better to have followup and aftercare closer to home.
take care-
cheer

jamit · Post by **jamit** » Fri Aug 27, 2010 5:22 pm

Thanks yes I have read about them. I cannot wait just meant I am excited about the trial and that it may happen after all.

Brainteaser · Post by **Brainteaser** » Sat Aug 28, 2010 4:28 am

Hi Cheer,

I'm sure Dr Dake will give the study all he's got, but watching the video, at some points, he just seems a little frustrated, probably because he is such a proactive guy.

Phil