Bethr-make sure that you use a reputable brand of fish oil because some of it is very contaminated with mercury. I don't know whether you can get Carlsons in New Zealand, but they do test for heavy metals.
There is a liquid called zinc sulfate and it can be used as a taste test for zinc:
http://www.thorne.com/Products/Minerals/Zinc/prd~ZN.jsp
Information
Zinc sulfate solution can be used to test for a possible zinc deficiency. Follow the steps outlined below for oral zinc taste testing. In addition, Zinc Sulfate, 7 Hydrate can be used for zinc supplementation.* Each teaspoonful contains 1.5 mg zinc.
Oral Zinc Test
Hold a teaspoonful of the Zinc Sulfate solution in the mouth for 30 seconds and note the taste response from one of four categories:
1. No specific taste or other sensation is noticed, even after 30 seconds
2. No immediate taste is noticed, but after a few seconds a slight taste described as dry, mineral, furry, or even sweet is noticed
3. A definite, although not strongly unpleasant, taste is noticed almost immediately and tends to intensify as the 30 seconds pass
4. A strong, unpleasant taste is noticed immediately and tends to intensify as the 30 seconds pass
Individuals in category 1 or 2 might respond favorably to zinc supplementation.*
Phlebotomy anyone?
Merlyn
in the way past, have used the zinc status liquid from ethical nutrients (and could not taste it)--was about $20-- was thinking of getting it again--so thanks for the info on the thorne one--much cheaper.
But even when I take a 50 mg zinc tablet (gluconate), i keep it in my mouth to attempt a taste taste--even chew it a bit, and keep it under my tongue for a few minutes--can't taste it at all.
I do think i need extra zinc, but our thinking that my hemoglobin was low due to not taking the zinc supplement for a bit might be off base--was researching for other possible reasons for low hemoglobin, and found tht one of reasons is excess IV fluids--and I am getting IV fluids weekly with the IV chelation.
Which also brings up the question that my hemoglobin might actually be a bit higher than the results we have been getting on all the tests we have been doing--since started this intense testing after started the chelation.
So, the blood donation is still important I think.
in the way past, have used the zinc status liquid from ethical nutrients (and could not taste it)--was about $20-- was thinking of getting it again--so thanks for the info on the thorne one--much cheaper.
But even when I take a 50 mg zinc tablet (gluconate), i keep it in my mouth to attempt a taste taste--even chew it a bit, and keep it under my tongue for a few minutes--can't taste it at all.
I do think i need extra zinc, but our thinking that my hemoglobin was low due to not taking the zinc supplement for a bit might be off base--was researching for other possible reasons for low hemoglobin, and found tht one of reasons is excess IV fluids--and I am getting IV fluids weekly with the IV chelation.
Which also brings up the question that my hemoglobin might actually be a bit higher than the results we have been getting on all the tests we have been doing--since started this intense testing after started the chelation.
So, the blood donation is still important I think.
Got my test results back and the doctor says no way can I do any bloodletting. My hemoglobin was was 119 (reference range 120-150)
My hematocrit was 0.35 (0.35-0.45)
RBC was 3.81 (3.80-5.20)
ferritin was 28
I was absolutely shocked/dumbfounded because I have not given any blood for about 10 weeks.
So as far as using phlebotomy to control symptoms, I am SOL
My hematocrit was 0.35 (0.35-0.45)
RBC was 3.81 (3.80-5.20)
ferritin was 28
I was absolutely shocked/dumbfounded because I have not given any blood for about 10 weeks.
So as far as using phlebotomy to control symptoms, I am SOL
Hi All,
I donated blood today and I think I feel better. Less stiffness and I feel more energetic. The ear ringing did not subside, unfortunately.
Could be placebo though:) And there are days when I feel better anyway... so I can't say for sure that this helped.
I am going to donate again when I can.
I donated blood today and I think I feel better. Less stiffness and I feel more energetic. The ear ringing did not subside, unfortunately.
Could be placebo though:) And there are days when I feel better anyway... so I can't say for sure that this helped.
I am going to donate again when I can.
Hi Formyruca, let us know how you feel over time. It's very interesting, and I'm sure somewhere it will all tie in with vascular problems.
Shye & Merlyn, I now have my CBC retest done, and my hemoglobin is back down to 153, just under the high normal of 155. My hemocrit is also down to within high normal range at .45 (top of range .47).
My white Cells Count is higher though 15.6 (range 4-11) and Lymphocytes are down a bit, but still way over the normal at 5.5 (range 1 - 3.9).
My white cells and lymphocytes are always rather high because of the absent spleen.
I'm feeling really well at the moment energy wise anyway, joints are getting a bit stiff though and a bit of nerve pain here and there. Other than that I'm good to go. I'm going to put off a blood donation until I really feel the need to go. Sort of saving it for the "hard" times when I'm falling asleep daily.
I don't want to drain my iron reserve too much, as I want the option to phleb when I really need it.
I haven't heard from my Dr. yet, but no doubt he or the nurse will call me to let me know if he's happy with those new results.
I think if people are going to phleb they need to monitor their irons/CBC regularly and learn what works for them. We all seem to have some imbalance, and we are all so different, even our symptoms vary greatly.
The main commonality being the lesions I suppose.
Shye & Merlyn, I now have my CBC retest done, and my hemoglobin is back down to 153, just under the high normal of 155. My hemocrit is also down to within high normal range at .45 (top of range .47).
My white Cells Count is higher though 15.6 (range 4-11) and Lymphocytes are down a bit, but still way over the normal at 5.5 (range 1 - 3.9).
My white cells and lymphocytes are always rather high because of the absent spleen.
I'm feeling really well at the moment energy wise anyway, joints are getting a bit stiff though and a bit of nerve pain here and there. Other than that I'm good to go. I'm going to put off a blood donation until I really feel the need to go. Sort of saving it for the "hard" times when I'm falling asleep daily.
I don't want to drain my iron reserve too much, as I want the option to phleb when I really need it.
I haven't heard from my Dr. yet, but no doubt he or the nurse will call me to let me know if he's happy with those new results.
I think if people are going to phleb they need to monitor their irons/CBC regularly and learn what works for them. We all seem to have some imbalance, and we are all so different, even our symptoms vary greatly.
The main commonality being the lesions I suppose.
Merlyn
interesting, your blood panel looks great--
So, overall, what are your improvements at this point? What are the persisting probems? What are you going to do now???
I'm also thinking need to stop for the moment with phlebotomy, but
I'm still waiting for iron panel and zinc level results.
Was at chelation today, and talking to some of the other patients--they all "taste" the drips they get, they can taste the B vitamins in the drip!
I taste nothing--asked the technician, he said all the patients he treats have commented at one time or another that they can taste the drip.
SO, again I am back to thinking Zinc and copper--need them, esp zinc, for sense of taste.
Will get a mineral drip instead of the chelation for a few weeks to see if that helps, and no matter what my zinc levels show, I am going to megadosewith it for a month, and then get bloods done again--to see how high zinc supplementation affects all the blood, the CBC, the iron panel. For me, I am thinking my main problem is with zinc, which in turn affects the iron (and the D etc).
interesting, your blood panel looks great--
So, overall, what are your improvements at this point? What are the persisting probems? What are you going to do now???
I'm also thinking need to stop for the moment with phlebotomy, but
I'm still waiting for iron panel and zinc level results.
Was at chelation today, and talking to some of the other patients--they all "taste" the drips they get, they can taste the B vitamins in the drip!
I taste nothing--asked the technician, he said all the patients he treats have commented at one time or another that they can taste the drip.
SO, again I am back to thinking Zinc and copper--need them, esp zinc, for sense of taste.
Will get a mineral drip instead of the chelation for a few weeks to see if that helps, and no matter what my zinc levels show, I am going to megadosewith it for a month, and then get bloods done again--to see how high zinc supplementation affects all the blood, the CBC, the iron panel. For me, I am thinking my main problem is with zinc, which in turn affects the iron (and the D etc).
Bethr,
Sounds like a good plan, to wait til you feel the need for the phlb, given how stringent your rules are for donating blood.
And yes, definitely if you phleb, need to monitor.
I am so grateful for Merlyn for starting this topic--I have been helped immensely by it, and still learning as finding might not be the iron that is my core problem, but the zinc affecting it.
i'll continue posting what doing re all this, and the various lab results, and hope someone can benefit from the info.
Hope you and Merlyn likewise continue to post here with what doing. This all intersects at certain points.
Sounds like a good plan, to wait til you feel the need for the phlb, given how stringent your rules are for donating blood.
And yes, definitely if you phleb, need to monitor.
I am so grateful for Merlyn for starting this topic--I have been helped immensely by it, and still learning as finding might not be the iron that is my core problem, but the zinc affecting it.
i'll continue posting what doing re all this, and the various lab results, and hope someone can benefit from the info.
Hope you and Merlyn likewise continue to post here with what doing. This all intersects at certain points.
Wow, this is one for the books: Came across this whilst searching for something else. Pity it's a "mouse model", but still interesting.
http://ajpheart.physiology.org/cgi/cont ... 299/2/H372Repeated phlebotomy augments angiogenesis to improve blood flow in murine ischemic legsItta Kawamura,1 Genzou Takemura,1 Hiromitsu Kanamori,1 Toshiaki Takeyama,1 Tomonori Kawaguchi,1 Akiko Tsujimoto,1 Kazuko Goto,1 Rumi Maruyama,1 Takatomo Watanabe,1 Takeru Shiraki,1 Takuma Aoyama,1 Takako Fujiwara,2 Hisayoshi Fujiwara,3 and Shinya Minatoguchi1
1Department of Cardiology, Gifu University Graduate School of Medicine, Gifu; 2Department of Food Science, Kyoto Women's University, Kyoto; and 3Department of Cardiology, Hyogo Prefectural Amagasaki Hospital, Hyogo, Japan
Submitted January 12, 2010 ; accepted in final form May 18, 2010
Anemia may accelerate angiogenesis in ischemic organs through its ability to augment tissue hypoxia-induced generation of several known angiogenic factors and to increase erythropoietin levels, which are also potently angiogenic. We examined the effect of controlled phlebotomy (bloodletting) on blood flow in a mouse ischemic leg model. We ligated the right femoral artery of BALB/c mice. In the phlebotomy group, 200 µl of blood were drawn from the tail vein once a week. After 4 wk, blood flow in the ischemic leg was significantly better in the phlebotomy group (flow ratio of the ischemic to nonischemic leg, 0.87 ± 0.04) than the control group (0.59 ± 0.05, P < 0.05), and capillary density was significantly higher. Repeated phlebotomy increased serum erythropoietin levels as well as the expression of hypoxia-inducible transcription factor-1 and vascular endothelial growth factor and both the expression and activity of Akt and endothelial nitric oxide synthase (eNOS) in ischemic legs. Treatment with wortmannin or N-nitro-L-arginine methyl ester significantly attenuated the phlebotomy-induced improvement of blood flow. In addition, fluorescence-activated cell sorting analysis revealed an increase in circulating peripheral endothelial progenitor cells in the phlebotomy group, and treatment with AMD3100, a specific inhibitor of the chemokine receptor CXCR4, blocked the beneficial effect of phlebotomy. These findings suggest that repeated phlebotomy improves blood flow in ischemic legs through an angiogenic action that involves the Akt/eNOS pathway, endothelial progenitor cell mobilization, and their complicated cross talk. An adequately controlled phlebotomy might be one method by which to induce therapeutic angiogenesis.
ischemia; vascular biology
Bethr-you find some amazing studies! Thank you for posting that mouse phlebotomy study, I will have to look up angiogenesis to try to understand what it is!
My present anemia is not iron deficiency anemia, but rather B12 or folic acid related. I suspect it is folic acid because my B12 was just fine, maybe because I take methylcobalamin (5000 mcg sublingual). So perhaps I have a genetic inability to convert folic acid...
http://www.pamelaegan.com/articles/foli ... y_0001.htm
MARCH 14, 2008 - Are you suffering from Folic Acid Deficiency? What would you say if I told you that you could reduce your risk of cancer, heart disease, stroke, coronary artery disease, depression, anxiety, Alzheimers Disease, memory loss, retinal vein occlusion, and more with a single, highly absorbable form of folic acid called L-methylfolate?
Several conditions may increase your blood homocysteine level such as an inadequate folate intake with diet, smoking, drugs (i.e. methotrexate, synthetic hormones like Birth Control Pills, antiepileptics), renal failure and an inherited gene polymorphism of methylene-tetra-hydro-folate-reductase (MTHFR).
Increase in circulating homocysteine may trigger endothelial dysfunction through oxidative damage. Hyperhomocysteinemia has been reported as risk factor for arterial and/or venous thrombosis.
If you’ve had an elevated homocysteine level in the past, you may want to check your blood for a polymorphorphism or gene defect that decreases your ability to metabolize folic acid. The test is called MTHFR, DNA Analysis that checks for two mutations: C677T/A1298C. These mutations and their associated risks are inherited, so if you test positive, then testing of at-risk family members should be considered.
The MTHFR enzyme is responsible for creating the circulating form of folate. Folate is important in regulating our homocysteine levels. A normal homocysteine level should be less than 10. Defects in this enzyme can cause elevated homocysteine levels. Elevated serum homocysteine levels have been associated with an increased risk of cerebrovascular disease, coronary artery disease, myocardial infarction, and venous thrombosis. In women, pregnancy complications and an increased risk of fetal open neural tube defects (spina bifida) have been reported.
With regard to vascular disease, these polymorphisms can increase your risk of vascular disease and all of the disorders listed above. Folic acid plays a key role in the maintenance of gene stability. A growing body of evidence suggests that a deficient supply of dietary folic acid may be a risk factor for several human diseases, including neonatal malformations, Down syndrome, Alzheimer disease, cardiovascular disorders and cancer.
With regard to cancer, in conditions of folic acid deficiency, the mutated gene has been shown to be associated with an increased risk of cancer at various sites including colon, breast, gastric, cervical and prostate.
With regard to depression, folic acid deficiency may increase the risk of depression and reduce the action of antidepressants. Individuals with an inherited polymorphism that reduces the efficiency of folate formation may be at high risk for folate deficiency and for major depression. Antidepressant effects have been reported when antidepressants are augmented with folic acid, or L-methylfolate, a more absorbable form of folic acid.
L-Methylfolate acts as an important regulator of a critical co-factor for neurotransmitter synthesis. By boosting neurotransmitter synthesis L-methylfolate is able to augment the antidepressant actions of known antidepressants.
Even if you have the polymorphism or mutated gene, you can offset all of the above diseases by taking a highly absorbable form of L-methylfolate. Hyperhomocysteinemia is modifiable risk factor for thrombotic diseases. Many patients with elevated homocysteine levels might benefit from supplementation with L-methylfolate. Pam Lab has several forms of L-methylfolate (Deplin, Metanx, Cerafolin NAC) on the market for Depression, Neuropathy, & Memory available by prescription.
My present anemia is not iron deficiency anemia, but rather B12 or folic acid related. I suspect it is folic acid because my B12 was just fine, maybe because I take methylcobalamin (5000 mcg sublingual). So perhaps I have a genetic inability to convert folic acid...
http://www.pamelaegan.com/articles/foli ... y_0001.htm
MARCH 14, 2008 - Are you suffering from Folic Acid Deficiency? What would you say if I told you that you could reduce your risk of cancer, heart disease, stroke, coronary artery disease, depression, anxiety, Alzheimers Disease, memory loss, retinal vein occlusion, and more with a single, highly absorbable form of folic acid called L-methylfolate?
Several conditions may increase your blood homocysteine level such as an inadequate folate intake with diet, smoking, drugs (i.e. methotrexate, synthetic hormones like Birth Control Pills, antiepileptics), renal failure and an inherited gene polymorphism of methylene-tetra-hydro-folate-reductase (MTHFR).
Increase in circulating homocysteine may trigger endothelial dysfunction through oxidative damage. Hyperhomocysteinemia has been reported as risk factor for arterial and/or venous thrombosis.
If you’ve had an elevated homocysteine level in the past, you may want to check your blood for a polymorphorphism or gene defect that decreases your ability to metabolize folic acid. The test is called MTHFR, DNA Analysis that checks for two mutations: C677T/A1298C. These mutations and their associated risks are inherited, so if you test positive, then testing of at-risk family members should be considered.
The MTHFR enzyme is responsible for creating the circulating form of folate. Folate is important in regulating our homocysteine levels. A normal homocysteine level should be less than 10. Defects in this enzyme can cause elevated homocysteine levels. Elevated serum homocysteine levels have been associated with an increased risk of cerebrovascular disease, coronary artery disease, myocardial infarction, and venous thrombosis. In women, pregnancy complications and an increased risk of fetal open neural tube defects (spina bifida) have been reported.
With regard to vascular disease, these polymorphisms can increase your risk of vascular disease and all of the disorders listed above. Folic acid plays a key role in the maintenance of gene stability. A growing body of evidence suggests that a deficient supply of dietary folic acid may be a risk factor for several human diseases, including neonatal malformations, Down syndrome, Alzheimer disease, cardiovascular disorders and cancer.
With regard to cancer, in conditions of folic acid deficiency, the mutated gene has been shown to be associated with an increased risk of cancer at various sites including colon, breast, gastric, cervical and prostate.
With regard to depression, folic acid deficiency may increase the risk of depression and reduce the action of antidepressants. Individuals with an inherited polymorphism that reduces the efficiency of folate formation may be at high risk for folate deficiency and for major depression. Antidepressant effects have been reported when antidepressants are augmented with folic acid, or L-methylfolate, a more absorbable form of folic acid.
L-Methylfolate acts as an important regulator of a critical co-factor for neurotransmitter synthesis. By boosting neurotransmitter synthesis L-methylfolate is able to augment the antidepressant actions of known antidepressants.
Even if you have the polymorphism or mutated gene, you can offset all of the above diseases by taking a highly absorbable form of L-methylfolate. Hyperhomocysteinemia is modifiable risk factor for thrombotic diseases. Many patients with elevated homocysteine levels might benefit from supplementation with L-methylfolate. Pam Lab has several forms of L-methylfolate (Deplin, Metanx, Cerafolin NAC) on the market for Depression, Neuropathy, & Memory available by prescription.
When I was last pregnant (11 years ago), I was folic acid deficient and had to take supplements.
Might start to take some of this again.
My amount of bottles is growing! Never thought I'd see the day.
I thought the above study very pertinent.
Angiogenesis is being discussed in other threads here at the moment.
Maybe I should copy that study over to those threads. We know that phlebotomy does something for us, quite amazing results for me. We are working backwards as to why.
I think it means the ability to grow new veins, maybe to compensate for the blocked ones. Correct me if necessary
Might start to take some of this again.
My amount of bottles is growing! Never thought I'd see the day.
I thought the above study very pertinent.
Angiogenesis is being discussed in other threads here at the moment.
Maybe I should copy that study over to those threads. We know that phlebotomy does something for us, quite amazing results for me. We are working backwards as to why.
I think it means the ability to grow new veins, maybe to compensate for the blocked ones. Correct me if necessary
got my zinc results--LOW, despite taking an average of 100 mg per day for the months prior to testing--
with the pyroluria test a number of years ago where tested positive, and the "cure" is high dose zinc and B6, have pretty much always included zinc in my daily vitamin supplements.
Yet still deficient. Clearly I need a large amt (the pyloria info states to go to about 150, and possibly need at least 300!)--thought the 100 or so was doing it, but clearly not.
I suspect this is a hugh part of my problems. Will be dosing now with no less than 150 mg per day, and possibly more as notice what changes and what doesn't--and I'll get fairly frequent blood tests---not so much for the zinc, but for all the other parameters that have been off.( including Vit D, that was 1 above insufficiency despite taking 5,000 IU per day--D absorption might need Zinc).
My iron results, taken at same time as zinc, are great--
total 48
TIBC 331
Trans sat 15
transferrin 248
ferritin 24
so no phlebotomy for awhile.
and for the first time in about 15 years my MCH is okay--always has been too high!
So somehow the phlebotomy helped to normalize my CBC.
So now will concentrate on the zinc, and see if that corrects the fatigue, eye problems, slowness, etc.
And will get an iron panel in a few months to see if it goes up--if so, back to a phlebotmy. Definitley want to keep the iron panel low, for a number of reasons, including the one in your post above Bethr on angiogenesis.
with the pyroluria test a number of years ago where tested positive, and the "cure" is high dose zinc and B6, have pretty much always included zinc in my daily vitamin supplements.
Yet still deficient. Clearly I need a large amt (the pyloria info states to go to about 150, and possibly need at least 300!)--thought the 100 or so was doing it, but clearly not.
I suspect this is a hugh part of my problems. Will be dosing now with no less than 150 mg per day, and possibly more as notice what changes and what doesn't--and I'll get fairly frequent blood tests---not so much for the zinc, but for all the other parameters that have been off.( including Vit D, that was 1 above insufficiency despite taking 5,000 IU per day--D absorption might need Zinc).
My iron results, taken at same time as zinc, are great--
total 48
TIBC 331
Trans sat 15
transferrin 248
ferritin 24
so no phlebotomy for awhile.
and for the first time in about 15 years my MCH is okay--always has been too high!
So somehow the phlebotomy helped to normalize my CBC.
So now will concentrate on the zinc, and see if that corrects the fatigue, eye problems, slowness, etc.
And will get an iron panel in a few months to see if it goes up--if so, back to a phlebotmy. Definitley want to keep the iron panel low, for a number of reasons, including the one in your post above Bethr on angiogenesis.
Hi Shye, great the irons have come right. I noticed the dose of zinc you use, so checked my bottle and it is only 9mg!
Maybe I should find something a bit higher? What's recommended?
I've posted the angiogenisis article over to the other thread, where they are discussing it. Looks like LDN has the same effect.
Have any of you tried LDN?
Cheers..........
Maybe I should find something a bit higher? What's recommended?
I've posted the angiogenisis article over to the other thread, where they are discussing it. Looks like LDN has the same effect.
Have any of you tried LDN?
Cheers..........
http://www.americanheart.org/presenter. ... ifier=4435
Bethr-I have tried to take LDN more than once, but it seems to send me into some sort of attack, and considering I am PP, I don't generally get Indentifable attacks. Twice I had my T cells tested and they went in the wrong direction. First tried LDN in the year 2000 and again in 2005, and both times it elevated my CD4 count and then totally wiped out my CD8 suppressor cells. Once again I get this kind of weird paradoxical reaction!
I tried every form of zinc on the market, and the only one that ever seemed to elevate my serum levels of zinc is a brand by Radiant Health, Krebs zinc. I tried zinc gluconate, acetate, citrate, picolinate, I got no benefit. I understand there is a zinc carbonate, but that is seemingly unavailable as a supplement.
Some people that cannot absorb zinc lack the amino acid histidine, which is intimately involved in metal regulation...
http://cfsn.com/histidine.html
I took a bunch of histidine, but never noticed anything from it. However, PhytoPharmica used to make Krebs zinc but they don't longer do so I only know of one brand, it is available from iherb, it is 15 mg per capsule.[/i]
Bethr-I have tried to take LDN more than once, but it seems to send me into some sort of attack, and considering I am PP, I don't generally get Indentifable attacks. Twice I had my T cells tested and they went in the wrong direction. First tried LDN in the year 2000 and again in 2005, and both times it elevated my CD4 count and then totally wiped out my CD8 suppressor cells. Once again I get this kind of weird paradoxical reaction!
I tried every form of zinc on the market, and the only one that ever seemed to elevate my serum levels of zinc is a brand by Radiant Health, Krebs zinc. I tried zinc gluconate, acetate, citrate, picolinate, I got no benefit. I understand there is a zinc carbonate, but that is seemingly unavailable as a supplement.
Some people that cannot absorb zinc lack the amino acid histidine, which is intimately involved in metal regulation...
http://cfsn.com/histidine.html
I took a bunch of histidine, but never noticed anything from it. However, PhytoPharmica used to make Krebs zinc but they don't longer do so I only know of one brand, it is available from iherb, it is 15 mg per capsule.[/i]
Bethr
what thread did you post the angiogenesis info on? I am interested in following it--
I got my dr to agree to the LDN, filled the script, but then decided to wait until the chelation and iron problems more resolved.
Am pretty sure will stop chelation now, and the iron okay, so think I will start on the LDN--
Will post when I do.
Bethr, you seem to have porphyria--as I've said elsewhere, my dr assumes I have it, but testing not conclusive. But I did test positive for pyroluia. Maybe you should check info on pyroluria--I am sure it is the same "disease" as porphyria, just one is acknowledged by the traditional MD's, the other by Alternative MDs.
I can usually keep my porphyria symptoms in check with the protocol used for pyroluria--high zinc and high B6. And as I am now finding, the zinc has to be HIGH.
what thread did you post the angiogenesis info on? I am interested in following it--
I got my dr to agree to the LDN, filled the script, but then decided to wait until the chelation and iron problems more resolved.
Am pretty sure will stop chelation now, and the iron okay, so think I will start on the LDN--
Will post when I do.
Bethr, you seem to have porphyria--as I've said elsewhere, my dr assumes I have it, but testing not conclusive. But I did test positive for pyroluia. Maybe you should check info on pyroluria--I am sure it is the same "disease" as porphyria, just one is acknowledged by the traditional MD's, the other by Alternative MDs.
I can usually keep my porphyria symptoms in check with the protocol used for pyroluria--high zinc and high B6. And as I am now finding, the zinc has to be HIGH.
I got brave, and I am nebulizing nano silver, nano zeolite and glutathione altogether at once. I have never reacted well to colloidal silver, it makes me feel instantly nauseous and very very sick. However, I am nebulizing 1/2 teaspoon of silver, 1/2 teaspoon of zeolite and 200 mg glutathione and I am not having any problems tolerating it. However it is too soon to tell whether it will have any positive impact. At least it's not killing me!